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gluten-free Foods Cause Gi Issues
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Ok, I've been gluten-free for a couple yrs now & feel pretty confident that I'm mostly aware of hidden wheat/gluten.

I was wondering if anyone has noticed GI problems when eating "gluten-free" foods (a la Amy's brand, which uses mostly rice flour)? (pain, bloating, the infamous 'D' - up to 2 days after eating)

I've used bob's red mill flours to make biscuits, pancakes, etc. and haven't had much of an issue (unless I eat more than one or two portions in a day).

I don't use these products frequently (maybe once a month - if that!), I eat real foods otherwise (fruits, veggies, protein, fats).

Any ideas?

cSuzie

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There are two types of gluten free foods when it comes to processed foods. First, there are foods like Amy's that are processed in a shared facility and are susceptible to CC and it is possible that the cause of your issues when consuming some products is actually gluten. Then there are others that are processed in a gluten free facitily, if these are bothering you you certainly have some type of other intolerance. If you keep a food diary that you also list symptoms in you could review and check for common ingredients. It could be an additive that bothers you. Then again it could be something as simple as rice, some people have issues with all types of things.

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Or it could be gluten free oats. I was sort of heartbroken to have to give up the Bob's Red Mill Brand (they process gluten free oats in the same facility) when I finally figured out that it I react to even traces of gluten free oats, as that brand is the easiest to find around here. But it made a huge difference.

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I'm wondering which type of Amy's because I think I used to see posts questioning cc in Amy's frozen foods but almost never the canned ones. There's a canned Amy's gluten-free organic southwest chili I've had plenty of times w/out a problem.

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Only thing I ever get that's Amy's (frozen) is the Rice crust pizza (w/soy cheese).

I next to never eat anything soy (due to thyroid stuff)... so I didn't think of that being an issue possibly.

But even w/the Bob's Red Mill - I can eat say 2 biscuits or 2 pancakes - but more than that & I get the same reaction.

I don't eat oats (never liked 'em anyway), so if the CC is the issue, maybe that.

It's an issue enough, I simply won't be buying that pizza again. I had Glutino's pizza (w/real cheese) & it was good, but same issue and serious blood sugar reactions.

I know I can't eat any rice pasta b/c of the sugar issues I get from even half a serving (with a meat sauce, for example) even. Maybe, I need to stay away from all rice??

That means the only 'grain' I'll be eating is corn products, as others I don't like, can't eat, or don't settle well (like quinoa). :(

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I would suspect that it might be the soy. I get a LOT of digestive pain from eating even the smallest amount....and lots of D.

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I recently made a post about this and found some interesting info about how lenient the labelling can be re: 'gluten-free'

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
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