Tyvm For This Forum!
Posted 30 December 2012 - 10:07 PM
Back in September, I started experiencing vertigo episodes.....different than my usual lightheaded ness. Scared the living crap out of me. I'm not one to except all the many diagnosis' and meds thrown at me. I have been diagnosed with male pattern baldness ( I'm a girl and my hair first shed at 10), fibromyalgia, sebhorric dermatitis, psoriasis, demographia....urticaria, depression and recommended to take Prozac....,and I'm pretty sure there has been more. I am a mother of five children, who I highly suspect are affected as well. The youngest is about 15 months old.
With all the reading I have done, I was sure that I figured out what was going on . I asked my doc to do the testing. It came back positive for the elevated antibodies to gliadin etc.. They referred me to a GI, but I need to wean my little one before we continue with testing.
To be honest, I am experiencing an abundance of excitement at the prospect of feeling and looking better. At the same time, I am ANGRY that I have had to figure this out by myself. Even still, my husband, children and immediate family have had such a minimal reaction to my diagnosis. I am completely alone. I feel like they just are not understanding the seriousness of this, and how it also may be affecting them. *sighhhhhhhh*
But I am so thankful that I came across this forum! I
Posted 31 December 2012 - 04:03 AM
Angry seems pretty normal to start with. Lots of us worked it out ourselves, and then to add insult to injury had to convince our doctors.
You will find some great help here as you transition to a new diet ( and more besides).
I am not sure why you need to wean before testing. If you could tell us why that might be needed we might be able to help.
Welcome and good luck
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
Posted 31 December 2012 - 06:10 AM
Posted 31 December 2012 - 11:03 AM
As far as testing goes, they would like to knock me out for the endoscopy and colonoscopy. Therefore the anesthesia isn't safe for baby. I could just go without breast feeding for a few days but at the same time I would like to wean him anyway. I'm exhausted :/ I'm still eating gluten and grains temporarily until I decide what to do. I have considered getting my eldest daughter tested. If she has it, then I am pretty sure I do. She can be the guinea pig
I do have a question that maybe someone can answer. Besides needing the colonoscopy/ endoscopy for diagnosing reasons, is it also necessary for evaluating possible damage? In other words, do I need to have it done? Is it recommended? TYIA.
Posted 31 December 2012 - 11:55 AM
Ultimately though, it is your decision if you have it or not, especially if the doctor is willing to give you a diagnosis without. But since he wants to do both upper and lower, he sounds like he might be old school (or thorough, or in need of the money ) Take your pick on that one.
So it is your decision to make, your body, your diagnosis. Best wishes in your decision-making.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
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