Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Unsure About Getting Tested


  • Please log in to reply

4 replies to this topic

#1 julissa

 
julissa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 213 posts
 

Posted 31 December 2012 - 11:53 AM

I hope to get some advice about getting tested for sensitivity. Here's my story, I have had terrible symptoms for a little over a year of nausea/diarrhea/dizziness. I had no idea what it could be, went to several docs including 2 GI docs. was given every test that was recommended, including a biopsy. every result came back normal, nothing was wrong. okay, why am I still n/d/dizzy? every doc said the same thing.

did some research, found this board, and decided to give gluten-free a go, as it was like reading my own story. I did and for the first month or so had never felt better. I also went dairy free, looking back probably shouldn't have, but it is what I did.

I will add that the only time in that first month I felt signs of the dizziness coming back was when I baked with flour. I didn't eat anything, but since found out that that can cause a glutening. I believe that gluten caused the dizziness, but now am left with a bit of nausea on and off, possibly caused by other intolerances. but how to find out?

after a month I had some gluten-free pizza, which had cheese on it. felt sick with only nausea (no dizziness) the next day and several days afterwards. I don't know if it was cc or the dairy. ever since then have not felt as great as I did for the first month. at this point, I don't know if there is any testing I can do for food sensitivity.

any advice would be much appreciated, it is getting to the point that I am almost afraid to eat.

and happy new year!!
  • 0

Celiac.com Sponsor:

#2 julissa

 
julissa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 213 posts
 

Posted 31 December 2012 - 12:16 PM

oh also, not sure if it's relevant, but I was told I have a hiatel hernia.
  • 0

#3 julissa

 
julissa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 213 posts
 

Posted 02 January 2013 - 05:35 AM

just bumping this to see if anyone might answer. I have been doing some research and am looking into (Company Name Removed - They Spammed This Forum and are Banned) and entero. (Company Name Removed - They Spammed This Forum and are Banned) is right near my house.

just looking for anyone's input.. thanks
  • 0

#4 julissa

 
julissa

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 213 posts
 

Posted 02 January 2013 - 10:14 AM

okay, I guess I am not supposed to ask about testing, I see the names have been removed. so sorry, I didn't know.
  • 0

#5 mushroom

 
mushroom

    Mushroom

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,448 posts
 

Posted 02 January 2013 - 11:54 AM

okay, I guess I am not supposed to ask about testing, I see the names have been removed. so sorry, I didn't know.


It's nothing personal. Once the board has been spammed, there is a program that automatically removes the name of a spammer and substitutes that sentence.

However, there is a board rule against bumping posts; please do not do that again.

As to your question, there is food testing available through an allergist, but first you might try just the total elimination of dairy as well as gluten since if you do have a damaged gut you will probably have problems digesting dairy products (even though there was no villous atrophy found on biopsy they have been known to miss the afffected areas and give a false negative). The damage done to the small intestine also destroys the ability to produce the enzyme for digesting lactose.

Several companies offer stool testing. You can either order this yourself or it can be ordered through a naturopath. The results are not recognized by doctors as there has been no peer-reviewed research as to their validity in diagnosing celiac.
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: