Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Sugar And Fruit Problems
0

20 posts in this topic

Hi

I have had great improvements on the gluten-free diet but I have got a bit stuck. I think I have managed to gluten myself 5 times in 6 weeks. My symptoms are day 1 extreme tiredness and mood swings, day 2 migraine, day 2to3 sickness and D followed by a few days feeling run down.

The only other thing I have noticed is that it seems worse if I have much sugar or fruit. Like maybe half a satsuma would be a much as I could do in a day, or a small glass of juice. I won't touch apples, grapes, melon etc any more, and even my old standby banana is too much.

I also tend to get bad reflux from fruit and sugar goodies.

I have been having maybe 2 gluten-free brownies a week in a coffee shop, and pinching the kids chocolate around Christmas. Can't stand most yogurts any more.

I have found recently and in the past that sugar is very addictive for me, and after a few days upping my consumption fairly minimally (say a small cake or couple of cookies) I often end up with sickness and D.

I am starting the Whole30 programme on 2nd, which is a wholefoods paleo type diet, as an elimination.

I know that part of the answer is to cut it out, but how extreme does this need to be?

I wondered if anyone has any advice about this?

I have had negative thyroid tests and I am not diabetic. I wondered about fructose intolerance or SIBO but my GI was dismissive. I have a small hiatus hernia.

Sorry if this is a mixed up post - as you can see I am confused :?

1

Share this post


Link to post
Share on other sites


Ads by Google:

Hi CM,

I think the first priority is to eliminate the glutenings. While those are going on it's hard to tell what other food reactions might be. Until those stop for a couple weeks your system will be a bit "messed up" immune system and digestion wise.

0

Share this post


Link to post
Share on other sites

Gee Free speaks the truth, kiddo.

No way to tell if anything else is going on as long as you are being dosed by small hits and the inflammation is ongoing.

It could very well be fructose malabsorption for example, but it could also just be your gut is in chaos.

Frankly, the whole 30 program will be a good way to "clear the decks" so to speak.

Nothing there that will give you any chance accidental glutenings.

I won't lie to you, though...the first week on that program may cause some withdrawal symptoms.

(at least, it did or me, but once I had a week under my belt, I felt pretty darn good)

I never should have reintroduced so many fun foods all at once over the holidays :unsure: as I am now in a bit of GI distress myself.

Ah well. onward and upward.

Hope you start to feel better soon..Lots of water to rehydrate from the D and rest.

And we'll tackle this whole 30 thing together.

,

0

Share this post


Link to post
Share on other sites

Having seen me ill so much Mr Mindwarp is getting closer to going for a gluten-free house... I will call and see if my sons blood tests are in as we agreed whole house if son is positive. My theory is that if I still get glutened on wholefoods it must be cc.

Thanks both

0

Share this post


Link to post
Share on other sites

I hesitate to say this anyone because many celiacs co-exist with WEs and do fine, but if you're not ingesting anything with gluten, but you're still serving gluteny meals, especially to kiddos whose hands touch everything around them, then, yes, hon, there's a good chance you are inadvertently getting hit.

Neg tests or not, what about a month long trial for the household to see if you feel better? Can't hurt. May help.

If Mama doesn't feel good 24/7, then things get dicey for all.

Just a suggestion.

1

Share this post


Link to post
Share on other sites




I think I will try the whole30 so I know I am not ingesting gluten, and if I am still getting hit regularly try and persuade the house to go gluten-free, at least for a trial. Sigh.

0

Share this post


Link to post
Share on other sites

We can help you transition them over. They will not even be able to tell (mostly ) :lol:

Let's try this first.--getting you over being glutened---and see if you feel better.

0

Share this post


Link to post
Share on other sites

Hi

I have had great improvements on the gluten-free diet but I have got a bit stuck. I think I have managed to gluten myself 5 times in 6 weeks. My symptoms are day 1 extreme tiredness and mood swings, day 2 migraine, day 2to3 sickness and D followed by a few days feeling run down.

The only other thing I have noticed is that it seems worse if I have much sugar or fruit. Like maybe half a satsuma would be a much as I could do in a day, or a small glass of juice. I won't touch apples, grapes, melon etc any more, and even my old standby banana is too much.

I also tend to get bad reflux from fruit and sugar goodies.

I have been having maybe 2 gluten-free brownies a week in a coffee shop, and pinching the kids chocolate around Christmas. Can't stand most yogurts any more.

I have found recently and in the past that sugar is very addictive for me, and after a few days upping my consumption fairly minimally (say a small cake or couple of cookies) I often end up with sickness and D.

I am starting the Whole30 programme on 2nd, which is a wholefoods paleo type diet, as an elimination.

I know that part of the answer is to cut it out, but how extreme does this need to be?

I wondered if anyone has any advice about this?

I have had negative thyroid tests and I am not diabetic. I wondered about fructose intolerance or SIBO but my GI was dismissive. I have a small hiatus hernia.

Sorry if this is a mixed up post - as you can see I am confused :?

You could also be reacting to any one of the ingredients in 'sugar goodies'. I only need to eat a chocolate chip cooky to get reactions to all 7 of my diagnosed allergens (gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg). If yogurt bothers you, at least consider eliminating dairy for awhile to see if your symptoms decrease. A better approach would be an ELISA (blood) test for immediate or delayed reaction allergies to commonly eaten foods. Then you wouldn't need to spend time guessing with elimination diets or following suggestions from other people. We can be allergic to any food, including the 'safe' ones recommended for elimination diets.

1

Share this post


Link to post
Share on other sites

Thanks burdee :). My previous eliminations have revealed caffeine, sesame, aspartame etc, alcohol, corn. I have always struggled with sugar, and find it hard to limit. This has been the case for several things I have excluded. I wonder if it is coming to the fore now the gluten has gone.

I was chatting on another thread about the difficulties of getting blood tests in the UK. Many doctors seem sceptical, and sorting out the good from the others in private testing is tough. I am seeing a dietitian soon so I''ll have another go.

Thanks for your input, never seems simple :)

0

Share this post


Link to post
Share on other sites

Thanks burdee :). My previous eliminations have revealed caffeine, sesame, aspartame etc, alcohol, corn. I have always struggled with sugar, and find it hard to limit. This has been the case for several things I have excluded. I wonder if it is coming to the fore now the gluten has gone.

I was chatting on another thread about the difficulties of getting blood tests in the UK. Many doctors seem sceptical, and sorting out the good from the others in private testing is tough. I am seeing a dietitian soon so I''ll have another go.

Thanks for your input, never seems simple :)

I 'struggled with' (felt nauseas and anxious) after eating foods with sugar for years. After I was diagnosed with cane sugar allergy and substitued beet sugar, honey, agave, maple syrup, etc., I realized the 'anxious' feelings were really tachycardia caused by my cane sugar reaction. I still get nausea and tachycardia if I accidentally consume cane sugar in a product. (That happened 2x last summer when trusted products changed their ingredients by adding cane sugar.) Before I was dx'd with cane sugar allergy, I told people that my heart raced after eating sugary products. They told me I just felt guilty about the calories. I never realized it was really reacting to the cane sugar with tachycardia. I suspect that if we listened to our own bodies, rather than listening to other people or reading 'health' propagana (often generated by the food industry in the USA), we could figure out our true allergies much more easily.

1

Share this post


Link to post
Share on other sites

Hi Celiac Mindwarp, I wanted to express my compassion for what you're going through right now. Giving up sugar is really difficult because not only does it have a physical addiction component but an even tougher psychological one.

I did my first Whole30 before Christmas of last year and it was tough. There were a lot of cravings but so worth it in the end. After 30 days is the reintroduction period where you can find out exactly how your body reacts to sugar. I already knew I was celiac with allergies to eggs, dairy, and soy before starting my whole30 so I knew I would never "test" those through reintroduction but I was curious about the sugar. I've always known I'm sensitive to sugar but never knew just how serious it was until I reintroduced it. I reacted so violently and gained 9 lbs of water weight pretty much overnight from trying a few gluten, egg, dairy, soy free cookies and an apple. I also had a lot of the same symptoms you describe. I have come to the difficult conclusion that my body just does not like sugar in any form and have since given it up for good. This is a big change for me considering I used to eat about 4-5 fruits a day. But now that I'm more in tune with my body I know I do better without sugar and fruit.

I'm glad you are going to do the Whole30 because it really teaches you to be aware of your body and how it reacts to all foods. I am so grateful for it. My life has improved tremendously since I disciplined myself to just do it. Good Luck and feel free to message me if you need help cutting the sugar and fruit out.

0

Share this post


Link to post
Share on other sites

Thanks so much freedomseek

What you say sounds so familiar. In a way, the whole30 total elimination is the easy bit for me I think. I have cut it out several times before, and then it has taken just a little bit to get me going again. Then off goes the whole cycle again.

It is interesting you had such a strong reaction post whole30. I suspect I will end up like you. Maybe this will be my convincer.that it just isn't worth it.

Was it all forms of sugar for you, and did you reintroduce them separately? Like honey, fruit, cane sugar, chocolate... I can feel the cravings heading off even just thinking about it!

0

Share this post


Link to post
Share on other sites

Burdee so true about if only we could listen to our bodies more!

Those damn label changes... I have just been told I need reading glasses, and I swear it is squinting at all those stupid labels :)

0

Share this post


Link to post
Share on other sites

hi Celiac mindwrap,

i just want to say, though i am so new at this gluten-free diet and all the fun (:)) that goes with it, i feel your pain. i strongly suspect , though i am only gluten intolerant, that i have been `glutened`many times preparing meals for my hubby and 4 kids (well, three now that i have one dear daugher on a gluten-free diet as well). just a couple weeks ago, i made pizza crust for them, and my hands cracked and bled just from kneading the dough! (imagine! i have been making bread with wheat since i was a kid! and suddenly, four months gluten-free and i am bleeding from touching it!)

i too feel the only way i will be safe and healthy is to get IT out of my home altogether...but until then, i live in fear!

as for your sugar issue, i suspect i may be sufferring at your side. I feel very bloated, sick, heartburn (like a panic attack kindof pain) after ingesting sugar, esp in the form of milk chocolate. zylitol is a good substitute, if you are using it in small amounts, as it it made form birtch trees and very pricey.

i am not familiar with the whole30 program you mention, please enlighten me. meanwhile, i encourage you to stay strong, fight it! your health really is most important right now, and if mama ain`t HEALTHY, ain`t nobody HEALTHY cuz we arent`any good to them lying on the couch moaning in pain are we ;)

hugs.

0

Share this post


Link to post
Share on other sites

What is this whole30? I am New to the celiac scene. I have not officially been diagnosed but have done my research for my symptoms. I do not have insurance and will try anything to feel better after 4 years! I am in pain now and I think it is from cross contamination. I discarded some regular four in the garbage and washed the dish and I feel bad. I cooked a gluten free meal and am guessing if I should put my gluten-free flour in the same container or just throw it away. HELP...am I going crazy?

0

Share this post


Link to post
Share on other sites

Fructose is bad. I stay away from all sweet things except pure dextrose (in Smarties and pixie stix). Causes me no end of awfulness.

0

Share this post


Link to post
Share on other sites

Hey Chaff, just read your other post about fructose intolerance. Glad you found something to try out.

I am looking at fructose intolerance, SIBO and histamines. Hopefully I will work something out :)

0

Share this post


Link to post
Share on other sites

Celiac Mindwarp - How did the Whole30 go? I am on day 2. I hope this helps me figure out why I am having some of the same symptoms I had before going gluten free three years ago. Did it help you?

0

Share this post


Link to post
Share on other sites

Celiac Mindwarp - How did the Whole30 go? I am on day 2. I hope this helps me figure out why I am having some of the same symptoms I had before going gluten free three years ago. Did it help you?

 

Hi, and welcome to the Forum.

 

This thread ended over a year ago and Celiac Mindwarp may not see your question.  Why not go ahead and start a new topic on the Whole 30.  You will get more feedback that way.

 

Good Luck.

 

Colleen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,703
    • Total Posts
      921,801
  • Topics

  • Posts

    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,705
    • Most Online
      3,093

    Newest Member
    imissdonuts
    Joined