Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Long Flight With Celiac Kiddo - Tips?
0

16 posts in this topic

I am flying overseas in 2 weeks with my 5-yr-old and 9-yr-old (who has celiac). The flights combined are 16 hours, so I need to bring a lot of food. Any tips or advice? Is it possible to take an ice pack on a flight? Or does that violate TSA regulations? I was planning to bring peanut butter (I found little "to go" packets that are small enough), gluten-free pretzels, gluten-free granola bars, salami, cheese sticks, crackers, dried fruit, carrots, Chex cereal, and whatever else I can cram into my carry-on....

We have a few layovers, but I'm not sure we will have much time to seek out restaurants that have gluten-free options available. I have 90 minutes in O'Hare and ~120 in Newark. Any recommendations in either place?

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'd bring things as close to regular food as you can. What about sandwiches on Udi's bread? Or muffins? Hard boiled eggs? Nuts and dried fruit are good options, as are the salami and cheese you mention. I'd think about what sorts of things you'd pack in a kid's lunchbox, leaving out the liquidy stuff.

0

Share this post


Link to post
Share on other sites

Hard-boiled eggs is a great idea. Muffins, too.

Considering we are moving for 5 months, I was thinking of actually packing up their lunch boxes and bringing them with me, fully stocked.

0

Share this post


Link to post
Share on other sites

I have carried ice packs to keep medications (injectibles) refrigerated. They run their explosives strips over them. Just tell them you have them so they don't think you're trying to sneak them on. And make sure they're very official looking packs. I've never been through O'Hare, but if it's anything like LAX 90 minutes probably won't give you a lot of spare time :) and even when you get to Newark, the odds of gluten free in an airport are slim. As one waitress said to me, people who eat here don't care what they eat :lol:

Good luck on your adventure!

0

Share this post


Link to post
Share on other sites

I just returned from an overseas flight. I took basically what you wrote. Just be careful that your final destination allows in the food you have leftover. I had some sliced deli meat and had to toss it on the plane because meat isn't allowed into Japan. I didn't cool my meat or cheese. It was fine. I had a midnight flight and realized I had way more food than I needed. I slept most of the way and only ate my cheese/meat/crackers and bananas as a breakfast before landing. I pre-ordered a gluten-free meal from the airline but didn't eat it either flight. I knew my carry on food was safer no matter what!

0

Share this post


Link to post
Share on other sites




Freeze some of the things beforehand, it'll help keep it cool.

0

Share this post


Link to post
Share on other sites

Freeze some of the things beforehand, it'll help keep it cool.

This - I regularly keep extra muffins in the freezer - they make great short-term ice packs. :)

0

Share this post


Link to post
Share on other sites

The airlines told me you can take ice packs when they are frozen. They will toss it if they have melted into liquid. I brought canned meats on my trip. You may need to select ones with a top that does not need a can opener.

I learned to let them see my cans right away. If you tell them "special diet" they pretty much have to make allowance for you. When they found the cans they had to go through every corner of my carryon. Once they tested my salt and told me that it was salt. (Yeah, I knew that.)

I had trouble getting to my carryon for every meal. There just isn't much room to stand in the aisle and out of the way. At the last meal the attendant told me that they would have to confiscate my carry-on bag. I put it in the overhead bin as usual. I sat down thinking not to worry and did not see them move it. When I grabbed for the bag at the end of the flight, indeed it was gone! I had reached my destination and all of my life sustaining supplements were in the bag! We ran off after someone with a simalar bag. We had difficulty getting back to the plane when it was not our bag. Eventually we convinced security to allow us to go past. They would not let us back on the plane. However, a person held up the bag asking if it was ours. (Whew!) When I opened the bag it contained a whole bag of crayons which belonged to the airline. Hmmm? I am just saying I don't know how to solve this situation, but be aware it can happen. Try to make grabbing things as easy as possible. Plan meals carefully and don't bring more than you need.

All in all I was very glad to have my own safe food!

Diana

0

Share this post


Link to post
Share on other sites

I fly through O'Hare pretty frequently, and I'm not aware of any gluten free options at the airport that are really safe, besides pre-packeged snacks like Kind Bars. Depending on what part of the airport you're in, there may be places like Chili's that make some gluten-free accomodations, but nothing that I'd really trust. And some of the terminals are sadly lacking in anything much beyond a Starbucks or McDonald's.

I've brought ice packs on flights before; they don't show up as a liquid as long as they're frozen. Don't know if you might have trouble with later legs of your flight due to them thawing out. In addition to the stuff you've listed, I've brought noodle bowls and oatmeal packets that just need to have hot water added. Flight attendants have been happy to accomodate, and it can be nice to have hot food on the flight. I've had good luck with requesting gluten-free meals from the airlines, but it really depends on which one you're flying. United and Lufthansa have been good, but I can't speak to any of the others. I always bring extra food, anyway, in case they mess up the meal or I have a flight delay/cancellation. Go Picnic meals are an easy option, too; you can buy them online and I've seen them at airport stores before.

0

Share this post


Link to post
Share on other sites

Oh yes, make sure you pack foof in a bag that can go under the seat in front of you. Overhead bins can be a pain to get into.

0

Share this post


Link to post
Share on other sites

We travel a lot with our kids and Go Picnics are our best resource. We use them on planes and in our day packs. I used to get them online and pay shipping but now Target sells them and that is awesome! We are also dairy free and additive free so there are only three varieties for us but that is plenty.

In airports, we often get oatmeal at Starbuck's.

0

Share this post


Link to post
Share on other sites

Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then.

Now if I can just survive a 16 hour journey with 2 kids. At least my husband is meeting us there, and he's under orders to have a kitchen fully stocked with gluten-free delights.

Thanks!

0

Share this post


Link to post
Share on other sites

"In airports, we often get oatmeal at Starbuck's."

Starbucks oatmeal isn't gluten free (it's not made of certified gluten-free oats, so it's like eating Quaker or any regular brand, which is usually contaminated with wheat). Better to bring certified gluten free oats, and just ask for some hot water for them when you get your coffee.

0

Share this post


Link to post
Share on other sites

Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then.

Now if I can just survive a 16 hour journey with 2 kids. At least my husband is meeting us there, and he's under orders to have a kitchen fully stocked with gluten-free delights.

Thanks!

Just a caution with the Go Picnic's: some of the things they include in the boxes are made on shared equipment, so depending on your kid's level of sensitivity, you may need to scrap some of the items. When I used them last year, the Popped potato chips were made on shared equipment, as well as a couple of other items. Everything is clearly labelled, though.

0

Share this post


Link to post
Share on other sites

For ice packs I often bring an empty freezer bag or two and fill it with ice from a soda fountain. 

0

Share this post


Link to post
Share on other sites

I always travel with fruit, eggs and nuts and seeds. Fruit is great because they are pretty destroy safe and have their own container-their skin! And they are complex carbs so it lasts longer in your system.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,344
    • Total Posts
      917,398
  • Topics

  • Posts

    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined