Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Long Flight With Celiac Kiddo - Tips?
0

16 posts in this topic

I am flying overseas in 2 weeks with my 5-yr-old and 9-yr-old (who has celiac). The flights combined are 16 hours, so I need to bring a lot of food. Any tips or advice? Is it possible to take an ice pack on a flight? Or does that violate TSA regulations? I was planning to bring peanut butter (I found little "to go" packets that are small enough), gluten-free pretzels, gluten-free granola bars, salami, cheese sticks, crackers, dried fruit, carrots, Chex cereal, and whatever else I can cram into my carry-on....

We have a few layovers, but I'm not sure we will have much time to seek out restaurants that have gluten-free options available. I have 90 minutes in O'Hare and ~120 in Newark. Any recommendations in either place?

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'd bring things as close to regular food as you can. What about sandwiches on Udi's bread? Or muffins? Hard boiled eggs? Nuts and dried fruit are good options, as are the salami and cheese you mention. I'd think about what sorts of things you'd pack in a kid's lunchbox, leaving out the liquidy stuff.

0

Share this post


Link to post
Share on other sites

Hard-boiled eggs is a great idea. Muffins, too.

Considering we are moving for 5 months, I was thinking of actually packing up their lunch boxes and bringing them with me, fully stocked.

0

Share this post


Link to post
Share on other sites

I have carried ice packs to keep medications (injectibles) refrigerated. They run their explosives strips over them. Just tell them you have them so they don't think you're trying to sneak them on. And make sure they're very official looking packs. I've never been through O'Hare, but if it's anything like LAX 90 minutes probably won't give you a lot of spare time :) and even when you get to Newark, the odds of gluten free in an airport are slim. As one waitress said to me, people who eat here don't care what they eat :lol:

Good luck on your adventure!

0

Share this post


Link to post
Share on other sites

I just returned from an overseas flight. I took basically what you wrote. Just be careful that your final destination allows in the food you have leftover. I had some sliced deli meat and had to toss it on the plane because meat isn't allowed into Japan. I didn't cool my meat or cheese. It was fine. I had a midnight flight and realized I had way more food than I needed. I slept most of the way and only ate my cheese/meat/crackers and bananas as a breakfast before landing. I pre-ordered a gluten-free meal from the airline but didn't eat it either flight. I knew my carry on food was safer no matter what!

0

Share this post


Link to post
Share on other sites




Freeze some of the things beforehand, it'll help keep it cool.

0

Share this post


Link to post
Share on other sites

Freeze some of the things beforehand, it'll help keep it cool.

This - I regularly keep extra muffins in the freezer - they make great short-term ice packs. :)

0

Share this post


Link to post
Share on other sites

The airlines told me you can take ice packs when they are frozen. They will toss it if they have melted into liquid. I brought canned meats on my trip. You may need to select ones with a top that does not need a can opener.

I learned to let them see my cans right away. If you tell them "special diet" they pretty much have to make allowance for you. When they found the cans they had to go through every corner of my carryon. Once they tested my salt and told me that it was salt. (Yeah, I knew that.)

I had trouble getting to my carryon for every meal. There just isn't much room to stand in the aisle and out of the way. At the last meal the attendant told me that they would have to confiscate my carry-on bag. I put it in the overhead bin as usual. I sat down thinking not to worry and did not see them move it. When I grabbed for the bag at the end of the flight, indeed it was gone! I had reached my destination and all of my life sustaining supplements were in the bag! We ran off after someone with a simalar bag. We had difficulty getting back to the plane when it was not our bag. Eventually we convinced security to allow us to go past. They would not let us back on the plane. However, a person held up the bag asking if it was ours. (Whew!) When I opened the bag it contained a whole bag of crayons which belonged to the airline. Hmmm? I am just saying I don't know how to solve this situation, but be aware it can happen. Try to make grabbing things as easy as possible. Plan meals carefully and don't bring more than you need.

All in all I was very glad to have my own safe food!

Diana

0

Share this post


Link to post
Share on other sites

I fly through O'Hare pretty frequently, and I'm not aware of any gluten free options at the airport that are really safe, besides pre-packeged snacks like Kind Bars. Depending on what part of the airport you're in, there may be places like Chili's that make some gluten-free accomodations, but nothing that I'd really trust. And some of the terminals are sadly lacking in anything much beyond a Starbucks or McDonald's.

I've brought ice packs on flights before; they don't show up as a liquid as long as they're frozen. Don't know if you might have trouble with later legs of your flight due to them thawing out. In addition to the stuff you've listed, I've brought noodle bowls and oatmeal packets that just need to have hot water added. Flight attendants have been happy to accomodate, and it can be nice to have hot food on the flight. I've had good luck with requesting gluten-free meals from the airlines, but it really depends on which one you're flying. United and Lufthansa have been good, but I can't speak to any of the others. I always bring extra food, anyway, in case they mess up the meal or I have a flight delay/cancellation. Go Picnic meals are an easy option, too; you can buy them online and I've seen them at airport stores before.

0

Share this post


Link to post
Share on other sites

Oh yes, make sure you pack foof in a bag that can go under the seat in front of you. Overhead bins can be a pain to get into.

0

Share this post


Link to post
Share on other sites

We travel a lot with our kids and Go Picnics are our best resource. We use them on planes and in our day packs. I used to get them online and pay shipping but now Target sells them and that is awesome! We are also dairy free and additive free so there are only three varieties for us but that is plenty.

In airports, we often get oatmeal at Starbuck's.

0

Share this post


Link to post
Share on other sites

Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then.

Now if I can just survive a 16 hour journey with 2 kids. At least my husband is meeting us there, and he's under orders to have a kitchen fully stocked with gluten-free delights.

Thanks!

0

Share this post


Link to post
Share on other sites

"In airports, we often get oatmeal at Starbuck's."

Starbucks oatmeal isn't gluten free (it's not made of certified gluten-free oats, so it's like eating Quaker or any regular brand, which is usually contaminated with wheat). Better to bring certified gluten free oats, and just ask for some hot water for them when you get your coffee.

0

Share this post


Link to post
Share on other sites

Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then.

Now if I can just survive a 16 hour journey with 2 kids. At least my husband is meeting us there, and he's under orders to have a kitchen fully stocked with gluten-free delights.

Thanks!

Just a caution with the Go Picnic's: some of the things they include in the boxes are made on shared equipment, so depending on your kid's level of sensitivity, you may need to scrap some of the items. When I used them last year, the Popped potato chips were made on shared equipment, as well as a couple of other items. Everything is clearly labelled, though.

0

Share this post


Link to post
Share on other sites

For ice packs I often bring an empty freezer bag or two and fill it with ice from a soda fountain. 

0

Share this post


Link to post
Share on other sites

I always travel with fruit, eggs and nuts and seeds. Fruit is great because they are pretty destroy safe and have their own container-their skin! And they are complex carbs so it lasts longer in your system.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,685
    • Total Posts
      921,748
  • Topics

  • Posts

    • Push for the endoscopy.  My GI said at the initial consult that he didn't think I had celiac but wanted to do the scope to "rule it out"  When he saw me immediately after the endo, while I was still in recovery, he saw enough damage to change his position and sure enough the biopsy came back positive.
    • Your body has been used to ingesting and has been coping with the gluten in its systems.  DON'T PANIC because your body is doing it for you.   Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine.  When that is either disrupted or changed, it could take a while for the body adjust to a different way of doing things.  Another factor in the increase in symptoms could possibly be that your body is starting to "clean house".  It's trying to get rid of the amounts of gluten hiding out in all its nooks and crannies.  It is going to be a long term process.  It's like cleaning out a vacuum hose or other household item that is just caked with gunk.  The first cleaning gets rid of a large portion of the gunk and ick.  The subsequent cleanings gets rid of more and more ick but in lesser amounts. I thought I was going to go crazy those first few months, but things are a lot better now. (I am about 10 months gluten free).  I still have moments of brain fog and even episodes, but my body is getting closer (and more used to)  to having a cleaner "household item".  I know it's tough at first with the increased onslaught of symptoms, but hang in there.   You may want to keep a journal of all that you ingest or come into contact with for a time to track anything that could exacerbate symptoms.  (For me, my episodes are chemically triggered as well.)  If for some reason a few months down the road, you still have large amounts of symptoms it would be a good idea to visit your GP again just in case there something else that is going on.  
    • I would love some help! After 20ish years of being misdiagnosed with IBS, I was diagnosed with celiac disease (positive blood test for tTG IgA and positive duodenal biopsy) ~ 6 weeks ago. Of course I've gone completely gluten free, and I've been crazy paranoid careful not to ingest any gluten. I've also completely avoided all oats (even certified gluten free) and cut out lactose (due to transient lactose intolerance... because I don't have villi) . But now I feel WAY WORSE. I've had abdominal pain every single day, which ranges from mild aching to severe 10/10 laying on the floor crying and vomiting pain. I understand that it takes a long time to get better, but why would I get so much worse? My best guess is SIBO, but I can't imagine that it could cause such extreme symptoms, can it?  So my question to you fine folks is: did this happen to anyone else? Have you gotten sicker after you changed your diet? Is this normal?  For arguments sake, lets assume that I did not ingest any gluten to cause these symptoms... Thank you for your help!
    • Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.
    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,687
    • Most Online
      3,093

    Newest Member
    Jessie.Cait
    Joined