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Much Happier... Sort Of!


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2 replies to this topic

#1 Sooz

 
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Posted 02 January 2013 - 01:38 AM

I initially posted here, and thanks for the help. It's now just over a week later and the random ingestion of Vegemite (that has gluten) has been replaced with a gluten-free alternative.

I am happy to report, not a single symptom since... well not like it was. It seems to me that my GI system is healing and every day I'm feeling so much better.

Unfortunately, I didn't really want to be Celiac or gluten intolerant, but it is what it is, and so far I'm coping.

It's a bit sad that it came on so strong, so suddenly, after quite a few years of niggly little problems. Maybe I've caught it early, or maybe it raised its ugly head in protest because I was eating more grain-carb than usual.

In some respects, unless I can get some genetic testing, I will probably never know if I am Celiac or just have an intolerance. I'm definitely not prepared to go through what I have since the beginning of November by eating gluten again for an extended period, just so a doctor can do a test or an endoscopy. It was a really awful time.

With all my other autoimmune stuff, I'd be prepared to bet it's Celiac rather than intolerance. Let's hope I can get some genetic testing.

Has anyone here done the same - figured out that not eating gluten makes it all better, but you can't get a diagnosis because you're not prepared to eat it again? If so, what do you say you have?
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#2 1desperateladysaved

 
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Posted 02 January 2013 - 06:55 AM

"Unfortunately, I didn't really want to be Celiac or gluten intolerant, but it is what it is, and so far I'm coping. ", says Sooz.

Yeah, most of us aren't volunteers.
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#3 mushroom

 
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Posted 02 January 2013 - 10:54 AM

If I want to get someone's attention (waiter, e.g.) I tell them I'm celiac; after all, there's no indication that I am not. Otherwise I just say I am gluten intolerant, or decline the food and don't mention it.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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