Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Accidentally Glutened
0

15 posts in this topic

Hi everyone,

I've been on a gluten free for over a year now and for the most part am doing fine...except on the rare occasion when I accidentally gluten myself.

Does anyone else get a severly itchy scalp after ingesting gluten? It is so hard for me to sleep during one of these episodes because all I want to do is brush/scratch my hair. I also feel like my sleep when I'm glutened is similar to how one sleeps when really, really drunk (passed out, weird dreams, don't feel rested, really thirsty when woken up).

Does anyone have advice for how to deal with this better? I just try to drink tons of water and pop a Zyrtec.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am one that has the scalp covered with lesions from DH. I have found that using Scalpicin will relieve the itch, pronto.

0

Share this post


Link to post
Share on other sites

Oh yes, I get the itchies if I get glutened, too.

I just wait for it to subside. I have never found that anything like Benadryl helps me.

Most people take Benadryl and pass out sleeping, but I am wide awake and feel like I am jumping

out of my skin.

Gluten agitates me, so I am more likely to have insomnia and a banging, erratic heart from it, rather than the sleepies.

If I do finally fall asleep, I am restless and have wicked nightmares. (poor hubs has been awakened by my yelling)

If I get hit with CC, I get small red blisters on my scalp, and they clear up in a few days.

0

Share this post


Link to post
Share on other sites

Well thanks for confirming that this happens to other people! I don't know anyone else on a gluten-free diet so I really appreciate the community this forum provides!

0

Share this post


Link to post
Share on other sites




Most people take Benadryl and pass out sleeping, but I am wide awake and feel like I am jumping

out of my skin.

You and me both. If I really need to stay awake, Nyquil does the trick :P

0

Share this post


Link to post
Share on other sites

You and me both. If I really need to stay awake, Nyquil does the trick :P

so, what IS IT with all that stuff? do we live in opposite world?

Things that make people all dopey and calm turn me into a nervous nelly 2 year old on candy and steroids! :lol:

0

Share this post


Link to post
Share on other sites

so, what IS IT with all that stuff? do we live in opposite world?

Things that make people all dopey and calm turn me into a nervous nelly 2 year old on candy and steroids! :lol:

What it is with that stuff is that it really does jazz up the system, so they put all these dopey-making things in it to counteract the jazz. But you and I already got so much jazz that if they jazz us up further nothing will dope us down.

0

Share this post


Link to post
Share on other sites

What it is with that stuff is that it really does jazz up the system, so they put all these dopey-making things in it to counteract the jazz. But you and I already got so much jazz that if they jazz us up further nothing will dope us down.

I actually followed that. (my doc explained it when I asked him--central nervous system yada yada yada--but your way is better).

We're JAZZY!!!!!! :lol:

0

Share this post


Link to post
Share on other sites

known phenomenon, that some women lose the ability to take benadryl as they approach 60. Gives them restless leg/agitation instead of the sedation.

0

Share this post


Link to post
Share on other sites

known phenomenon, that some women lose the ability to take benadryl as they approach 60. Gives them restless leg/agitation instead of the sedation.

Oh, this is not new for me. I started doing this in my 20's and have ALWAYS had a problem with meds that are supposed to sedate me.

I cannot take codeine or narcotic pain meds either. (which is infuriating because it would help with the pain I am in)

Especially makes recovery from surgeries "tricky" <_<

0

Share this post


Link to post
Share on other sites

I cannot take codeine or narcotic pain meds either. (which is infuriating because it would help with the pain I am in)

Dang! I can't either :blink: Were we separated at birth?

0

Share this post


Link to post
Share on other sites

Dang! I can't either :blink: Were we separated at birth?

.....starting to think so after 2 years of comparing notes.... :)

My mother and sister--are the same way.

0

Share this post


Link to post
Share on other sites

.....starting to think so after 2 years of comparing notes.... :)

My mother and sister--are the same way.

Not mine - my sister was hooked on codeine (you can get it OTC here, as in Panadeine, but I think they are making you sign for it now)

0

Share this post


Link to post
Share on other sites

Gluten agitates me, so I am more likely to have insomnia and a banging, erratic heart from it, rather than the sleepies.

I was having a banging erratic heart beat for a little while and had no idea what that was!!! It didnt hurt or anything but it scared me as I was laying down to go to sleep and would feel this bounding heart beat about every minute or so!! I spoke to my doc and he didnt seem too concerned but it ironically stopped after I cut out all processed foods again last week and became real strict. (Hurricane Sandy here in NJ royally messed up my Primal diet when the lack of electricity for over a week wiped out all of my whole foods) Hmmm never put two and two together before on this one!! Thanks for mentioning it!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,357
  • Topics

  • Posts

    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,134
    • Most Online
      1,763

    Newest Member
    Alinapep
    Joined