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Feeling Great But Can't Eat!
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Since I was diagnosed in October, I've been doing really well on this diet. In the beginning, I was still feeling terrible and thought I was doing something wrong but then I did more research and saw that you won't feel better overnight so I held out hope. I started getting better at reading labels and knowing what to look for and realized that I wasn't eating some of the right stuff. So October and November were still very iffy for me. That darn nausea just wouldn't leave me alone! But finally and happily during the last couple of weeks of December, I felt so much better. No sharp stomach pains and no extreme nausea. It has been glorious to not feel like dying everyday again. I'm finally healing and it's amazing. I got thrown a curveball though the week before Christmas. I had almost a full week of no nausea and then got a stomach bug so that was no fun at all haha. Once that went away, I went back to feeling just fine. I still do! I'm so happy at the way I feel. And since being on this diet and not being able to eat all the fast food and junk i used to eat, I've lost 13 pounds. I can finally live my life again without pain all the time. It's amazing. But one thing has been happening lately ever since I started feeling better and not feeling sick anymore. I get full so quick. Way too quick. I eat a couple of bites of something and get so full that I feel like I ate a five course meal. Like yesterday, I ate a small bowlfull of Tostitos (my fave go-to snack lately) in the afternoon. It was the first thing I ate yesterday. It filled me up for the rest of the night. We had cheesburgers for dinner and mac n cheese (mine obvioulsy with gluten free pasta) and I couldn't even eat it. I was still so full hours later from the chips that I took two bites of the macaroni and ate only half of one of the cheeseburgers when we each could have three and was ready to burst i felt so full. Is this normal when you start feeling better? Is it normal at all? I know I heard that usually when you go on this diet you actually start to feel really hungry but it seems I'm in the other direction. I feel like I'm barely eating everyday because any little thing I eat fills me up for the rest of the day. And after all that, I woke up today still feeling full from yesterday. I'm forcing some food into me right now because I have to eat obviously but I don't really want it. Just wondering if anyone has any insight to this. Thanks!! And happy new year!

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My celiac symptoms included bloating, although I would still cram food in there and feel hungry despite my bloated stomach :-p

You may feel better being lactose free. Bloating is a sign of lactose intolerance which you've probably heard a million times by now, is standard problem for celiacs.

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Those are very calorie dense foods... Do you feel the same if you have a bit of salad or some carrots?

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I'm not bloated, I just have that feeling as if I ate a lot when I only ate a small amount of chips. It's the full feeling on the inside without the bloat. It's just weird that a small amount of chips could fill me up so quick and last so long. It's like that with anything I eat lately. The first thing I eat that day no matter what it is, it intantly fills me up for the rest of the day. Like I said, those Tostitos filled me up so much I couldn't even eat the cheeseburger or the mac n cheese. I had to force small bites down. It's been going on for the last couple of weeks maybe.

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I find that I get full much much faster than before I was gluten-free. I usually only eat off salad plates because I get enough from that... I'm going with it since I ate too much before. ;)

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Have you tried taking digestive enzymes? It might be able to help you break down the food more...

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
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