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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Great But Can't Eat!
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6 posts in this topic

Since I was diagnosed in October, I've been doing really well on this diet. In the beginning, I was still feeling terrible and thought I was doing something wrong but then I did more research and saw that you won't feel better overnight so I held out hope. I started getting better at reading labels and knowing what to look for and realized that I wasn't eating some of the right stuff. So October and November were still very iffy for me. That darn nausea just wouldn't leave me alone! But finally and happily during the last couple of weeks of December, I felt so much better. No sharp stomach pains and no extreme nausea. It has been glorious to not feel like dying everyday again. I'm finally healing and it's amazing. I got thrown a curveball though the week before Christmas. I had almost a full week of no nausea and then got a stomach bug so that was no fun at all haha. Once that went away, I went back to feeling just fine. I still do! I'm so happy at the way I feel. And since being on this diet and not being able to eat all the fast food and junk i used to eat, I've lost 13 pounds. I can finally live my life again without pain all the time. It's amazing. But one thing has been happening lately ever since I started feeling better and not feeling sick anymore. I get full so quick. Way too quick. I eat a couple of bites of something and get so full that I feel like I ate a five course meal. Like yesterday, I ate a small bowlfull of Tostitos (my fave go-to snack lately) in the afternoon. It was the first thing I ate yesterday. It filled me up for the rest of the night. We had cheesburgers for dinner and mac n cheese (mine obvioulsy with gluten free pasta) and I couldn't even eat it. I was still so full hours later from the chips that I took two bites of the macaroni and ate only half of one of the cheeseburgers when we each could have three and was ready to burst i felt so full. Is this normal when you start feeling better? Is it normal at all? I know I heard that usually when you go on this diet you actually start to feel really hungry but it seems I'm in the other direction. I feel like I'm barely eating everyday because any little thing I eat fills me up for the rest of the day. And after all that, I woke up today still feeling full from yesterday. I'm forcing some food into me right now because I have to eat obviously but I don't really want it. Just wondering if anyone has any insight to this. Thanks!! And happy new year!

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My celiac symptoms included bloating, although I would still cram food in there and feel hungry despite my bloated stomach :-p

You may feel better being lactose free. Bloating is a sign of lactose intolerance which you've probably heard a million times by now, is standard problem for celiacs.

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Those are very calorie dense foods... Do you feel the same if you have a bit of salad or some carrots?

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I'm not bloated, I just have that feeling as if I ate a lot when I only ate a small amount of chips. It's the full feeling on the inside without the bloat. It's just weird that a small amount of chips could fill me up so quick and last so long. It's like that with anything I eat lately. The first thing I eat that day no matter what it is, it intantly fills me up for the rest of the day. Like I said, those Tostitos filled me up so much I couldn't even eat the cheeseburger or the mac n cheese. I had to force small bites down. It's been going on for the last couple of weeks maybe.

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I find that I get full much much faster than before I was gluten-free. I usually only eat off salad plates because I get enough from that... I'm going with it since I ate too much before. ;)

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Have you tried taking digestive enzymes? It might be able to help you break down the food more...

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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