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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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27 posts in this topic

That 'special thing' for me is butterflies- there's a fantastic butterfly conservatory an hour

and a half from me, and when I get really bad from all the stress in my life I go spend a day

there. It's also really nice in the winter because it's 85 and humid in there for the butter

flies, so it's a nice break from the winter weather!

Butterflies are cool too. I don't see many wild ones in the city here in Utah, but I always notice them if they're around. There is something special about them, you just have to stop and watch them for a moment before carrying on with your day. I've never been to a conservatory but I'll bet it is just wonderful.

Swimming with dolphins again is on my list too .... they do it at sea world here, but I prefer them in the ocean -- on a very lucky day they come to play with you in our waves.

One helped me find the surface when I was trapped in "the washing machine" of big surf while body surfing as a young teen and once a small family played around me while kayaking --- me heat weirdness has kept me off the beach for the last ten or so summers - but I'll be back at some point.

Wild animals are far cooler. I want to pet a wild giraffe, but Giraffe Manor is extremely expensive by itself, not to mention the trip to Africa or trying to be gluten-free at a B&B in the middle of nowhere. I will go one day, mark my words, I will go. And I will pet a wild giraffe out my bedroom window as I wake up, and as I eat breakfast. Any other attempt at wild giraffes outside that manor would probably lead to being kicked in the face and being mildly dead... after all they can kill lions. I'm obsessed, not stupid. (Not usually.... okay okay... not always.)

I always giggle a little at your "heat weirdness." I'm not laughing at you, just the way you put it. I don't do well in the heat, and I say it just like that. "Do you want to go to the Festival of Color down at the temple?" "Sorry, I don't do well in the heat." One day... one day I'll make it down there. They have llamas! Also, by the time you are showing up 2-3 hours early you have a several mile hike, that is how many people go.

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My "heat weirdness" includes anaphalaxis and hives and swelling up like "violet" it is quite strange for others around me when it happens.

I got rewarded for telling my dolphin stories this morning - son and I got to see a pair frolicking in the surf near the cabrillo tidepools :D

That trip to Africa sounds like another great birthday plan to me!

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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