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Some Things Are Worth Waiting For

27 posts in this topic

That 'special thing' for me is butterflies- there's a fantastic butterfly conservatory an hour

and a half from me, and when I get really bad from all the stress in my life I go spend a day

there. It's also really nice in the winter because it's 85 and humid in there for the butter

flies, so it's a nice break from the winter weather!

Butterflies are cool too. I don't see many wild ones in the city here in Utah, but I always notice them if they're around. There is something special about them, you just have to stop and watch them for a moment before carrying on with your day. I've never been to a conservatory but I'll bet it is just wonderful.

Swimming with dolphins again is on my list too .... they do it at sea world here, but I prefer them in the ocean -- on a very lucky day they come to play with you in our waves.

One helped me find the surface when I was trapped in "the washing machine" of big surf while body surfing as a young teen and once a small family played around me while kayaking --- me heat weirdness has kept me off the beach for the last ten or so summers - but I'll be back at some point.

Wild animals are far cooler. I want to pet a wild giraffe, but Giraffe Manor is extremely expensive by itself, not to mention the trip to Africa or trying to be gluten-free at a B&B in the middle of nowhere. I will go one day, mark my words, I will go. And I will pet a wild giraffe out my bedroom window as I wake up, and as I eat breakfast. Any other attempt at wild giraffes outside that manor would probably lead to being kicked in the face and being mildly dead... after all they can kill lions. I'm obsessed, not stupid. (Not usually.... okay okay... not always.)

I always giggle a little at your "heat weirdness." I'm not laughing at you, just the way you put it. I don't do well in the heat, and I say it just like that. "Do you want to go to the Festival of Color down at the temple?" "Sorry, I don't do well in the heat." One day... one day I'll make it down there. They have llamas! Also, by the time you are showing up 2-3 hours early you have a several mile hike, that is how many people go.


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My "heat weirdness" includes anaphalaxis and hives and swelling up like "violet" it is quite strange for others around me when it happens.

I got rewarded for telling my dolphin stories this morning - son and I got to see a pair frolicking in the surf near the cabrillo tidepools :D

That trip to Africa sounds like another great birthday plan to me!


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    • Hi AWOL, Since you weren't able to complete the 2 weeks gluten challenge for the endoscopy the results are not necessarily reliable.   So to be err on the side of caution I think you should assume you have celiac disease.  Your doctor should not assume you don't have it either since the challenge was not completed.  He has no proof that you don't have celiac disease.  He does have evidence that you have negative reactions to eating gluten though.
    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
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