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Some Things Are Worth Waiting For

27 posts in this topic

That 'special thing' for me is butterflies- there's a fantastic butterfly conservatory an hour

and a half from me, and when I get really bad from all the stress in my life I go spend a day

there. It's also really nice in the winter because it's 85 and humid in there for the butter

flies, so it's a nice break from the winter weather!

Butterflies are cool too. I don't see many wild ones in the city here in Utah, but I always notice them if they're around. There is something special about them, you just have to stop and watch them for a moment before carrying on with your day. I've never been to a conservatory but I'll bet it is just wonderful.

Swimming with dolphins again is on my list too .... they do it at sea world here, but I prefer them in the ocean -- on a very lucky day they come to play with you in our waves.

One helped me find the surface when I was trapped in "the washing machine" of big surf while body surfing as a young teen and once a small family played around me while kayaking --- me heat weirdness has kept me off the beach for the last ten or so summers - but I'll be back at some point.

Wild animals are far cooler. I want to pet a wild giraffe, but Giraffe Manor is extremely expensive by itself, not to mention the trip to Africa or trying to be gluten-free at a B&B in the middle of nowhere. I will go one day, mark my words, I will go. And I will pet a wild giraffe out my bedroom window as I wake up, and as I eat breakfast. Any other attempt at wild giraffes outside that manor would probably lead to being kicked in the face and being mildly dead... after all they can kill lions. I'm obsessed, not stupid. (Not usually.... okay okay... not always.)

I always giggle a little at your "heat weirdness." I'm not laughing at you, just the way you put it. I don't do well in the heat, and I say it just like that. "Do you want to go to the Festival of Color down at the temple?" "Sorry, I don't do well in the heat." One day... one day I'll make it down there. They have llamas! Also, by the time you are showing up 2-3 hours early you have a several mile hike, that is how many people go.


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My "heat weirdness" includes anaphalaxis and hives and swelling up like "violet" it is quite strange for others around me when it happens.

I got rewarded for telling my dolphin stories this morning - son and I got to see a pair frolicking in the surf near the cabrillo tidepools :D

That trip to Africa sounds like another great birthday plan to me!


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    • Thanks for pointing that out. I just learned about things that are cross reactive with gluten--that have a similar protein structure and the body reacts as if it is a gluten protein: the list of cross reactors includes: Eggs, coffee most other grains corn, potato, rice, yeast, chocolate coffee, corn, butter soy, eggplant, bell pepper and chili pepper and tomatoes. Son of a !!!! This explains a lot. I would be faithfully gluten-free and still have DH flare ups when I certain things. So I just ate sprouted rice with beans, fruit and oolong tea--and I was fine. Then last week I tried this weight loss coffee called SlimRoast which worked UNBELIVABLE (LOST 3 POUNDS IN 2 DAYS) I was eating potato soup with lots of chili paste and soon I noticed I was depressed, I couldn't focus and began to feel that crawling flesh thing I get when I know I have been glutened.  I did more research on how I could love my body and read about glutamine: "Glutamine is also a critical part of our digestive system. It is the primary nutrient for the cells of the intestinal lining where it helps regulate cellular reproduction. Through this mechanism, glutamine helps prevent and rebuild a leaky gut which is common in people with inflammatory and auto-immune conditions. For this reason glutamine supplementation has been shown to be very effective in individuals with ulcerative colitis, CELIAC DISEASE, Crohn's disease, & irritable bowel syndrome." So now have removed everything but the sprouted rice, back on fruit and beans and have added those things that are high in glutamine. Since I eat plant based I can't get glutamine from meat so lots of raw spinach beets parsley cabbage celery kale brussel sprouts and especially red cabbage --in salads and smoothies. So hopefully I am on the mend--miss my weight loss coffee but its not worth getting sick over.     
    • I got the link fine but if I recall correctly I am a member of Medscape - I believe I just plain signed up for it - I know there isn't any fee for anything I sign up for otherwise I think very long and very hard whether it's going to be worth my money or not.
    • For those of you who get this, how long did it last? I am going on 3 months now, glutening 2 months ago.  Popping zofran in the morning and I feel pretty dizzy and queasy the first half of the day. No, I am not pregnant. I also get flu like aches and accelerated heart rate after eating. 
    • That's how he makes his money... of course you will not get them to agree that the tests are bogus! Same with all these " miracle" supplements that claim to " digest" gluten.  If you call them, , of course they are going to say they work! "We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support. Enterolab has never successfully published anything on the accuracy of stool tests (nor have any other stool test manufacturers, to our knowledge) making it difficult to confirm the research results. Because of this, we must make our decisions based on what hasbeen published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease. We can say therefore with confidence that the test currently being used by these labs is not good enough. In fact, while it is true that about 40% of people with proven gluten sensitivity have elevated AGA-IgG, it is also true that about 15-25% of the healthy individuals who have absolutely nothing wrong also have elevated AGA-IgG. Hence, about 60% of gluten sensitive people do not have elevated AGA-IgG (making the test not sensitive enough); and about 20% of normal, non-gluten sensitive people have elevated AGA-IgG for no apparent reason (making the test not specific enough)."    
    • Hi Gemini, My birthday is in June, so I'm a Gemini too---and I do agree with some of your good points.  I had written that one could EITHER try Dr. Fine's stool sample testing, where his EnteroLab looks for elevated numbers of IgA antibodies to various food proteins (gluten, milk proteins, soy proteins, yeast proteins, etc.), OR one could just avoid eating or drinking or touching suspect food proteins, for at least a month (3 months is better), and see whether AVOIDING eating and touching such proteins causes improvement or not, in one's symptoms and lab test results. I urge you (and anyone else who wonders about this) to speak by phone, with people working at Dr. Fine's EnteroLab,  and state your objections to them, and see what their replies might be. Here's their phone number: 972-686-6869. I called Dr. Fine's Enterolab, and the folks I spoke with there, were nice enough to reply to any questions that I had, including one lady (I believe she was a nurse) there telling me about the "IgA deficiency" blood test called "total secretory IgA", which one can do first, to see whether it pays to try EnteroLab's stool sample testing! From what I understand, Dr. Fine doesn't try to distinguish between Celiac and non-Celiac forms of gluten "sensitivity". This is because although Celiac Disease is VERY serious, it is the "tip of the gluten-sensitive iceberg", meaning, that higher percentages of gluten-sensitive folks are NON-Celiac gluten-sensitive folks, who can also have major health problems, but the non-Celiac folks have "villi" that are sub-microscopically damaged, and thus, this sub-microscopic villi damage cannot be seen under the microscope--but it's there! And, Dr. Fine's point, is that in both Celiac and non-Celiac types of gluten sensitivity, the cure is the same: AVOID GLUTEN! Dr. Fine doesn't use the term "gluten intolerance", because newer uses of the word "intolerance" refers to NON-PROTEIN intolerances, such as "lactose/milk sugar intolerance" (lactose/milk sugar is a carbohydrate, not a protein), and intolerances are not related to one's immune system, while gluten "sensitivity" and other "sensitivities" ARE related to one's immune system, with ingestion (eating or drinking the offending proteins) causing one's immune system to cause the production of antibodies to those proteins that one is "sensitive" to. Many years ago, a friend of my husband, went to a local doc who told my husband's friend to try avoiding gluten. My husband's friend, without being biopsied, went off gluten, and has become well, ever since that day long ago. Some years ago, both my husband and I did Dr. Fine's "EnteroLab" stool sample testing, for gluten sensitivity. My husband came out positive, and I came out negative. My husband has avoided gluten, ever since then, and I try to do so also, to avoid tempting him to cheat, and he has avoided getting colds, etc., the way he used to, before he stopped eating glutenous foods. And, there is much disagreement (I know, because I'm a retired nurse, and I've been a patient now and then) between doctors, about gluten sensitivity, and about anything medical. So, I've learned to be wary of the terms "valid medical institutions" and "valid medical professionals". What may seem valid today, might be disproved tomorrow, and what might not seem valid today, may be shown to be valid tomorrow. Medicine is always in flux, thankfully. If not, medicine would be "dogma". If you call and speak with Dr. Kenneth Fine (M.D., gastroenterologist, "sensitive" to many food proteins himself, including gluten, but not "Celiac") &/or to the folks working at his Enterolab, please let us know what their replies are, to your objections to his lab's work. In the meantime, let's both try to keep an open mind. Sincerely, Carol Sidofsky (wife of gluten-sensitive non-Celiac hubby, and I'm a retired RN/nurse)
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