Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed - Dizzy - 7
0

7 posts in this topic

Hi celiac community - I am newly diagnosed with Celiac and I've been gluten free for 7 weeks. The diarrhea has stopped - thank God. But since the sudden onset of my symptoms - before and after going gluten free I have been dealing with dizziness that seems brought on by eating. I am following leaky gut protocol for diet so am eating entirely different than ever before. No corn, soy, or any of my found allergens. Sometimes the dizziness starts when I'm eating. Sometimes it doesn't go away for 2-3 hours. Sometimes my eyes go blurry as well. My holistic dr just says this is the celiac/leaky gut affecting me neurologically and that this will go away as my intestines heal.

Just want to hear if other celiacs have this symptom and how it resolved for you. Tired of being dizzy...

Edited by Rose74
0

Share this post


Link to post
Share on other sites


Ads by Google:

Also, went through fasted glucose testing and multiple examinations of my low blood pressure (the sitting to standing tests) to see if that was causing the dizziness...none of it showed as the cause.

Edited by Rose74
0

Share this post


Link to post
Share on other sites

For me, this is a sign of malabsorbtion, which I think it just a temporary thing (as in a few months to a few years) related to leaky gut. I was having reactions to all kinds of foods I had thought were safe, that I had eaten for years -- simple things like eggs, which I'm not at all allergic to. Turns out that leaky gut leads to some malabsorbtion that won't show up as an allergy, and not everyone has the same problems with the same foods.

Are you keeping a food diary? Try seeing if you can ID the foods that cause this. At first it may seem like everything does, but I isolated out five food initially that didn't, and then slowly kept trying to add in new ones and now I have just over a dozen I can eat without dizziness (I'm starting my second month gluten-free). I found some studies on PubMed that suggest your leaky gut will improve a little within two months, then will be even better in a year. It may take a lot longer to heal completely.

If you go to an MD, they can also test you further issues you may be having. It's normal for your system to be a little off right now, so you may want some bloodwork/stool testing done for things like H Pylori (which causes ulcers), vitamin/mineral deficiencies (anemia esp., given your dizziness), and a whole host of other things.

0

Share this post


Link to post
Share on other sites

Welcome Rose74,

I am sorry you have suffured, but I am glad your on the trek to recover. I suffer very little dizziness, but I did have alot of brain fog and fatigue that was sort of like dizzy. I have done many things and have not had the problem since my last virus.

Diana

0

Share this post


Link to post
Share on other sites

For me, this is a sign of malabsorbtion, which I think it just a temporary thing (as in a few months to a few years) related to leaky gut. I was having reactions to all kinds of foods I had thought were safe, that I had eaten for years -- simple things like eggs, which I'm not at all allergic to. Turns out that leaky gut leads to some malabsorbtion that won't show up as an allergy, and not everyone has the same problems with the same foods.

Are you keeping a food diary? Try seeing if you can ID the foods that cause this. At first it may seem like everything does, but I isolated out five food initially that didn't, and then slowly kept trying to add in new ones and now I have just over a dozen I can eat without dizziness (I'm starting my second month gluten-free). I found some studies on PubMed that suggest your leaky gut will improve a little within two months, then will be even better in a year. It may take a lot longer to heal completely.

If you go to an MD, they can also test you further issues you may be having. It's normal for your system to be a little off right now, so you may want some bloodwork/stool testing done for things like H Pylori (which causes ulcers), vitamin/mineral deficiencies (anemia esp., given your dizziness), and a whole host of other things.

Hi Chaff - Thank you! I didn't know that the malabsorption could not show up as an allergy. That helps me look at it differently. I am on a rotation diet (trying at least) because the last food allergy testing I had showed that my mass consumption of rice over the last months ended up in my body creating higher levels of antibodies to rice than wheat! I am writing a food journal and I will try to take more note of which foods seem to cause the greatest dizziness. I did have bloodwork/stool testing done through these last months and I am grateful to say that my most recent bloodwork showed that my low magnesium and vitamin D levels actually went up into normal range. So it means I am absorbing something now which is beautiful to me! And H Pylori came back negative. I will check out the PubMed stuff on leaky gut you referenced - thank you!

0

Share this post


Link to post
Share on other sites




Welcome Rose74,

I am sorry you have suffured, but I am glad your on the trek to recover. I suffer very little dizziness, but I did have alot of brain fog and fatigue that was sort of like dizzy. I have done many things and have not had the problem since my last virus.

Diana

I have had plenty of brain fog and fatigue as well these last months. As soon as I have my first meal of the day I can't think as clearly - the dizziness and brain fog go hand in hand. I am sorry you have suffered as well!

0

Share this post


Link to post
Share on other sites

Hi!

If you like, check my old posts. I have same thing as you. Soon I will eat something in the morning, I will have brain fog, I can't think clearly, I'm dizzy, etc. I saw many doctors, had many tests and extensive blood works with negative results. Doctors excluded everything and were puzzled by my symptoms. Then I saw one doctor at Columbia University Hospital in New York and he told me that I have autonomic dysfunction after virus infection, or pneumonia that I had 2,5 years ago. Only test that showed something wrong was Tilt table test for 50 minutes, not short version and valsava test for parasympathetic nervous system. I'm not telling that you have it, but if you do, my advice might save you time and money.

http://www.celiac.com/gluten-free/topic/89447-hm-any-advise/

http://www.celiac.com/gluten-free/topic/87219-pots/

You might have Postprandial hypotension (I have that too with POTS). Make one test: Measure your blood pressure before meal, then 5 minutes after, then 10 minutes, 15, 30. If you see your blood pressure go down 15-20 points, you have it. Later your blood pressure will go back up to normal. My neurologist explained to me that my stomach would take too much blood for digestion of food, I wouldn't have enough for circulation to my brain (dizziness), my hearth would start pumping hard (I can feel it beating fast) to resolve blood shortage, but my brain things that I'm in distress, so instead elevating blood pressure, it will lower it (which makes me more dizzy, weak). This is autonomic dysfunction in my case. You can have different types of autonomic dysfunction.

My symptoms were very mild at the beginning, but with more time I developed very strong reactions to food. I had symptoms first. I thought that I had something wrong with my stomach, so I saw gastroenterologists to find out what was wrong. Everything was "perfect", accept I found out I might have beginning of celiac disease and I'm gluten free all this time.

Maybe this is too much information for you, and you can have just problem with malabsorption, or hypoglycemia, or maybe dumping syndrome - your food will travel very quickly from stomach to intestines, or you can be just dehydrated which can have similar symptoms.

I hope that you will get better soon and you will find out what is wrong quickly.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,608
    • Total Posts
      918,334
  • Topics

  • Posts

    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
    • Recovery diet, nutrition, leaky gut?
      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
    • Celiac.com: Celiac Patients Could Get Gluten-free Stipend
      Celiac disease is a sensitivity to the gluten found in wheat, barley, rye, spelt and oats that causes an autoimmune response in which the body attacks ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,707
    • Most Online
      1,763

    Newest Member
    Ree8080
    Joined