Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newly Diagnosed - Dizzy - 7
0

7 posts in this topic

Hi celiac community - I am newly diagnosed with Celiac and I've been gluten free for 7 weeks. The diarrhea has stopped - thank God. But since the sudden onset of my symptoms - before and after going gluten free I have been dealing with dizziness that seems brought on by eating. I am following leaky gut protocol for diet so am eating entirely different than ever before. No corn, soy, or any of my found allergens. Sometimes the dizziness starts when I'm eating. Sometimes it doesn't go away for 2-3 hours. Sometimes my eyes go blurry as well. My holistic dr just says this is the celiac/leaky gut affecting me neurologically and that this will go away as my intestines heal.

Just want to hear if other celiacs have this symptom and how it resolved for you. Tired of being dizzy...

Edited by Rose74
0

Share this post


Link to post
Share on other sites


Ads by Google:

Also, went through fasted glucose testing and multiple examinations of my low blood pressure (the sitting to standing tests) to see if that was causing the dizziness...none of it showed as the cause.

Edited by Rose74
0

Share this post


Link to post
Share on other sites

For me, this is a sign of malabsorbtion, which I think it just a temporary thing (as in a few months to a few years) related to leaky gut. I was having reactions to all kinds of foods I had thought were safe, that I had eaten for years -- simple things like eggs, which I'm not at all allergic to. Turns out that leaky gut leads to some malabsorbtion that won't show up as an allergy, and not everyone has the same problems with the same foods.

Are you keeping a food diary? Try seeing if you can ID the foods that cause this. At first it may seem like everything does, but I isolated out five food initially that didn't, and then slowly kept trying to add in new ones and now I have just over a dozen I can eat without dizziness (I'm starting my second month gluten-free). I found some studies on PubMed that suggest your leaky gut will improve a little within two months, then will be even better in a year. It may take a lot longer to heal completely.

If you go to an MD, they can also test you further issues you may be having. It's normal for your system to be a little off right now, so you may want some bloodwork/stool testing done for things like H Pylori (which causes ulcers), vitamin/mineral deficiencies (anemia esp., given your dizziness), and a whole host of other things.

0

Share this post


Link to post
Share on other sites

Welcome Rose74,

I am sorry you have suffured, but I am glad your on the trek to recover. I suffer very little dizziness, but I did have alot of brain fog and fatigue that was sort of like dizzy. I have done many things and have not had the problem since my last virus.

Diana

0

Share this post


Link to post
Share on other sites

For me, this is a sign of malabsorbtion, which I think it just a temporary thing (as in a few months to a few years) related to leaky gut. I was having reactions to all kinds of foods I had thought were safe, that I had eaten for years -- simple things like eggs, which I'm not at all allergic to. Turns out that leaky gut leads to some malabsorbtion that won't show up as an allergy, and not everyone has the same problems with the same foods.

Are you keeping a food diary? Try seeing if you can ID the foods that cause this. At first it may seem like everything does, but I isolated out five food initially that didn't, and then slowly kept trying to add in new ones and now I have just over a dozen I can eat without dizziness (I'm starting my second month gluten-free). I found some studies on PubMed that suggest your leaky gut will improve a little within two months, then will be even better in a year. It may take a lot longer to heal completely.

If you go to an MD, they can also test you further issues you may be having. It's normal for your system to be a little off right now, so you may want some bloodwork/stool testing done for things like H Pylori (which causes ulcers), vitamin/mineral deficiencies (anemia esp., given your dizziness), and a whole host of other things.

Hi Chaff - Thank you! I didn't know that the malabsorption could not show up as an allergy. That helps me look at it differently. I am on a rotation diet (trying at least) because the last food allergy testing I had showed that my mass consumption of rice over the last months ended up in my body creating higher levels of antibodies to rice than wheat! I am writing a food journal and I will try to take more note of which foods seem to cause the greatest dizziness. I did have bloodwork/stool testing done through these last months and I am grateful to say that my most recent bloodwork showed that my low magnesium and vitamin D levels actually went up into normal range. So it means I am absorbing something now which is beautiful to me! And H Pylori came back negative. I will check out the PubMed stuff on leaky gut you referenced - thank you!

0

Share this post


Link to post
Share on other sites




Welcome Rose74,

I am sorry you have suffured, but I am glad your on the trek to recover. I suffer very little dizziness, but I did have alot of brain fog and fatigue that was sort of like dizzy. I have done many things and have not had the problem since my last virus.

Diana

I have had plenty of brain fog and fatigue as well these last months. As soon as I have my first meal of the day I can't think as clearly - the dizziness and brain fog go hand in hand. I am sorry you have suffered as well!

0

Share this post


Link to post
Share on other sites

Hi!

If you like, check my old posts. I have same thing as you. Soon I will eat something in the morning, I will have brain fog, I can't think clearly, I'm dizzy, etc. I saw many doctors, had many tests and extensive blood works with negative results. Doctors excluded everything and were puzzled by my symptoms. Then I saw one doctor at Columbia University Hospital in New York and he told me that I have autonomic dysfunction after virus infection, or pneumonia that I had 2,5 years ago. Only test that showed something wrong was Tilt table test for 50 minutes, not short version and valsava test for parasympathetic nervous system. I'm not telling that you have it, but if you do, my advice might save you time and money.

http://www.celiac.com/gluten-free/topic/89447-hm-any-advise/

http://www.celiac.com/gluten-free/topic/87219-pots/

You might have Postprandial hypotension (I have that too with POTS). Make one test: Measure your blood pressure before meal, then 5 minutes after, then 10 minutes, 15, 30. If you see your blood pressure go down 15-20 points, you have it. Later your blood pressure will go back up to normal. My neurologist explained to me that my stomach would take too much blood for digestion of food, I wouldn't have enough for circulation to my brain (dizziness), my hearth would start pumping hard (I can feel it beating fast) to resolve blood shortage, but my brain things that I'm in distress, so instead elevating blood pressure, it will lower it (which makes me more dizzy, weak). This is autonomic dysfunction in my case. You can have different types of autonomic dysfunction.

My symptoms were very mild at the beginning, but with more time I developed very strong reactions to food. I had symptoms first. I thought that I had something wrong with my stomach, so I saw gastroenterologists to find out what was wrong. Everything was "perfect", accept I found out I might have beginning of celiac disease and I'm gluten free all this time.

Maybe this is too much information for you, and you can have just problem with malabsorption, or hypoglycemia, or maybe dumping syndrome - your food will travel very quickly from stomach to intestines, or you can be just dehydrated which can have similar symptoms.

I hope that you will get better soon and you will find out what is wrong quickly.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,678
    • Total Posts
      921,703
  • Topics

  • Posts

    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
    • I also think that the HPV/Gardasil vaccine triggered something in my body. I had some Celiac symptoms many years before this vaccine but I felt ok. I was physically very active. However, after I received the third dose as well, I began having more problems including a more persistant pain, overall body weakness, lack of concentration, hair loss, etc.
    • OK so been to the doctor, they've sped up my referral and I should get the appointment booking form in the post shortly. They've said stay off the gluten until I have a date for the appointment then in the weeks leading up to it go back on - thoughts? Did my bit of sport last night which was a great relief to be free of any illness-related thoughts for an hour or two; didn't think I'd have the energy at the start but soon got going and was OK so that's a plus I seem to be getting some strange symptoms at the moment that have only happened since trying to remove gluten, do these sound familiar to anyone? dry forehead, just starting to go red \ itchy in places. Treating with E45-type cream tender scalp and sides of head, almost like a pulling feeling and a bit sensitive to touch. Scared this one matches the symptoms of GCA, a particularly nasty autoimmune disease that can lead to blindness 
      Edit: having said that just found this thread and funny enough did wash my hair this morning...
      http://www.celiac.com/gluten-free/topic/50920-sores-on-scalp/ one eye watering and associated fuzzy vision at times, trying to reassure myself it isn't blurred vision due to the point above sometimes bit of a lump in throat sensation, seems to come and go Been reading that some people can't handle rice - I was OK with it whilst eating gluten but have been having it for lunch each day and seem to get worse around 4-5pm so could that be a culprit? How long after coming off gluten would I be able to say I'm at a baseline to know if feeling ill is down to "glutening" vs. blaming it on the body adjusting to the change in (lack of) gluten in food?
    • First of all, welcome to the forum! it's good to have you here. Secondly, I can really relate to the fatigue portion.  it really hadn't affected me until everything hit the ceiling medically for me.  I was constantly tired all the time, and waking feeling rested in the morning. Prone to depression and anxiety, definitely.  It drove me nuts for those first few weeks.  That's when I decided to try going off the gluten to see what happened.  I still dealt with the depression, anxiety at crazy levels, and inability to focus/concentrate, but it had gotten progressively better.  The anxiety got so bad I would have panic attacks in public areas which only ramped up the anxiety because people saw what was happening.  I would encourage you and your doctor to do a full Celiac panel before you decide to try the gluten free diet.  I had my blood work done after I was off gluten for about two months or so.  Thankfully, my levels were still high to register at least a gluten sensitivity.  Since going off gluten for almost a year now, things have started to finally appear "normal".  Whatever normal means for me now.  As I am healing from the 30 years of glutenizing, I combined both natural methods with the medical methods.  If you are interested in the different avenues of natural methods, I would be willing to share with you.  I will be praying for you as you go through this journey. Let me assure you, you are not alone in this journey.  Depending on family dynamics, they can be a great source of support.  This forum is also a great place to bounce thoughts or concerns off of.  Good luck.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,676
    • Most Online
      3,093

    Newest Member
    Waseemshahid
    Joined