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Preparing For Testing. Need Advice On Diet & Self-Care


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4 replies to this topic

#1

 
CaliSparrow

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Posted 06 January 2013 - 12:23 PM

Hey folks,

This gluten-free journey started for me in October and it's been quite the roller coaster ride. I am going to see a gastroenterologist who specializes in Celiac on 1/15. I believe it would be prudent to genetic test first since Celiac can be ruled out with the genetic test and then I could consider it a wheat intolerance. Any advice there?

Also, I've been eating gluten for a week now. It's tough to go through. Any advice on how much gluten I need to eat? My appetite is suffering.

I'd love to know your different applications for self-care as well. My body is hurting pretty good.

Any advice you all can give would be most appreciative. There are plenty of people who are telling me there's no need to go through with it. I need to hear from the other side.

Thanks, Cali
  • 0
Healing little by little. Functional Medicine is helping.
2015: Celiac dx, sleep apnea, chronic dehydration/malabsorption. Receiving Vit D treatment +iron, IV nutrient therapy, CPAP
Year 2: Mental clarity improving (and year 3 still improving!)
October 2013-14: low heart rate, low BP, arrhythmia = better! '15
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope
2006-2012: Multiple unexplained illnesses; 2009: anemic; iron infusions
2005: undx celiac crisis, 2 months of hell & never to return to normal

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#2

 
CaliSparrow

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Posted 06 January 2013 - 02:21 PM

NEVERMIND.

My husband just threw a fit about me being on gluten because he sees such a difference. He thinks there are more pitfalls in seeking answers through the medical community than in being resolute about staying gluten-free and watching my health improve despite the doctors.

Today begins my first day back on the gluten-free journey. I am looking forward to not wanting to hang myself.

Officially self-confirmed celiac.
  • 0
Healing little by little. Functional Medicine is helping.
2015: Celiac dx, sleep apnea, chronic dehydration/malabsorption. Receiving Vit D treatment +iron, IV nutrient therapy, CPAP
Year 2: Mental clarity improving (and year 3 still improving!)
October 2013-14: low heart rate, low BP, arrhythmia = better! '15
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope
2006-2012: Multiple unexplained illnesses; 2009: anemic; iron infusions
2005: undx celiac crisis, 2 months of hell & never to return to normal

#3

 
nvsmom

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Posted 06 January 2013 - 05:23 PM

Hope you continue to improve on the gluten-free diet... and welcome to the club.
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"Acceptance is the key to happiness."

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Celiac - June, 2012
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#4

 
mushroom

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Posted 06 January 2013 - 06:15 PM

A genetic test can't really rule celiac out since there are other genes associated with celiac than the two commonly accepted genes; and it certainly cannot rule it in, so will do nothing to resolve the issue. I think your husband is probably right' You can mess around with doctors forever but if you are improving gluten free enough for him to notice it would seem you are on the right track. In the end, only you can decide whether a formal diagnosis is necesary for you, though and whether you are prepared to go through what it takes to get it. :)
  • 0
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#5

 
CaliSparrow

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Posted 07 January 2013 - 08:28 AM

It baffles me that before 1960, doctors diagnosed celiac by eliminating gluten from someone's diet, reintroducing it and noting a reaction. Now, everyone has to go through a myriad of tests which may be inconclusive.

Thanks for the correcting my misunderstanding of the genetic test. I would have been very bummed finding this out after the fact.

My heart goes out to everyone going through this process.
  • 0
Healing little by little. Functional Medicine is helping.
2015: Celiac dx, sleep apnea, chronic dehydration/malabsorption. Receiving Vit D treatment +iron, IV nutrient therapy, CPAP
Year 2: Mental clarity improving (and year 3 still improving!)
October 2013-14: low heart rate, low BP, arrhythmia = better! '15
September 2013: 55+ food intolerances, mercury poisoning, sIgA 50, leaky gut, adrenal fatigue, hormone disruption, ferritin 7, low Vit D, low Vit B6
November 2012: Gluten-Free
Year 1: Migraines resolved, OCD diminished, Change in skin texture, EyeBrows lifting & eyes bigger, Better memory, Better cognitive function, Better problem-solving capabilities, Lower anxiety level, Better outlook, Arrhythmia reduced, hope
2006-2012: Multiple unexplained illnesses; 2009: anemic; iron infusions
2005: undx celiac crisis, 2 months of hell & never to return to normal




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