Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Else Experience Temple Pain And Chemical Sensitivity?
0

14 posts in this topic

Hi all. New to the forum here and I was really curious if any of you experience throbbing temple pain if you ingest foods that are offending to a celiac diet.

I also have a problem with scented products, cigarette smoke etc. The same sort of throbbing temple pain on both sides occurs.

I had an endoscopy done and the doctor told me I had stomach lesions that look like ulcers. I had been consuming food that was not good for someone with celiac.

I was fine for 27 years of my life until one day I woke up with excruciating temple stabbing pain on both sides. It's been 3 years later and it still happens. I'm getting very tired of it as its a daily thing and nothing but avoidance of foods and chemicals relieves it.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Ryan, I too am sensitive to cigarette smoke and especially certain scented and cleaning / bug spray type products. ..I get sharp temple pains, can't breathe and go into a sort of panic attack mode.

Not sure its anything to do with celiac for me as I didn't seem to get it when I digested gluten.

0

Share this post


Link to post
Share on other sites

Hi Ryan,

I don't get those symptoms myself, but posters on the forum have talked about getting migraines before. Some have said they get migraines after accidentally consuming gluten or being cc'd. I know you didn't mention migraines but it seemed like it might be related. We have also had discussions about allergies in the past. Usually it seems like there is a mixture. Some people say their allergies became less of a problem after going gluten-free, and some say their allergies got worse. But it seems like often their is s change of some kind when going gluten-free. In my case my allergies became much less of an issue after being gluten-free for a while.

0

Share this post


Link to post
Share on other sites

Hi Ryan, I too am sensitive to cigarette smoke and especially certain scented and cleaning / bug spray type products. ..I get sharp temple pains, can't breathe and go into a sort of panic attack mode.

Not sure its anything to do with celiac for me as I didn't seem to get it when I digested gluten.

Hi VeggieGal,

Did your temple pain and chem sensitivity start one day out of the blue or did you always sort of have it? I'm trying to figure out why mine started at 27.

Hi Ryan,

I don't get those symptoms myself, but posters on the forum have talked about getting migraines before. Some have said they get migraines after accidentally consuming gluten or being cc'd. I know you didn't mention migraines but it seemed like it might be related. We have also had discussions about allergies in the past. Usually it seems like there is a mixture. Some people say their allergies became less of a problem after going gluten-free, and some say their allergies got worse. But it seems like often their is s change of some kind when going gluten-free. In my case my allergies became much less of an issue after being gluten-free for a while.

Hi GFinDC,

I did meet with a neurologist who told me "welcome to the world of migraines" I'm just not sure how at age 27 it started and most of my life I had no such pain or chemical sensitivity. Maybe my body had enough after a while and snapped or I built up too much toxicity not knowing I had celiac.

0

Share this post


Link to post
Share on other sites

Hi VeggieGal,

Did your temple pain and chem sensitivity start one day out of the blue or did you always sort of have it? I'm trying to figure out why mine started at 27.

Never really thought about it but I'm pretty sure they did just start out of the blue in my early 20s . Never really considered them as migraines because when I get migraines which is usually caused by a reaction to red cheese and I get zig zag flashes or vision blackouts followed by an headache but could be.

0

Share this post


Link to post
Share on other sites




Never really thought about it but I'm pretty sure they did just start out of the blue in my early 20s . Never really considered them as migraines because when I get migraines which is usually caused by a reaction to red cheese and I get zig zag flashes or vision blackouts followed by an headache but could be.

I feel your pain there :( I wonder if my stomach ulcers just had enough over time and brought on some kind of inflammation. Have you ever had an endoscopy or just blood diagnosis? Since our symptoms are sort of similar. I've also read up that our immune system might not be the greatest and sometimes exposure to mold can affect the body in this way. It may just be purely celiac too though. The disease is complex!

0

Share this post


Link to post
Share on other sites

I feel your pain there :( I wonder if my stomach ulcers just had enough over time and brought on some kind of inflammation. Have you ever had an endoscopy or just blood diagnosis? Since our symptoms are sort of similar. I've also read up

that our immune system might not be the greatest and sometimes exposure to mold can affect the body in this way. It may just be purely celiac too though. The disease is complex!

I really don't know much about it but slightest bit of mould or damp and I react. I also seem to have a radar for gas leaks too where I sense them and others dont lol. I'm just a sensitive and strange person!! I've been for two biopsys (the last on 3rd Jan) unfortunately I grabbed the tube on both occassions so the procedure was stopped. They had supposed to have given me sedation but it seemed to have the opposite effect (I said I was strange!). So consultant has dx me on symptoms of eating gluten, blood tests and reactions to a gluten-free diet.

Hope you start to heal soon...yes its all very complex.

0

Share this post


Link to post
Share on other sites

I have problems with perfume, cigarette smell, and mold. I get a painful feeling in my neck glands, sometimes dizzy and abdominal bloating.. This began about the same time as I began to notice celiac symptoms many years ago. Back then my lungs would hurt too when exposed to the noted smells.

Diana

0

Share this post


Link to post
Share on other sites

Hi VeggieGal,

Did your temple pain and chem sensitivity start one day out of the blue or did you always sort of have it? I'm trying to figure out why mine started at 27.

Hi GFinDC,

I did meet with a neurologist who told me "welcome to the world of migraines" I'm just not sure how at age 27 it started and most of my life I had no such pain or chemical sensitivity. Maybe my body had enough after a while and snapped or I built up too much toxicity not knowing I had celiac.

Hi Ryan,

Well, that was nice of the nuerologist to give you a welcome! :) There is another member who avoids cheese for some condition that I don't recall the name of. Adelaide. She might have some info for you. Some people also react to food colorings, especially reds. Maybe that is related to the red cheese, not sure. Hard cheese are mostly casein protein, and some of us react to that. I do, but it is a gut issue for me. I seldom get headaches. That doesn't mean other people don't get headaches from eating casein though, some do.

If you can stick to the gluten-free diet 100%, your body should stop attacking itself after a while. That auto-immune attack can do a lot of damage, and it can affect any part of the body. The damage in celiac is usually in the gut, but some people have gluten ataxia which is a brain attack by the immune system. Inflammation can cause a lot of bad effects throughout the body. Staying away from gluten is the only way to stop the auto-immune reaction. Often people report their symptoms in other parts of the body improve, but not always.

0

Share this post


Link to post
Share on other sites

GFinDC, interesting..its the first time ive heard of gluten ataxia so I googled it http://celiacdisease.about.com/od/GlutenAtaxia/a/What-Is-Gluten-Ataxia.htm

and it describes me to a t! and my 11 yr old son for that matter (hes been dx with dyspraxia but looking at gluten ataxia, im thinking it maybe that). I best get him tested but do you know if there is specific tests for gluten ataxia?

I have a definite problem with cheese and milk but not worked out if its casein or lactose or both. Thanks for that info :)

0

Share this post


Link to post
Share on other sites

GFinDC, interesting..its the first time ive heard of gluten ataxia so I googled it http://celiacdisease...uten-Ataxia.htm

and it describes me to a t! and my 11 yr old son for that matter (hes been dx with dyspraxia but looking at gluten ataxia, im thinking it maybe that). I best get him tested but do you know if there is specific tests for gluten ataxia?

I have a definite problem with cheese and milk but not worked out if its casein or lactose or both. Thanks for that info :)

Hi VeggieGal,

I don't know of specific tests for gluten ataxia, but they do find something called UBO's (unidentified bright objects) in brain scans of people with gluten ataxia sometimes. There are some members on the forum who have had it. The 2nd link below has an overview of gluten related nuerological affects.

https://www.google.com/search?q=nuerolgical%20impacts%20gluten&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a&source=hp&channel=np

http://jnnp.bmj.com/content/72/5/560.long

http://www.celiac.com/articles/22040/1/The-Correlation-Between-Gluten-Intolerance-and-Neurological-Disease/Page1.html

I had problem with lactose at first and eliminated that. But later found I was reacting to casein also. I like Daiya brand cheese like shreds.

If you search the forum for ataxia there quite a few threads about it with more info. It can affect children as well as adults. You can also search on Purkinje cells and gluten to find info.

And you are welcome! :)

0

Share this post


Link to post
Share on other sites

Hiya GFinDC

Ooooo good, thanks for some more info, thats great, I'll have a read :)

0

Share this post


Link to post
Share on other sites

I'm sensative to all chemicals, perfumes, scented items that are not all natural, etc. My temples throb, my throat gets all scratchy, and then it moves to behind my eyes.

0

Share this post


Link to post
Share on other sites

I'm sensative to all chemicals, perfumes, scented items that are not all natural, etc. My temples throb, my throat gets all scratchy, and then it moves to behind my eyes.

Thanks for sharing. I get the temple pain with scented stuff, but before it happens my nose throbs and it moves behind my eyes too! Same thing happens if I eat something with gluten or dairy. Did you have this all your life or did it just start one day? For me it started 3 years ago and has not let up since.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined