Explanation Of Biopsy?
Posted 07 January 2013 - 07:30 AM
Anyway, I read the doctor's explanation of the biopsy...and I say explanation very lightly because for 8 samples there is almost nothing in the way of explanation.
Here is what it says: gastritis was noted. Inflammation of the stomach noted. It was mild. Biopsies for H, pylori bacterial infection were negative.
Esophagitis was found. The severity was mild. Inflammation due to the presence of acid reflux has caused inflammation on the lining of your esophagus. There is no evidence of pre-malignant changes.
Other comments: inflammation of the duodenum was seen but no evidence of celiac disease. The inflammation could be secondary to acid secretion.
Any ideas, comments, pearls of wisdom regarding the "explanation"?Should I keep my appointment with the doctor or just leave well enough alone?
Posted 07 January 2013 - 09:42 AM
Then you have 2 choices. You can either go on one of these wild-goose chases, take the meds, and go on one of these heartburn diets where you eliminate all these different acidic, spicy, fatty, dairy, and fried foods that supposedly cause acid reflux, (and likely won't work, because you are supposed to eat grains on this), or you can go on a gluten free diet and see what happens, which has just as good a chance of working, because you have certain symptoms of celiac and associated conditions that go along with it. And celiac and gluten intolerance can cause ferocious heartburn and acid reflux. Before I went gluten free, my diet got more and more restrictive, and I was told to take various otc heartburn meds, like tums, (not a good idea) but I was eliminating the wrong types of proteins, eating more grains because it was supposed to be "healthier," and the various acid blockers didn't do anything except give me some strange side effects, so I had to stop them. Now, other than avoiding gluten, I eat a lot of the foods that were supposedly giving me heartburn back in the 1980's, and have no reaction to them and don't have heartburn. It was very strange to discover that I could, if I wanted to, eat something like a gluten free pancake or gluten free french toast, with some coffee, and an orange, and have no reaction to it - I was using just almond meal to make things in the beginning.
Posted 07 January 2013 - 10:07 AM
Posted 07 January 2013 - 10:24 AM
Posted 07 January 2013 - 10:30 AM
Is that easy to get a hold of? Also, does that often happen that the pathologist sees celiac but the doctor does not/and/or reports something else?
Ask the doctor for a copy of it. It will tell you if he even did a biopsy. My GI claimed he biopsied something but there was no path report for it so I know he didn't. When I worked in health care, there are plenty of surgeons that do not list what was found on the path report. Partially because an operation/ procedure report is done before the pathology comes back.
Posted 07 January 2013 - 10:53 AM
So are you saying that the pathologist report will confirm whether or not a biopsy was actually done? Does that mean if there was one done there will be a report and if there wasn't, there won't be?
Posted 07 January 2013 - 11:26 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 07 January 2013 - 11:40 AM
Posted 07 January 2013 - 12:34 PM
Well, that kind of confirms that she sent the procedure report before the pathologists report because I know she sent it on Friday the 21st...for some reason I truly doubt the pathologist had completed 6-8 biopsies by that point. I guess it's possible, but it seems a little hard to believe. This whole thing has really soured me on some of the medical profession, that's for sure !!
Ideally, a surgeon or GI would make his procedure/operation report right after the procedure, while its fresh in his mind. Then he would either add an addendum to the report to include the path findings, or a separate "discharge summary" or a note that sums it all up. With these outpatient type prodecures, this final note might not be as formal as the one after a long inpatient stay. Many GIs will write a sumnation letter to your primary care doc that can take its place. He should be able to give you a copy of that if that is his summary or you could discuss it with your primary doctor.
either way, ask for an actual copy of the path report. It should include a description of what the samples are labelled which will have the size and location, some hard to understand stuff about how it was looked at and what was seen and a conclusion or diagnosis. 1-2 pages would be average. when you get it, you could copy it here if you want.
want to add: Usually you would expect about 2 days to get the report. This was right before Christmas so they might have tried to get them out quicker to get a day off or there weren't as many specimens to look at because no one wants to do elective procedures right before a holiday.
Edited by kareng, 07 January 2013 - 12:36 PM.
Posted 07 January 2013 - 07:57 PM
Also, why was I not told about the gastritis when I was originally called? I didn't even know it was "noted" until I read the note.
Posted 17 January 2013 - 10:47 AM
The doctor on the other hand, when I told her I was still having problems she said that I might easily be gluten intolerant (which, duh, but from what I have read on here, she seems to be one of the few doctors who acknowledge it!) and given the amount of inflammation I showed I should give up dairy for awhile. I was just very happy to hear my doctor parrot what I have been reading on here! I have also been doing my food diary all wrong - only recording major reactions and not minor ones, whoops!
Anyway, I asked her for the pathologist's report and she gave it to me. Shorter than I expected (2 pages), but shockingly some things were done that I did not expect (they DID test for eosinophils, which were not present).
Here it is, in most of its entirety:
Clinical impression: Abnormal mucosa in duodenum; normal mucosa entire stomach; erythematous esophagus.
Gross description: Received in zinc-formalin are six fragments of red-tan soft tissue measuring 0.9 cm x 0.6 cm x 0.2 cm in aggregate.
Received in zinc-formalin are two fragments of red-tan soft tissue measuring 0.4 cm x 0.3 cm x 0.2 cm in aggregate.
Received in formalin are two fragments of soft tissue measuring 0.3 cm x 0.3 cm x 0.1 cm in aggregate.
Small bowel mucosa with foveolar metaplasia and Brunner gland hyperplasia. Giardia and other parasites not identified.
Foveolar cell hyperplasia, edema of lamina propria and minimal inflammation. No evidence of intestinal metaplasia, malignancy or dysplasia. H.pylori not present.
Esophageal mucosa with basal layer hyperplasia and elongation of esophageal papillae. Eosinophils are not present. There is no columnar mucosa present.
Duodenum, Biopsy with Cold Forceps:
Chronic duodenitis with focal foveolar metaplasia and Brunner gland hyperplasia.
No evidence of celiac sprue.
Giardia not identified.
Stomach, biopsy with cold forceps:
Reactive (erosive) gastropathy
Silver stain negative for H.pylori
Distal esophagus, Biopsy with cold forceps
Hyperplastic squamous mucosa most consistent with chronic reflux esophagitis.
There are no eosinophils present.
No evidence of Barrett's esophagus; no glandular mucosa present.
Phew!! Anyone able to decipher the medical speak for me?
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users