Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

No Celiac
0

12 posts in this topic

well after trail and error and 2 more test I do not have celiac ... yipppeeeeeeeeeeee

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ya know...I may get in trouble here for this but that is one of the rudest comments that I have ever read on here. Glad that you don't have celiac but the rest of us here do. I am currently glutened and feeling like crap so nice way to rub it in.....good going!!

0

Share this post


Link to post
Share on other sites

You know, Mo....I sort of thought that at first, too.

But then I thought....We always want to know what the results are with the people we help on here....maybe he/she just thought we would like to know that. And, who among us wouldn't like to not have Celiac?

Of course, Celiac is a definitive answer for why someone feels ill. Now this poor person has no idea why he is having the issues he has. Maybe he is NCGI? Maybe he has a parasitic infection? Maybe cancer? Maybe Chrohn's? Worse things than Celiac.

So to Razzle51 - I'm sorry that the doctors have not found out what is causing your medical issues. I hope they continue to search for the problem and find a good solution for you and you return to good health soon.

2

Share this post


Link to post
Share on other sites

Congratulations! :) I hope you figure out soon, and consider non-celiac gluten sensitivity if you continue to have problems.

0

Share this post


Link to post
Share on other sites

I'm not sure what to say exactly. There is nothing quite like being deathly ill and having all the tests say you are in perfect health. What tests did they do precisely?

1

Share this post


Link to post
Share on other sites




True..true...So sorry, I hope that you feel better soon and get to the root of your health issues.

0

Share this post


Link to post
Share on other sites

I am delighted for you. Be sure to hang around and ask questions if you think gluten-free might help. I have a diagnosis of NCGI and feel way better on a gluten-free diet. I hope you get to the bottom of things.

Good luck

0

Share this post


Link to post
Share on other sites

Yeah, I was actually happy to be diagnosed with Celiac because I at least knew what the problem was FINALLY after 10+ years of suffering and could get on the track of feeling better. Sorry you don't have the answer yet.

2

Share this post


Link to post
Share on other sites

well, I was going to say pretty much what Karen said, so I'll just say

"what karen said"

and since I went most of my life not knowing why I felt so bad, had horrible symptoms progress in the last 10 years and pretty much was ready to die, I am one of the few people who said :

"I have Celiac! Hot damn! whoohoo!"

because I knew I had an answer and I could get well.

And, I have to add this cautionary note: sometimes, despite the negative testing results, if it walks like a duck and acts like a duck.....

(my celiac blood panel was negative and that set me up for 2 more years of living hell)

It may not be celiac, but the gluten intolerance spectrum is pretty wide.

1

Share this post


Link to post
Share on other sites

well, I was going to say pretty much what Karen said, so I'll just say

"what karen said"

and since I went most of my life not knowing why I felt so bad, had horrible symptoms progress in the last 10 years and pretty much was ready to die, I am one of the few people who said :

"I have Celiac! Hot damn! whoohoo!"

because I knew I had an answer and I could get well.

And, I have to add this cautionary note: sometimes, despite the negative testing results, if it walks like a duck and acts like a duck.....

(my celiac blood panel was negative and that set me up for 2 more years of living hell)

It may not be celiac, but the gluten intolerance spectrum is pretty wide.

That is sort of why I asked what tests were done. Sometimes a duck is a duck is a duck. I don't care if the tests tell you a duck isn't a duck, if a duck is staring you in the eyes, it doesn't matter what a piece of paper says. You would be a moron to say, hey, that ain't no duck!

ETA: Also, once I got my head out of my ever too ample backside, I was thrilled to have an answer. I was thrilled to not have to be on a half dozen drugs with 4 dozen side effects worse than how sick I already was. All I had to do was stop eating gluten. Simple. (Bwahahaha!)

Edited by Adalaide
0

Share this post


Link to post
Share on other sites

I was relieved to find I had celiac. I liked having an explanation for 30 years of fatigue and a way out. Yeah, I would have been glad if I didn't have to follow the diet, but I would be back to square one of what to do next. I just hope that you Razzle51 will find the keys to your health struggle and be able to do something about it.

Diana

1

Share this post


Link to post
Share on other sites

I think I was more scared of getting a negative/borderline diagnosis because theres nothing worse than not knowing for sure, especially with all these false negatives people get which I keep reading about. At least with a dx of celiac or if you've worked out you're a NCGI then you've got something you can deal with.

I'm still new to all this but hope you find out whats causing your symptoms Razzle...may even be worth going gluten free for a while to see if things improve or try an elimination diet (I'm sure you"ll find loads of info on here on how to go about it).

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined