Re-Doing Bloodtest 3 Years Later?
Posted 07 January 2013 - 10:13 AM
She is still extremely small for her age, maybe moreso now than she'd been at 2. She has phases of diahrea, but then it always passes. She complains of tummy pain, but it always passes, lethargy at times.... She's not "sick" like my mom and I were, but I always question it with her...
If her bloodtest was negative 3 years ago, is it worth redoing? Can it change?
Thanks for you help!
Posted 07 January 2013 - 10:46 AM
Posted 07 January 2013 - 10:53 AM
Posted 07 January 2013 - 05:37 PM
Posted 08 January 2013 - 07:34 AM
ODS did have an endoscopy, even though his original blood tests were negative and he had almost no symptoms just because he had some weird issues with his tooth enamel. Kids (and adults) can have it with no symptoms at all - and blood tests are frequently wrong. Everything came back normal so he has continued to eat gluten for the past two years (less than before, since I cook gluten free, but still has some daily.)
I would do three things:
First check to see that she got the full panel of tests three years ago. Just knowing the "bloodwork was negative" does not really give you the full picture. (Both my sister and brother had "negative bloodwork" and were told they do not have a problem. When I asked them what tests were done, they both only had the TTG IgA test done. Not the complete panel. They continue to eat gluten based on this and they both have classic symptoms of intolerance.) You may find that her original tests were not done fully, and/or that her levels were on the high side.
Second: get a new blood panel done. Celiac Disease can be triggered at any time in your life so maybe she didn't have it then, but does have it now. Or, maybe her antibody levels were not high enough three years ago to be detected, but they are now. You can also compare the two tests to see if the levels are going up or staying the same.
Third: after I was sure the complete panel was done, I would try out the gluten-free diet and see how she responds. I would try the diet even if all the tests come back negative.
We thought our son only had a behavior response to gluten. That improved immediately once it was removed. Over time we noticed other things. He shot up three inches in the first month, he sleeps better, his skin is better, no more dark circles under his eyes, his hair even got thicker suddenly. He is like a new kid.
Now, if he accidently get gluten, he is sick for days. The behavior comes back, but so do stomach cramps, and other classic symptoms.
Posted 08 January 2013 - 09:18 AM
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