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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Would Really Like To Gain Some Weight
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8 posts in this topic

Hello everybody,

I am new to Celiac.com and somewhat new to being gluten free. A little over a year ago I was diagnosed with IBS after two years of anything I ate flushed through my system quickly and painfully. Even after the diagnosis I still sufered with little releif from the medication I was prescribed. A couple of months later someone had recommended that I stop eating wheat and see what happens. Two days late, after 2 years of suffering, it was like I never had a problem. Since then I've stuck to a gluten free diet.

The problem I have is that I can't seem to gain any weight. I'm 6'10" and roghtly 160-165lbs (it fluxuates). I was able to gain 15 lbs after the diet change and going to the gym three times a week but I've lost that weight and am back to my origonal weight. Are there any recommendations that someone can offer to gain weight? I'd like to get to roughly 190-200lbs.

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Hello everybody,

I am new to Celiac.com and somewhat new to being gluten free. A little over a year ago I was diagnosed with IBS after two years of anything I ate flushed through my system quickly and painfully. Even after the diagnosis I still sufered with little releif from the medication I was prescribed. A couple of months later someone had recommended that I stop eating wheat and see what happens. Two days late, after 2 years of suffering, it was like I never had a problem. Since then I've stuck to a gluten free diet.

The problem I have is that I can't seem to gain any weight. I'm 6'10" and roghtly 160-165lbs (it fluxuates). I was able to gain 15 lbs after the diet change and going to the gym three times a week but I've lost that weight and am back to my origonal weight. Are there any recommendations that someone can offer to gain weight? I'd like to get to roughly 190-200lbs.

Maybe you can tell us a little more? What are your eating habits, preferences, any other illnesses?

Were you this thin before you got sick?

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Maybe you can tell us a little more? What are your eating habits, preferences, any other illnesses?

Were you this thin before you got sick?

My eating habbits are lots of healthy foods such as frozen veggies, chicken, some red meats, dairy (cheese), and I have a guilty habbit of eating my fair share of corn chips. I generally eat two meals and three "snacks" a day. Before I got sick, I was thin (so I'm aware that I have a high motabilism *spell check). I don't drink caffeine and rarely drink alcohol (gluten free). As far as other diseases I was diagnosed with Gilberts disease and as it was explained to me that I have a hard time processing fat.

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My son and I have been working on gaining weight by eating lots of whole milk yogurt, like a quart a day each. We have each gained about 7 pounds since September. We eat homemade due to extreme sensitivity to gluten. I have a special whole milk source. I mix it with applesauce, but my son takes it unflavored, unsweetened, just straight. Homemade yogurt can be lower in lactose because of the milk solids or other things sometimes added to store bought yogurt. If you have problems with lactose, you can culture it for a longer time. We also find that we lose weight if we are getting gluten contamination, which is how we got too low to begin with. Good luck!

Sorry, I just read that you have a hard time processing fat. That probably won't work for you then. I guess lots of protein would be the way to go.

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I'm also trying to gain weight (5'2", 100 Lbs). My approach is to get lots of carb-heavy liquids into myself. So I'll put maple syrup on my gluten-free waffles and made homemade water kefir sodas with juice. I've heard sugars turn into fat in your system better than fats do, oddly enough. I can't eat much, so liquids is how I try to sneak it all in. Unfortunately, I seem to have a problem with fructose (water kefir is almost all fructose), and I hate commercial sodas, so I'm back to square one. But it might help you.

If you don't mind some of the weight you gain being muscle, you could always start doing some extreme exercising. I only gained weight twice in my life, one of which was when I ran almost every day. I must have gotten eight pounds in muscle over the course of a year or so.

The other time was when I lived in Germany and they forced food into me like a French goose. (!)

My nutritionist recommended I drink something like Ensure three times a day. It has soy in it, so I'm not doing that, but you could also add in a yogurt shake or smoothie or something along those lines several times a day. Like dilettantesteph, I made my own yogurt -- Greek yogurt actually -- for a while, and that was delicious and pretty easy to do in the stove with the lightbulb as a light source.

Anyway, I know how hard it is to gain weight, so I hope you are able to do it. Please come back and post here with your experiences, so other people can learn from your approach.

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I've gone and read about Gilbert's a bit now, and while I haven't studied it in depth it

appears to have nothing to do with the digestive process of dietary fats. Have you

spent much time reading about it?

On the food front, whole plain yogurt, avocados, EVOO, butter, more meats in general

are a very good strategy for getting the calories and nutrition you need. Try and stick to

dark meat with your poultry, things like that. Generally speaking anything you can get

organic will be better than conventional. I would caution against loading up on anything

sugary, it's a fallacy that that always results in weight gain- I had to give up all processed

sugar and most natural sugars to gain any proper weight. It does work on some people,

but generally not those with a very fast metabolism like yours.

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I've been trying to gain weight for ages now. (Only after switching to gluten-free was I able to.) Your other illness may have a bit to do with your struggle in gaining weight.

Things I eat the most are high in healthy fats. Salmon is amazing for you. High in Omega-3 for your brain, heart, and skin and in healthy fats, and protein. Greek yogurt (full fat, not non-fat. Check out Greek Gods yogurt) is also high in protein and fats but generally contains only a small amount of lactose. (I have a problem with lactose and I'm fine with it.) Try avocados, nuts, brown rice for your carbs.

Also, weight training exercises will help you build lean muscle and help you bulk up. Stay away from much cardio as that will burn off those calories you need.

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wow, all i can recommend is do some heavy exersicing, like a bulking workout, and eat like crazy! Lots of carbs and protein. Someone your height could pack on some serious muscle and strength with a solid workout!

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    • Will my doctor test me? So many symptoms...
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    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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