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Aaaagghhh... Ginger Ale?
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I am starting to strongly suspect some of this refractory pain is from ginger ale- if I have not somehow managed to find the one brand of diet ginger ale in america that contains gluten (Stop and Shop store brand, diet, if you were curious), then I'm still too sensitive to deal with the acidity or something (if I have too much acidic food at once, it *will* hurt; I've known this for awhile). Went without it for awhile (got the flu and somehow lost the taste for soda as a result); today was my first day having a can of it. This is also the first time the pain's popped back up like this for a few days at least.

So, I'm eliminating that, and we'll see if I stop getting pain flareups that are suspiciously close in time to consuming said ginger ale.

Anyway; frustrated because it looks like I have found a food that "ought" to have been "safe" that seems not so much to be safe. Also, I hurt.

Kinda doubting even of a forum this large anyone else will pop up and say "OMG, I find that brand of soda also makes me hurt!" but if you're reading this and had the same reaction, please share.

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JUst because it bothers you, doesn't mean it has gluten. Some of the artificial sweeteners make my stomach hurt and bloat.

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Could be the carbonation (lots of bubbles) or the ????? acid. I know pepsi and coke have phosphoric acid in them. Soda is junk. Gave it up years ago.

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Ginger ale does not contain gluten.

I cannot drink any bubbly sodas. because I cannot handle all that sugar.... and if it is "diet" that fake sugar stuff is a direct run to the loo for me..

Best to stick with water for now.

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Yes I am wondering if its the fake sugar. I get major D and "blah" feeling if I eat or drink the fake stuff... gave up on soda, in all forms, a few years ago.

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The odd thing is I don't seem to have the same reaction to diet cola, though perhaps I'm wrong about that. I know ginger itself messes with me (best I can figure is years of classical conditioning being given ginger ale when sick; in its more concentrated forms, ginger actually nauseates me). I'll eliminate the ginger ale as a variable first, anyway.

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The odd thing is I don't seem to have the same reaction to diet cola, though perhaps I'm wrong about that. I know ginger itself messes with me (best I can figure is years of classical conditioning being given ginger ale when sick; in its more concentrated forms, ginger actually nauseates me). I'll eliminate the ginger ale as a variable first, anyway.

If you have a problem with ginger, then that would be a red flag to me for ginger ale. It is not what I would call concentrated, but it is present.

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When in doubt, test yourself on the elemental form of an ingredient, in this case, you would take some fresh ginger root, wash it off, and grate it, perhaps brew it in plain water in the microwave in a cup, then try it with a form of sweetener that you know you can already tolerate. Then try carbonated water or club soda separately, the next day. If that works, you can put some ginger or ginger brew in club soda with a dash of cider vinegar or a big squeeze of fresh lemon, and sweetener to make "ginger ale," if you want to.

I had to quit "blue stuff" and "yellow stuff," the only artificial sweetener I can go near is "pink stuff," then there is stevia, honey, and agave.

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I would like to suggest that maybe you should not drink soda, or anything else, out of aluminum cans. While your problems may well stem from the soda pop ingredients, they might also be connected to that aluminum can.

Long ago I found that I did not like the flavor of soda pop out of a can, but if it came out of a glass or plastic bottle the flavor seemed better to me.

The same with symptoms, some symptoms that occur when drinking liquids from a can did not occur when drinking the same brands of liquid from a glass or plastic container.

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Eliminating the ginger ale has eliminated the pain, btw. I doubt it was gluten; I think it was added the acidity not doing good things for my already-damaged insides, but may also have been the ginger. I still seem to tolerate diet cola just fine, but that may simply be the result of cutting back on soda overall by eliminating ginger ale (right now, I'm content knowing the change I made seems to be working/don't feel compelled to experiment).

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Just be sure to keep track of this. I had problems with all sorts of things, including some sodas. If I hadn't kept track I wouldn't have been able to get healthy. Sometimes you think that you will remember and you don't.

Good for you for noticing promptly and figuring it out.

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This past November I was ill.  I had digestive system discomfort with severe nausea and I had dizzy spells.  I finally tracked down the one thing I had consumed that I did not use for many years prior to this event.....  chewing gum containing ASPARTAME.  

Aspartame is nasty stuff!!  I was so sick for so many days, accompanied with the dizzy spells, which become more severe as the days passed!!

I chewed gum on 3 separate occasions, and I spit it out after only an hour or so, but that was all it took!!  I was sick for the next 3 weeks.

 

I feel that many of these sensitivities and symptoms and issues may be heightened by being gluten free.  If you are gluten free your body can stop attacking itself because of the gluten and now it's attention becomes riveted to other things!!  Kind of like an unending nightmare.....

 

Anyway, BEWARE OF ARTIFICIAL SWEETENERS!!!

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This past November I was ill.  I had digestive system discomfort with severe nausea and I had dizzy spells.  I finally tracked down the one thing I had consumed that I did not use for many years prior to this event.....  chewing gum containing ASPARTAME.  

Aspartame is nasty stuff!!  I was so sick for so many days, accompanied with the dizzy spells, which become more severe as the days passed!!

I chewed gum on 3 separate occasions, and I spit it out after only an hour or so, but that was all it took!!  I was sick for the next 3 weeks.

 

I feel that many of these sensitivities and symptoms and issues may be heightened by being gluten free.  If you are gluten free your body can stop attacking itself because of the gluten and now it's attention becomes riveted to other things!!  Kind of like an unending nightmare.....

 

Anyway, BEWARE OF ARTIFICIAL SWEETENERS!!!

 

Aspartame is evil stuff.  It gives me an almost immediate headache.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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