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Failed With Protein Supplements
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Well I did my research tried the most recommended in tis forum (i.e. Vega, Raw and Trader Joe's Hemp) all messed me up. I'm only a month into my gluten-free diet and diagnosed with IBS not Celiacs( endo biopsy negative) , but when I dont accidentally glutten myself I feel normal again. Thus i may have low tolerance for hemp or other grains/ seeds that I haven't quite pin pointed yet in addition to gluten. I want to gain weight lost, my resolution is: lots of eggs, greek yogurt, MEAT, and 4 protein filed big meals a day with hummus and avocado sanckings in between. Of corse with a weight lifting program when not gluttened will let you know how it goes. Im shooting for at least 20lb. Any tips appreciated.

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I am an athlete with a very sensitive gleuten intolerance. the onlly protien suplement I have found to not give me problems is "fast digesting ISO-Z5" isolate protien. if taken with H2O there is only 140 cal. I take mine with milk and I double the recomended dose. recomended dose is 2 scoops per day. I take 2 scoops in am and 2 in pm. vit B-12, and a multi. they sem to be working pretty good as I have been doing thisfor one month now. BUT I follow a very strict gleuten free soy free diet and very sparing in the carb and casin dept.

When I say athlete I mean I am 43 yo. I have lived with this for about 1.5 years and am currently on a pretty heavy work out plan. I do a 5k brisk on monday, a 10k on wednesday, light (not lazy) 5k thursday, all those in A.M. In PM I work out monday thru thursday lifting. then I do a long run of 10 to 15 miles every saterday. I am not boasting I am just stating that you can do what I am if you maintain your discipline and not give up, but it will take time and set backs but you are worth the effort.

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I'm only a month into my gluten-free diet and diagnosed with IBS not Celiacs( endo biopsy negative) , but when I dont accidentally glutten myself I feel normal again.

I was training for an ultramarathon when I got diagnosed. I lost about 8 Lbs (I think all muscle) and am not just slightly underweight (18.5 BMI). My personal decision is to wait until 2 months gluten-free and then to maintain a healthy weight for at least two weeks before I start training again. I'm just ending the 2-month period, so it's all about gaining a few more pounds for me, which is crazy hard. Then I'll ramp up really slowly. On the sport board, some people recommend waiting even longer after going gluten-free before undertaking any serious exercise.

Anyway, this is just my opinion. Although I totally get the folks who don't wait -- so frustrating not to be running right now. I just ordered my favorite gluten-free running fuel, just to make myself feel better and have it ready in case I manage to gain the weight soon.

By the way, have you tried rice protein? I eat Zing bars, and that's what they have. I can't seem to do almost any foods, but the rice protein in Zing bars seems just fine.

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I am an athlete with a very sensitive gleuten intolerance. the onlly protien suplement I have found to not give me problems is "fast digesting ISO-Z5" isolate protien. if taken with H2O there is only 140 cal. I take mine with milk and I double the recomended dose. recomended dose is 2 scoops per day. I take 2 scoops in am and 2 in pm. vit B-12, and a multi. they sem to be working pretty good as I have been doing thisfor one month now. BUT I follow a very strict gleuten free soy free diet and very sparing in the carb and casin dept.

When I say athlete I mean I am 43 yo. I have lived with this for about 1.5 years and am currently on a pretty heavy work out plan. I do a 5k brisk on monday, a 10k on wednesday, light (not lazy) 5k thursday, all those in A.M. In PM I work out monday thru thursday lifting. then I do a long run of 10 to 15 miles every saterday. I am not boasting I am just stating that you can do what I am if you maintain your discipline and not give up, but it will take time and set backs but you are worth the effort.

Hey Robert, can't do whey protein either not soy, intolerant to that too. I'll work on my profile next time I post, but it's up lifting to see all you can do, can't wait...

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I was training for an ultramarathon when I got diagnosed. I lost about 8 Lbs (I think all muscle) and am not just slightly underweight (18.5 BMI). My personal decision is to wait until 2 months gluten-free and then to maintain a healthy weight for at least two weeks before I start training again. I'm just ending the 2-month period, so it's all about gaining a few more pounds for me, which is crazy hard. Then I'll ramp up really slowly. On the sport board, some people recommend waiting even longer after going gluten-free before undertaking any serious exercise.

Anyway, this is just my opinion. Although I totally get the folks who don't wait -- so frustrating not to be running right now. I just ordered my favorite gluten-free running fuel, just to make myself feel better and have it ready in case I manage to gain the weight soon.

By the way, have you tried rice protein? I eat Zing bars, and that's what they have. I can't seem to do almost any foods, but the rice protein in Zing bars seems just fine.

Hey Chaff, I used to run 5k 3x per week before I started going down. Now I'm not too interested in running but lifting weights as I want to gain weight; however, like you, I noticed my muscles getting weaker and recovery taking longer before I stoped. When I picked up lifting I would actually loose weight despite eating like a horse. This was before going gluten-free a month ago, I feel myself improving.

I dont react to rice maybe I'll give it a try later, thanks.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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