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Failed With Protein Supplements
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Well I did my research tried the most recommended in tis forum (i.e. Vega, Raw and Trader Joe's Hemp) all messed me up. I'm only a month into my gluten-free diet and diagnosed with IBS not Celiacs( endo biopsy negative) , but when I dont accidentally glutten myself I feel normal again. Thus i may have low tolerance for hemp or other grains/ seeds that I haven't quite pin pointed yet in addition to gluten. I want to gain weight lost, my resolution is: lots of eggs, greek yogurt, MEAT, and 4 protein filed big meals a day with hummus and avocado sanckings in between. Of corse with a weight lifting program when not gluttened will let you know how it goes. Im shooting for at least 20lb. Any tips appreciated.

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I am an athlete with a very sensitive gleuten intolerance. the onlly protien suplement I have found to not give me problems is "fast digesting ISO-Z5" isolate protien. if taken with H2O there is only 140 cal. I take mine with milk and I double the recomended dose. recomended dose is 2 scoops per day. I take 2 scoops in am and 2 in pm. vit B-12, and a multi. they sem to be working pretty good as I have been doing thisfor one month now. BUT I follow a very strict gleuten free soy free diet and very sparing in the carb and casin dept.

When I say athlete I mean I am 43 yo. I have lived with this for about 1.5 years and am currently on a pretty heavy work out plan. I do a 5k brisk on monday, a 10k on wednesday, light (not lazy) 5k thursday, all those in A.M. In PM I work out monday thru thursday lifting. then I do a long run of 10 to 15 miles every saterday. I am not boasting I am just stating that you can do what I am if you maintain your discipline and not give up, but it will take time and set backs but you are worth the effort.

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I'm only a month into my gluten-free diet and diagnosed with IBS not Celiacs( endo biopsy negative) , but when I dont accidentally glutten myself I feel normal again.

I was training for an ultramarathon when I got diagnosed. I lost about 8 Lbs (I think all muscle) and am not just slightly underweight (18.5 BMI). My personal decision is to wait until 2 months gluten-free and then to maintain a healthy weight for at least two weeks before I start training again. I'm just ending the 2-month period, so it's all about gaining a few more pounds for me, which is crazy hard. Then I'll ramp up really slowly. On the sport board, some people recommend waiting even longer after going gluten-free before undertaking any serious exercise.

Anyway, this is just my opinion. Although I totally get the folks who don't wait -- so frustrating not to be running right now. I just ordered my favorite gluten-free running fuel, just to make myself feel better and have it ready in case I manage to gain the weight soon.

By the way, have you tried rice protein? I eat Zing bars, and that's what they have. I can't seem to do almost any foods, but the rice protein in Zing bars seems just fine.

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I am an athlete with a very sensitive gleuten intolerance. the onlly protien suplement I have found to not give me problems is "fast digesting ISO-Z5" isolate protien. if taken with H2O there is only 140 cal. I take mine with milk and I double the recomended dose. recomended dose is 2 scoops per day. I take 2 scoops in am and 2 in pm. vit B-12, and a multi. they sem to be working pretty good as I have been doing thisfor one month now. BUT I follow a very strict gleuten free soy free diet and very sparing in the carb and casin dept.

When I say athlete I mean I am 43 yo. I have lived with this for about 1.5 years and am currently on a pretty heavy work out plan. I do a 5k brisk on monday, a 10k on wednesday, light (not lazy) 5k thursday, all those in A.M. In PM I work out monday thru thursday lifting. then I do a long run of 10 to 15 miles every saterday. I am not boasting I am just stating that you can do what I am if you maintain your discipline and not give up, but it will take time and set backs but you are worth the effort.

Hey Robert, can't do whey protein either not soy, intolerant to that too. I'll work on my profile next time I post, but it's up lifting to see all you can do, can't wait...

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I was training for an ultramarathon when I got diagnosed. I lost about 8 Lbs (I think all muscle) and am not just slightly underweight (18.5 BMI). My personal decision is to wait until 2 months gluten-free and then to maintain a healthy weight for at least two weeks before I start training again. I'm just ending the 2-month period, so it's all about gaining a few more pounds for me, which is crazy hard. Then I'll ramp up really slowly. On the sport board, some people recommend waiting even longer after going gluten-free before undertaking any serious exercise.

Anyway, this is just my opinion. Although I totally get the folks who don't wait -- so frustrating not to be running right now. I just ordered my favorite gluten-free running fuel, just to make myself feel better and have it ready in case I manage to gain the weight soon.

By the way, have you tried rice protein? I eat Zing bars, and that's what they have. I can't seem to do almost any foods, but the rice protein in Zing bars seems just fine.

Hey Chaff, I used to run 5k 3x per week before I started going down. Now I'm not too interested in running but lifting weights as I want to gain weight; however, like you, I noticed my muscles getting weaker and recovery taking longer before I stoped. When I picked up lifting I would actually loose weight despite eating like a horse. This was before going gluten-free a month ago, I feel myself improving.

I dont react to rice maybe I'll give it a try later, thanks.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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