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Newbie Here - Plenty Of Problems
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3 posts in this topic

Hi everybody,

Im 22 year old male from Australia and have been having problems with my stomach for about 8 years! Over the past 18 months things have goten worse and I have developed new intolerances which I don't think fit into the Celiac folder,

I'm finally getting tested for Celiac disease after years of pain, so hopefully I will have a diagnosis I can deal with! The last few docs have said Irritable Bowel or "I don't know, you must have had a bug" Very frustrating, I'm sure you have all had similar experiences.

Very recently (promoting my trip to the doc today) I have been experiencing a severe lack of energy, I've been getting out of breath just getting out of bed or walking up the stairs. then my heart races for a few mins.

My intolerances include

Wheat

Flour

Dairy

Eggs

Red Meat (in large enough doses eg. a steak)

Rice - both white and brown

Anything deep fried or oily

When I eat enough of any of these foods I get bloated, stomach pains, occasionally diarrhea and sometimes a red patchy rash on my hands and arms.

I'd really appreciate any advice or help you could give me!

Thanks for your time.

Donovan.

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Omg, you sound like me, except Im female and 24. Im just now getting to my new doctor(who listens) to see if he can run some blood work. In the past when I went(17yo), they treated me like I was a hypochondriac! I felt SO belittled that I never went back. One doctor did want to diagnose me with Fibromyalgia(20yo), but because I didn't want to take the antidepressants that she wanted to prescribe me, she said that I didn't want to receive treatment!!! It's very aggravating to be so young and to be treated like that. I feel like I've been suffering my whole life. I can't get to the doctors until the 22nd, so for now Im just hanging in there. Im also going to do some testing from enterolab to see if I have any other intolerances/allergies other than gluten as well, so I can eliminate those as well when I change my diet. Maybe you should check that out?(enterolab.com) I too get the most annoying itchy skin ever, with little bumps and blister like pimples(only a couple random ones on my body) and it's after I've had glutenous foods. Beer REALLY makes my skin flare up head to toe-but it burns for a few days and then gets itchy. I also get very winded...going up the stairs, getting up from a sitting/laying position, standing too long...my heart races and I have to catch my breath. Im not sure if it's related either. I hope you feel better and start finding answers soon too!! :)

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I recall having problems making it up the stairs at seemingly random times. I also had total lack of energy. I was deficient in many nutrients. Carefully selected supplements, recommended by my chiropractor helped me with those problems. I think that celiac was a main root of my malabsorption and poor health.

I hope you will find some answers and fast. What you are going through isn't the funnest! Get well.

Diana

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    • It starts as a piercing itch and the skin turns reddish with a few tiny red bumps. Then tiny watery vesicles appear and itch like crazy. The whole process from start to finish is about 3 weeks and the lesions leave a purplish skin tone and scab. I get them on the back side of both knees near the bend.  Sometimes it's just a few scattered vesicles in the same area. I've had Drs say eczema or herpes. My next step is to find a dermatologist familiar with dh. Thanks for the input.
    • DH can look like that but other things can as well. It would help if you described the way it acts/presents. You can get a dh biopsy. Read threads in this section to find out how the biopsy is done correctly. 
    • my celiac was triggered by pregnancy.  had no clue.  symptoms creeped up (started with indigestion, deemed as 'colitis' or 'ibs') but eventually all the ones you mentioned above all joined the party.  sounds like you are headed in the right direction.  one of the points of diagnosis is the reaction to the gluten-free diet.  keep digging.  half the people on here don't have a firm diagnosis (science really needs to catch up with this disease)  and a false negative blood test is fairly common, for whatever reason - if you've not been eating gluten every day for like 8 weeks, it may not detect antibodies, which is what these tests are measuring.  sorry you're having this dilemma!  hope you find some answers.
    • tom & chee!  good to know   they grill the sandwich on a separate pan?  or do you just order soup and salad.  so cool to find more places to eat out!!
    • Hi everybody,  I have had symptoms of Celiac since mid pregnancy and they have gotten worse over the last 5 months post partum. I have constipation, periods stopped, extreme fatigue,  joint pain, weak muscles, dizzyness, migraines, light sensitivity,  pins and needles in hands and feet, elevated TSH, depreason and anxiety. Was put on thyroid meds but it didn't help any of my symptoms. My doctor told me to try gluten free and reintroduce it. I tried it for 2 weeks and started feeling quite a bit better, then reintroduced it and felt worse than ever! It's definitely a gluten problem. She suggested I get the Celiac panel run so I got tested for Ttg iga, DGP igg and EMA all came back NEGATIVE! by this point I had only reintroduced gluten for a few days. She said my antibodies shouldn't go down by much in this time frame. Should I push for a referral to a GI doctor? I don't know why I feel the need for diagnosis? Probably my mother in law laughing when I said I can't eat gluten anymore and she tried to offer me things like donuts, saying it's just a little.  She just doesn't get it. So now, do I suffer for 6 weeks to get the biopsy or just stop eating gluten and be done with it.  I have also noticed while introducing new foods to my baby that he throws up whenever I give him anything wheat based. I doubt they can diagnose a baby and I refuse to damage his intestines for a diagnosis.  Maybe I should get my daughter tested as well? She is 3 and has been complaining of upset tummy and is frequently constipated. She is growing well though but is also quite thin. She is not a big eater. She may be constipated because she holds it. She is afraid to poop on the potty. Since I have had symptoms for only about 10 months, could there not be much damage yet? Sorry for the long post! 
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