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Newbie Here - Plenty Of Problems
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Hi everybody,

Im 22 year old male from Australia and have been having problems with my stomach for about 8 years! Over the past 18 months things have goten worse and I have developed new intolerances which I don't think fit into the Celiac folder,

I'm finally getting tested for Celiac disease after years of pain, so hopefully I will have a diagnosis I can deal with! The last few docs have said Irritable Bowel or "I don't know, you must have had a bug" Very frustrating, I'm sure you have all had similar experiences.

Very recently (promoting my trip to the doc today) I have been experiencing a severe lack of energy, I've been getting out of breath just getting out of bed or walking up the stairs. then my heart races for a few mins.

My intolerances include

Wheat

Flour

Dairy

Eggs

Red Meat (in large enough doses eg. a steak)

Rice - both white and brown

Anything deep fried or oily

When I eat enough of any of these foods I get bloated, stomach pains, occasionally diarrhea and sometimes a red patchy rash on my hands and arms.

I'd really appreciate any advice or help you could give me!

Thanks for your time.

Donovan.

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Omg, you sound like me, except Im female and 24. Im just now getting to my new doctor(who listens) to see if he can run some blood work. In the past when I went(17yo), they treated me like I was a hypochondriac! I felt SO belittled that I never went back. One doctor did want to diagnose me with Fibromyalgia(20yo), but because I didn't want to take the antidepressants that she wanted to prescribe me, she said that I didn't want to receive treatment!!! It's very aggravating to be so young and to be treated like that. I feel like I've been suffering my whole life. I can't get to the doctors until the 22nd, so for now Im just hanging in there. Im also going to do some testing from enterolab to see if I have any other intolerances/allergies other than gluten as well, so I can eliminate those as well when I change my diet. Maybe you should check that out?(enterolab.com) I too get the most annoying itchy skin ever, with little bumps and blister like pimples(only a couple random ones on my body) and it's after I've had glutenous foods. Beer REALLY makes my skin flare up head to toe-but it burns for a few days and then gets itchy. I also get very winded...going up the stairs, getting up from a sitting/laying position, standing too long...my heart races and I have to catch my breath. Im not sure if it's related either. I hope you feel better and start finding answers soon too!! :)

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I recall having problems making it up the stairs at seemingly random times. I also had total lack of energy. I was deficient in many nutrients. Carefully selected supplements, recommended by my chiropractor helped me with those problems. I think that celiac was a main root of my malabsorption and poor health.

I hope you will find some answers and fast. What you are going through isn't the funnest! Get well.

Diana

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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