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Casein Intolerance


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15 replies to this topic

#1 peeptoad

 
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Posted 08 January 2013 - 06:16 AM

Does anyone else also have casein intolerance? If so, what are the typical symptoms? Are they similar to gluten intolerance?
How does one know if they are casein or lactose intolerant? (maybe that's too many questions at once, but I am confused).
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#2 GFinDC

 
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Posted 08 January 2013 - 09:15 AM

Hi Peeptoad,

Casein is a protein in dairy. lactose is a sugar. When you eat hard cheeses, you are mostly eating casein because the cheese making process removes the lactose. So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance.

Symptoms are variable, but digestive upset is one that is somewhat common.
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Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#3 peeptoad

 
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Posted 09 January 2013 - 06:01 AM

So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance.

Symptoms are variable, but digestive upset is one that is somewhat common.


Thank you! That's a good idea to test for casein intolerance... think I'll give it a try.
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#4 dreacakes

 
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Posted 09 January 2013 - 12:07 PM

I'm casin intolerant. For me, my symptoms are kinda like a mild version of getting glutened, a little GI upset, a lot of brain fog and that lovely "been hit by a bus" feeling.

Personally, I am only sensitive to cow's milk. I can eat goat and sheep (as long as it is grassfed.) You might want to try a nice goat cheese and see if you can handle it. :)
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Suffered years of brain fog, back spasms, nausea, and recurring connective tissue pain and injuries. After years of misdiagnosis, I did my own elimination diet and discovered a severe reaction to wheat gluten and casein. After going on a grain free, nightshade free, Paleo-ish diet, my symptoms are nearly gone, and I FINALLY KICKED THE BRAIN FOG!
Cheers to health! <3

#5 peeptoad

 
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Posted 10 January 2013 - 06:04 AM

Thanks dreacakes. I do eat goat cheese (and other dairy) normally, so maybe if I eliminate just cow it will help me figure things out. I also read that most dairy (cow) problems come fro holstein and that milk from Jersey cows might not be a problem (something genetically is different about the milk they produce I think?)... might try to find some Jersey cow substitutes, although I'm not sure if they are labeled differently from other products.
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#6 Findin my way

 
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Posted 11 January 2013 - 05:24 PM

Oh boy do I know about casein intolerance. I gave up dairy about 2 months after gluten. That was in the summer. Over the holidays I mistakenly had some real cheese. I thought the gluten free pasta dish I bought had the vegan cheese. Well I didn't react too badly so I had cheese again the next day, then the next. Christmas I had trifle with mascarpone cheese and whipping cream. (I made it, so I know it was gluten free) By then my gums were inflamed, I was bumping into things again, constant headaches, tinnitus worsened, slurring my words, tingling in my hands worsened, I couldn't sleep and my skin became really itchy. So for me, I'd say it's pretty much like a glutening. It took over 2 weeks to recover. I'm too afraid to try sheep or goat cheese. Maybe after I've had time to forget how bad I felt. B)
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#7 Seifer

 
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Posted 13 January 2013 - 12:29 AM

Anyone had any luck with raw dairy? I thought I was fine trialing raw grassfed cowcheese yesterday but then the itching, nausea and bloating came back. I guess I'll try to find raw grassfed goat/sheep-cheese next. Man it's so convenient being able to eat cheese, a lot less cooking involved
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#8 chai

 
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Posted 13 January 2013 - 04:10 PM

for me casein reaction is the same as eating gluten as well. As a child my mom would still feed me goats milk and cheese but now i find even that will set me off. best advice is to pick a time when its not inconvenient to get sick and try to test goat and cow milk.
good luck. hope you can still eat some cheese. If not, i find Daiya cheese is great for pizza and other hot dishes. :)
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#9 peeptoad

 
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Posted 16 January 2013 - 07:38 AM

Thanks Chai.

I'm going through a LOT of work-related stress right now and, mentally, I don't think I can deal with yet another dietary restriction. I'm definitely going to try a dairy-free trial when things calm down at work (hopefully in the next month or two) and will test out both sheep and goat products, as well as aged cheeses (to see if there is possiblity of casein intolerance). I have been experiencing some symptoms that would lead me to believe one of those 2 dairy sensitivites is a possiblity: over all body itching with no rash is one, plus I ate yogurt the other day after not having it for quite some time and had moderate GI problems immediately afterwards.
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#10 peeptoad

 
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Posted 25 March 2013 - 07:59 AM

I finally went dairy free last week. It's been almost 8 days and so far I have not noticed a real decline in the symptoms I was having (chronic phlegm/post-nasal drip, etc). I'm going to give it another day or two and then re-introduce hard cheses to see if they bother me. If no problem there, then I'll go back to my nomral gluten-free diet and see how it goes.


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#11 mommida

 
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Posted 25 March 2013 - 08:12 AM

This is actually true!  I was talking to elder milk farmer's daughters and they were telling me about the finer points of milk.  (OK so I nearly blanked out from boredom but did manage to retain some information.) :rolleyes:

Different breeds of cows are known (actually bred for) the small differences to their milk.  i.e. Higher fat content in this breed opposed to that breed.

Pasturization changes things A LOT.

The food the cows eat makes a HUGE difference.  The farmer's know the taste between early season hay and late season hay feedings by taste.  (That is also logical, because the totally knew when those cows got into the onion field too. :wacko:

 

Now you can't have any doubts that I am living in the Midwest! ;)

Thanks dreacakes. I do eat goat cheese (and other dairy) normally, so maybe if I eliminate just cow it will help me figure things out. I also read that most dairy (cow) problems come fro holstein and that milk from Jersey cows might not be a problem (something genetically is different about the milk they produce I think?)... might try to find some Jersey cow substitutes, although I'm not sure if they are labeled differently from other products.


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#12 peeptoad

 
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Posted 27 March 2013 - 05:31 AM

Started eating hard cheese (fresh parmesan, etc) yesterday morning. Been about 24-36 hours and so far no ill effects. I guess I will re-introduce other dairy tomorrow and see what happens. It's not looking like dairy is a major issue for me (aside from drnking a full glass of milk, which I haven't done in about 20 years).


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#13 pricklypear1971

 
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Posted 27 March 2013 - 07:09 AM

I finally went dairy free last week. It's been almost 8 days and so far I have not noticed a real decline in the symptoms I was having (chronic phlegm/post-nasal drip, etc). I'm going to give it another day or two and then re-introduce hard cheses to see if they bother me. If no problem there, then I'll go back to my nomral gluten-free diet and see how it goes.


Phlegm/post nasal drip.

Have you tried allergy meds?

It is allergy season and they can literally give me a fever (cedar).
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#14 peeptoad

 
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Posted 27 March 2013 - 08:29 AM

I have tried allergy meds: Benadryl, Sudafed, etc. None if it helps. I've had this chronic phlegm/pnd for about 15 years now and I'm not exxagerating. It started when I was in the Pacific Northwest and I've since lived in Southern California, and now the northeast and I still have it. :(

If dairy turns out not to be the culprit, then it is something I can live with, but it really is a head-scratcher for me. One thing I know for certain: the phlegm started after I had mononucleosis in late 1996. I recovered from the virus fine, but the phlegm has remained ever since.

 

Phlegm/post nasal drip.

Have you tried allergy meds?

It is allergy season and they can literally give me a fever (cedar).


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#15 cavernio

 
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Posted 27 March 2013 - 04:03 PM

Unlike lactose, there are multiple different caseins. I remember reading that only 2 types seemed to cause reactions in celiacs. In any case, different types of milk will probably have different amounts of them.


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