Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

A Thought On Supplements
0

6 posts in this topic

hello there. I've just been DX - the result of my bioopsy came in today and confirmed I'm a 3.b marsh celiac. As expected (all the bloodwork was positive).

This post is just a thought about supplements. I did ask my doc, and he said that my body will start to absorb nutrients on its own when I'm healing, and until I'm healing, my bowels would not absorb supplements anyway as they don't absorb nutrients from food. This makes sense to me - I wonder anybody had any thoughts about this?

alesusy

0

Share this post


Link to post
Share on other sites


Ads by Google:

Here was my regular doctors thoughts on it and I think, for me , it made sense.

You have 16-20 feet of small intestine. It is unlikely that every square inch is too damaged to absorb anything. celiac tends to be " patchy". Even if only 20% of your intestines are absorbing nutrients, you want to make sure that 20% always has some to absorb. There are a few vitamins that are small enough to be absorbed thru the skin in your mouth. B12 is one.

1

Share this post


Link to post
Share on other sites

Some supplements are also available in liquid form which should be easier to digest. Another aid in getting the nutrients into your body is digestive enzymes. Part of the lack of absorption is that the food is not broken up enough into small chain fatty acids to pass through into the blood stream because of the negative influence gluten has on the pancreas and its output of enzymes. So supplementing with pancreatic enzymes helps break down both regular food and the supplements you take to help you get the nutrition out of them. It is a bit of a catch 22 at first but if you make enough nutrients available in the right form you will eventually start absorbing them. Some of them will undoubtedly be wasted, but in the case of something like Vitamin D, you don't want to leave your body without its availablility for too long or you are risking bone loss and lots of other negative effects. Again, the Vit. D available in gel caps in liquid form would be better absorbed, I would think, than regular tablets.

1

Share this post


Link to post
Share on other sites

My life was saved by supplements, before I knew to go gluten free. Special tests determined exactly which nutrients were needed for me. Interestingly enough, magnesium, potassium, vitamin B, were among them. They were doctor recommended supplements and a high quality product designed for max absorption.

By life saved I mean: My orthostatic blood pressure had an unhealthy curve. When I rose up after lying down the blood pressure would plummet and stay down. My blood pressure was 180/115 when resting. The supplements brought the orthostatic blood pressure to a normal curve. This meant it started low, went up as I stood, and recovered after a minute or two. Over time, my resting blood pressure came down to 110/70. I don't recommend just supplements, and not going gluten free, but high- quality- supplements, carefully, selected can do wonders.

PLease be careful with supplement selection. One can do several kinds of tests to determine their needs.

0

Share this post


Link to post
Share on other sites




My life was saved by supplements, before I knew to go gluten free. Special tests determined exactly which nutrients were needed for me. Interestingly enough, magnesium, potassium, vitamin B, were among them. They were doctor recommended supplements and a high quality product designed for max absorption.

By life saved I mean: My orthostatic blood pressure had an unhealthy curve. When I rose up after lying down the blood pressure would plummet and stay down. My blood pressure was 180/115 when resting. The supplements brought the orthostatic blood pressure to a normal curve. This meant it started low, went up as I stood, and recovered after a minute or two. Over time, my resting blood pressure came down to 110/70. I don't recommend just supplements, and not going gluten free, but high- quality- supplements, carefully, selected can do wonders.

PLease be careful with supplement selection. One can do several kinds of tests to determine their needs.

I strongly agree with you 1desperateladysaved - supplements were my life saver before I even knew I had a gluten intolerance. I was so low in magnesium and strangely enough b5 and a few other b vitamins that I was almost crippled completely. The lack of magnesium actually gave me an EXTREME migraine condition that worsened gradually as I got older (21 years of this!) until I was actually completely housebound. After that I had to take almost DOUBLE the amount of supplements - which gave me my life back! It was like a miracle!!!!

This actually led to finding out I was celiac! the question was, "Why am I so deficient and have to take SO MUCH via supplement to keep up?!" Answer = your intestines can't absorb it! super damaged!

Hopefully once I'm more healed, I can pull back on the dosage.

GOOD LUCK TO YOU!

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,641
    • Total Posts
      921,558
  • Topics

  • Posts

    • They are big on selling books -. They try to spam a lot forums and FB groups. why can't you eat nuts, nut flours, quinoa, hummus and beans? I think I missed that. Those are a good source of protein.  If you can't digest lactose look for a lactose free cheese - like one made from yogurt. at first,I thought life was over.  But with a few years of experience, I have found it isn't that big of a deal. It helps to have an attitude of "I am not here for the food.  I am here for the wine ( or the company . ). Also helps to not care what people think - "I don't care if you think it's odd that I brought my own lunch to the funeral luncheon. "( And it helps that my lunch looks better than theirs lol.)
    • Gracey, It am a mother and I am going to give you some  valuable advice.  You need to keep and document everything related to your health.  Every lab test result, notes from your doctor's visits, etc.  Why?  Because only you are your best health advocate (except for your mom).  Doctors come and go, but it is up to you to manage your health.   When I changed insurance and doctors, I had copies of all my medical records in hand.  My new PCP was impressed.  There was no doubt that I had celiac disease, fractures, Hashimoto's and diabetes, anemia, etc.  I had physical proof.  As an result, she was quick to refer me to a new GI  and order tests to measure my progress  (e.g bone scans).  My family health history chart helped not just me, but other family members.   So, find out if biopsies were taken during your endoscopy.  Get the pathologist's report.  See if your doctor checked for other issues besides celiac disease.   Hugs!  
    • I don't do grieving, bad enough for something that's been taken away in the past but to know my future is pretty much gone now just feels too much. The only time I've forgot about the unfolding nightmare was during my hour or so of sport so need to cling onto that at the moment or I fear going to a very dark place indeed. Yup that SCD site is terrifying, still can't make up my mind if they're giving out useful information to genuinely help people or using scare tactics to sell their books etc. 
    • I agree with all the advice you have been given.  It is excellent!   I just want to add that things will get better.  There is a huge grieving process to go through.  Do not fight it.  You have a right to grieve as your health and lifestyle will change, but you will adapt!  Exercise gently until you feel a bit better.  There is plenty of time to exercise hard later.  Taken this advice from a gal who just rode 40 miles (no biggie you say) this morning  on her bike through the Santa Ana winds (better known as the Devil's winds!).  But I am three years into my recovery.  I took it easy the first six months because I was anemic.  I teach few exercise classes, bike, swim and run and I am in my 50's.   The SCD website?  It can scare the (bleep) out of you.  There was one point that I took from the site and that was to stick to whole nourishing foods.  No rocket science -- just common sense.    
    • Thanks for the replies so far everyone, much appreciated Great, another doctor gets it wrong, how many more times can they make a mess of this diagnosis process?! Bloating had gone down a bit in these first few days of cutting the gluten so I guess expect that to come back. It's one way to have a farewell tour of the gluten foods I guess - if a little or a lot makes no difference may as well go all-in... The doctors didn't diagnose this at all, Google did. If I trusted in the health professionals I'd be blaming the symptoms all on stress and having counselling for it whilst the fire raged on inside me due to a clinical condition they'd missed. Just glad one of doctors agreed to run the test on second time of asking to keep me quiet as much as anything. Believe me I've read that newbie thread multiple times, as well as numerous others around the web. Been doing nothing but since Tuesday when the blood test results came back and each time I go into the comments sections a little bit more of me gives up inside. Seems so many don't ever heal and so many associated complications too. The reality looks bleak apart from a lucky few it seems. In the nicest possible way the vegetarian choice is non-negotiable, it's a core part of what I believe and the thought of eating any form of animal \ fish flesh would make me physically sick (sorry meat eaters) so will have to find some way around it, how I don't know yet. Perhaps lots of this... http://www.pulsin.co.uk/pea-protein-isolate.html The cooking bit is a concern as it's something none of us do well at home, adds to the feeling of being completely lost right now. I kick myself for the decision that lead to the stress as I could've avoided all this. The only thing I can cling onto there is that I was having some pains in the side before that time which I blamed on a muscle strain... maybe that was the early stages, in which case I could feel a bit better knowing it had just come on gradually. With the biopsy and gluten from what I read the villi take a long time to heal up so they'd still see that. With the blood test result as definitive as it was surely the disease is pretty much confirmed? How can it heal enough for non eating gluten to throw a biopsy result yet on the flip side take over a year to heal (that sounds like the best case scenario time-wise from what I've read). Not suggesting anyone is wrong for one second but need to understand how that works with what's going on inside to make any sense of this situation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,644
    • Most Online
      3,093

    Newest Member
    Jross69
    Joined