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Simply Celiac?


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6 replies to this topic

#1

 
AmandaD

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Posted 09 January 2013 - 09:50 AM

Guys,
I'm curious. I know some of you - and you know I'm a biopsy diagnosed celiac (have been for almost 10 years). I go in regularly to get looked at by the doc and seem to be healthy.

Does every celiac get a zillion other autoimmune diseases? Or can someone just have celiac?

I know that it happens - others get Hashimoto's etc...but does anyone on here simply have celiac disease?

Thanks for understanding,
Amanda
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Amanda
Positive TTG 9/05
Positive endoscopy 9/05
Doing well with "Sprue"

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#2

 
kareng

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Posted 09 January 2013 - 09:52 AM

Right now, I just have Celiac (cross my fingers, etc). :rolleyes:



Pos blood & biopsy - 3 years
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#3

 
AmandaD

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Posted 09 January 2013 - 09:53 AM

LOL. Cross my fingers too.

Right now, I just have Celiac (cross my fingers, etc). :rolleyes:


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Amanda
Positive TTG 9/05
Positive endoscopy 9/05
Doing well with "Sprue"

#4

 
LFitts

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Posted 10 January 2013 - 12:05 PM

My daughter only has celiac - diagnosed by biopsy, antibody tests, and genetic test. That's enough and I hope that's her only problem! We are strong and healthy and want to stay that way!
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9 year old daughter diagnosed celiac November / December 2012
Postive endoscopy / biopsy, positive antibody test, positive genetic test

She's been gluten free since diagnosis. I've been gluten free with her since Jan 2013.


#5

 
notkuroda

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Posted 10 January 2013 - 12:57 PM

my wife has Hashimoto's(hypothyroid), has had it all of her life, her GI doc said it was caused by Celiac, which she was only diagnosed with about 4 years ago
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#6

 
nvsmom

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Posted 10 January 2013 - 07:36 PM

I have the zillion, or at least it feels that way. LOL ;)

As far as I understand it, those with untreated celiac are more likely to get multiple immune problems because you are keeping your body in a constant state of inflammation while eating the gluten. Other AI disorders will wax and wane but if a celiac eats gluten, he's fanning the autoimmune "flames" as it were.

I have 3 or 4 AI diseases but I'm certain I've had celiac for over 30 years without realizing it; most of those other AI's cropped up when I was 20+ years into eating gluten AND after a nasty virus like EBV which can kick start an AI disease which may have otherwise stayed dormant... at least that's how I understand it, and I'm no expert. ;)
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"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

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#7

 
GottaSki

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Posted 10 January 2013 - 07:54 PM

IMO it is a very complex equation. Some factors include but are not limited to:

Length of time undiagnosed/misdiagnosed.

Level of immune response within one's body.

Level of inflammation throuout the body.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)





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