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Help- Eczema After Stopping Gluten :(
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Hi everyone...I'm desperate for answers. I was diagnosed at the end of October. About 3 weeks AFTER I cut out the gluten, I developed Eczema on my face. I also cut out all soy, as I learned soy often has very high levels of contamination. I have never had Eczema before now...and it's only getting worse :(.

I've heard that after you cut out gluten symptoms can sometimes get worse before they get better. However, my symptoms (hives, bloating, lethargy) have gone away.

Has anyone else experienced Eczema after the fact? (or any new symptoms?). I feel so discouraged and don't know who to turn to anymore :/.

Thanks...

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Are you sure it is eczema and not dermatitis herpetiformis (DH)? DH is the skin form of celiac disease, It is normally intensely itchy and stinging, and tends to scar. It often is characterized by blisters or pustule like heads. DH can linger in the skin (and even appear) after the antibodies have departed from the blood stream per se. It takes a long time to completely recover from it, and it can be aggravated by iodine.

There is a whole section on the forum devoted to DH, including a thread entitled DH Photo Bank where you can compare your rash to that of others and see if it is similar.

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Are you sure it is eczema and not dermatitis herpetiformis (DH)? DH is the skin form of celiac disease, It is normally intensely itchy and stinging, and tends to scar. It often is characterized by blisters or pustule like heads. DH can linger in the skin (and even appear) after the antibodies have departed from the blood stream per se. It takes a long time to completely recover from it, and it can be aggravated by iodine.

There is a whole section on the forum devoted to DH, including a thread entitled DH Photo Bank where you can compare your rash to that of others and see if it is similar.

Thanks so much for you reply! My doctor told me it was Eczema...but I'll still check out those forums for sure. It doesn't sting, itch, or have blisters. Basically, my face is just very dry and it gets red and forms tiny little bumps in between my eyebrows, the sides and beneath my nose and my chin. So, do you think it started as a reaction to all the gluten still coming out of my system?

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It is really hard to say what it is, ken. So many of us have so many different skin reactions to things we eat. Did the doctor give you anything for the eczema, and if so has it helped? If it does not get any worse you might try to wait it out since at the moment it's just irritating. But you are at about the point where other intolerances often come to the fore after the removal of gluten. You might experiment with your diet and keep a log of food and symptoms to see if you can pinpoint it. :)

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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