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Supporting Others Even When We Don't Agree With Their Treatment
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I am finding it hard others find it hard to support people that have a different approach to health care. .

Should we only talk about things with people who have the same provider as us?

Can we trust the other person with decisions about their own health provider, or to seek out information on their treatments or should one always persuade them toward what they are doing?

Are their many ways to healing, or is there only one way?

Here are things that have been helpful to me

Someone Listening to my situation

Someone showing compassion for what I have suffered.

Friends that say "It sounds reasonable what you are doing".

Others say, "You just have to keep doing what you need to do to stay well.: (Encouragement)

Perhaps my favorite is, " I have been through that, it has happened to me. Here is what I did"...

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Here are things that have been helpful to me

Someone Listening to my situation

Someone showing compassion for what I have suffered.

Friends that say "It sounds reasonable what you are doing".

Others say, "You just have to keep doing what you need to do to stay well.: (Encouragement)

Perhaps my favorite is, " I have been through that, it has happened to me. Here is what I did"...

These are the type of posts that are most common on this board.

Even posts that argue passionately come from a root of caring and wanting to help or prevent folks from trying things that have failed for others.

When I have been feeling my worst I have misinterpretted intent as this format is easy to misun derstand folks as you cannot see their exp<b></b>ressions, mannerisms or intended humor through the typed response.

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I personally believe it is good to be exposed to a wide variety of healing treatments and methods. We are all free to accept or reject that which is or is not applicable to us. And we should all have the right to point out those treatments which we have tried which have failed, and also those treatments which do not appear to have any evidence to support them.

We should, as you point out, and I believe most posters on here do, encourage those who are having difficulties and make suggestions.

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I personally welcome any and all suggestions/ experiences as long as they come from a place of caring-- which they are the vast, vast majority of the time. You never know what might resonate with someone.

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I believe in using whatever works and sadly traditional medicine is falling way down the list for me. Doctors only seem interested in getting you in and out and with a prescription for something? Can you believe I've seen two different GI doctors in the past for long periods and neither one ever held any interest in what I eat or what might be causing the problem, just about taking something to mask over the symptoms. Sorry about the little rant.

I appreciate advice from everyone and there is nothing I wouldn't try. I've done acupuncture, hyponosis, meditations and various "miracle" drugs on the internet that end up being a "rip off". I went for a check up with my primary doctor a few months back and he had no clue what a "functional medicine" physician even was? I took him some of my lab test results and I had to show him how to read them and even then he dismissed them as unreliable, like they do for any non AMA test or supplement. We would be so much better if doctors cared about healing you instead of just making money and furthering the millions in the phamaseutical industry.

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    • I agree, it's very unlikely she doesn't have celiac disease.  Can you find a local celiac group to get a doctor recommendation from?  They might have the best idea of a local doctor who is familiar with celiac disease.  There is also a doctors sub-section of this forum which might help find one.  http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
    • Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?
    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
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