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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Or Milk Allergy Having Hard Time Telling
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6 posts in this topic

After a heavy spell of symptoms right after Xmas from eating angel food cake(real whipped cream,donuts,cinammon roles) my body shut down.It took a few days though of symptom after symptom.It started with a neck tension,upper back,shoulder tension.Then heart was irregular,shortness of breath,slight wheezing snd little cough,and cold hand/feet plus tired.Well as you all know I went to docs yesterday feeling pretty good but described all my symptoms that have been affecting me all year 2012.Digestion problems (constipated ,or opposite,smelly BM like sour milk,sinus issues,allergy issues,muscle pains etc.He mentionned celiac.Long story short Ive been off gluten two weeks,been feeling pretty good so I decided yesterday ,hey ill have a coffee(I quit that to last week).I always take 1 cream,1sugar with coffee.I ended up waking up again slightly nervous (had coffee at 1pmorevious day).Today I feel weird and had that sour milk breath and I'm constipated again plus real gassy.But only today? And I are fruit plus pounded water for breakfast.I felt better eating saloman and broccoli for lunch.My question is can a milk allergy kick in only the next day and can it cause the above symptoms I mentionned? Because I know I didn't eat gluten yesterday or the day before? Makes sense to anyone here? I'm confused? I didn't super flare up like at Xmas but had mini symptoms?

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Hi LiquidC,

It is possible you are having a reaction to dairy as well as having celiac. Many celiacs have lactose intolerance at first because the damage to the villi in the gut impairs the ability to produce lactase enzyme. The lactase enzyme made by the villi is what digests the dairy sugar (lactose). Without lactase the bacteria thrive and cause GI symptoms.

You could also have a casein intolerance, or a milk allergy.

Or you could just be having an off day.

If you want to test your reaction to dairy, you can eliminate all dairy for a week or two. If you are feeling better then, go ahead and try some dairy and see what happens.

You can also ask your doctor to do a lactose intolerance test and or a dairy allergy test.

We end up using our own bodies to test foods a lot. They don't pay us any money to run food tests on our bodies but the don't charge us anything either. So you can do these kinds of test on any foods. You could do a search on elimination diet on this site and find more ideas about them.

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If it was not immediate, it would be considered an intolerance. As stated, it very well could be a dairy issue because of Celiac damage or a dairy intolerance all of it's own.

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What happens us ill drink a coffee with cream then ill get that caffiene rush.hours later sometime the next day ill get the sour milk taste I'm my mouth,tense muscles ,gassy, lethargic

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Maybe skip the caffiene for a few weeks?

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What happens us ill drink a coffee with cream then ill get that caffiene rush.hours later sometime the next day ill get the sour milk taste I'm my mouth,tense muscles ,gassy, lethargic

That certainly sounds like a casein issue. I get all of that, minus the sour milk taste, when I have dairy. I just don't have dairy anymore. There are all kinds of milk alternatives on the market now, so I really don't miss it. Cheese on the other hand....

As for my morning coffee I use a coconut creamer. It's specially designed for coffee. It doesn't taste like coconut. There are soy versions also. I can't do soy, so that's why I use the coconut one.

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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