|
|
25 replies to this topic
#16
|
|||||||||||||||
Kipenzi
Posted 11 January 2013 - 08:21 PM
...depends....whatdja have for lunch??
look... some days are just those kinds of days.I was the healthiest sick person many doctors in many disciplines met for nearly three decades....the first symptoms I approached a doctor with at 18 were the same ones I had at diagnosis - just to a far worse degree. since all the tests they chose to run were normal it must have all been in my head --- right?
wrong --- it was all in my gut -- at least we know better now
It is so reassuring know to know we aren't crazy. Well, not that kind of crazy. 
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
"Migratory flight complete."
Posted 12 January 2013 - 05:35 AM
Isn't that the best? Being referred to a shrink was one of my favorite highlights.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
Kipenzi
Posted 12 January 2013 - 01:25 PM
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
Community Member
Posted 14 January 2013 - 04:59 AM
I had a similarly awful experience with antidepressants. This is long before I was referred to a shrink though. After a truly awful string of events, I was suffering from very real depression. Instead of delving into what was causing it, the doctor immediately put me on Zoloft. (What I needed was therapy.) I didn't end up getting angry, quite the opposite in fact. I stopped being depressed. I stopped feeling anything at all, I wasn't sad, happy, angry, I simply didn't feel. I wasn't even scared about the fact that I didn't have emotions any more. I stopped taking the medication immediately, cancelled my follow up appointment and was back to my old self in no time.
I will say that I was in fact suffering from very real depression at the time. But meds weren't the answer (for me), I had life issues, it was temporary and I needed to learn to deal with it. Once I did deal with it, I was fine. If you need meds, I don't think they're evil. I just think that recommending someone with life problems and medical problems to be medicated into oblivion is irresponsible medicine. We aren't crazy, we're celiacs. We just need a doctor to listen to us and test us, not shoo us out the door like nutjobs.
Advanced Community Member
Posted 14 January 2013 - 07:07 AM
the thing that got my wife to really figure out her disease was that she was suicidal. I told her this wasn't her, she wasnt crazy, there was something physically going on with her. Turns out when you don't absorb nutrients from food you can get kinda bummed out! Go figure
Advanced Community Member
Posted 14 January 2013 - 08:57 AM
Let them eat gluten-free cake!
Posted 14 January 2013 - 09:00 AM
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
Advanced Community Member
Posted 14 January 2013 - 09:12 AM
Warrior Princess
Posted 14 January 2013 - 09:14 AM
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
Celiac.com - Celiac Disease Board Moderator
Advanced Community Member
Posted 14 January 2013 - 09:40 AM
Thanks IH. Thats exactly what I am going to do. Water, rest and Lifetime movies today.I feel pretty lousy if I get hit, Mo. If your DH is blossoming, maybe you did get CCed.
Drink water, rest up and it will pass soon. Sorry, hon.((hug))
0 members, 0 guests, 0 anonymous users
 |
