|
|
Celiac.com Sponsor: |
Are You Beyond Your Past Intolerances? Needed Answers For How To.
#1
Posted 11 January 2013 - 07:37 PM
I am here to ask to hear from someone who has been there done that. We need to know how you did it.
Sometimes I am feeling so well lately, I am wondering if I have done it, but I want someone gluten free longer than 7 months.
I hope all will get there one day: Beyond intolerances.
If you are still in the process, you might describle how you are trying to overcome it.
Diana
#2
Posted 11 January 2013 - 08:19 PM
live in Okinawa, Japan; hope to resume training for ultra-marathon soon
casein-free, legume-free; 99% fructose-free
I cope by drinking artisanal teas, hand-picked in Taiwan, all gluten-free
#3
Posted 11 January 2013 - 08:30 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#4
Posted 12 January 2013 - 06:54 AM
Mid-May I plan to trial many of my problem foods with the exceptions being gluten and histamine containing and histamine inducing foods.
Hang in there Diana - it really does get better and going without many foods doesn't bother me now that I'm feeling better - you will get here too
Edited to add...just read your tag -- sorry guess I should not have responded as I have not overcome many intolerances -- I just have every reason to believe I will.
Edited by GottaSki, 12 January 2013 - 09:25 AM.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#5
Posted 12 January 2013 - 11:02 AM
How did I do it? By sticking to nothing but whole foods for a year. Then I added back one thing at a time, and only trying a new food once a month. And I really think that the fact that I went totally organic for the first six or eight months really helped.
#6
Posted 12 January 2013 - 12:02 PM
of all things tomato a couple years ago. Gave myself a year off, tried it again, was good.
Sometimes, you just have no idea.....
#7
Posted 12 January 2013 - 12:26 PM
I can eat small amounts like milk in my tea but can't eat ice cream, drink a glass of milk or eat anything with a big dairy hit. However, I am not too bothered by this because dairy isn't always the best thing to go heavy on. If you have asthma, which I don't, or have allergies where you can develop congestion from time to time, dairy is something to be avoided as it's very mucous producing. I feel clearer in my lungs and head when I don't eat dairy. Besides, there are alternatives like soy milk and almond milk, which I like so it's not a problem for me.
Other than that, I have healed to the point where I am doing well and rarely get sick from GI issues anymore.
#8
Posted 12 January 2013 - 03:55 PM
I don't think of this as being "restrictive," because it certainly beats being crippled by neurological problems, so much as it is just being time consuming. I have family members who have actual food allergies and who must avoid other categories, which I can eat, so I think I'm fortunate, and I think that is actually a bigger problem, a sort of mental trick. They probably think the same thing. To each their own...
#9
Posted 12 January 2013 - 04:08 PM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#10
Posted 12 January 2013 - 04:22 PM
I fought very very hard to keep corn ( that did not work out so well
The key to getting "past" your intolerances? I would think it would be identifying them. Then eliminating them to allow your body to heal, then reintroducing them ( one at a time) to judge your reaction to see if it is now something your body can tolerate.
Not to be a downer but, I do not expect to " get beyond" most of my intolerances. I was undiagnosed for an extremely long time. There was a lot of damage . I have A LOT of intolerances. Most of them are here to stay.I live with that every day and I am OK with that because for the first time ( probably ever in my life ) I am healthy
I did get dairy and eggs back
Gluten free Oct/09
Soy free Nov/10
After a very, very long battle to keep dairy .I am dairy free
i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy .
Celiac :based on DH biopsy and diet response.
Hashimoto's thyroiditis disease . April/11
Diagnosed type 2 Diabetes March/13
#11
Posted 12 February 2013 - 12:41 PM
Gluten free / Dairy free / Caffeine / Almost sugar free / Tobacco free 2012. Corn free 2013
Vegetarian since 1986 / Asthmatic since 1990 / Migraines since 1998
Symptoms: Classical GI symptoms. Fibromyalgia. Odd pains. Bone aches. Severe headaches. Severe depression. Anxiety. Diagnosed with severe anaemia. Severe Vit D deficiency. Boderline Folate & B12 Defiency.
Since being gluten free... initially felt better for a month, am currently struggling with many more allergies to foods, such as egg, celery, oranges...
#12
Posted 12 February 2013 - 12:55 PM
Can have more sugar now that adrenals have improved: that includes fruit and processed sugar. Drastically reduced it for months.
Have discovered sugar delivered with starch/grain is not good. I have no "stop" button. Sugar with coconut/nut flour hits the stop button. Problem solved.
My gut is much better, energy better, no rash (unless I get a virus then it seems to flare just a tad, but nothing that stops me). I attribute the bulk of "feeling better/energy" to time, healing, and finally being able to work out. That said, working out has been an adventure with a few setbacks. But overall, I move forward.
I've been gluten-free almost2 years.
Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND.
Responsive to iodine withdrawal for DH (see quote, above).
Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!
#13
Posted 23 February 2013 - 06:08 AM
I have a concern that eliminating food could be conterproductive.. Someone might get malnourished as a result. That is why I was wondering if anyone recovered when they had very few things left in their diet. The whole thread has been interesting for me, though. I was intolerant to some degree to most things I was eating. Rather then just eat the ones Ihat I had left, I began a rotational diet. I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet. The rotational diet has done well. I didn't have an IgE reaction to anything, so that is why I was allowed to eat all of the foods. If a person has an allergic reaction, they would not have it in their rotation.
Any thoughts in these directions I would appreciate.
#14
Posted 23 February 2013 - 06:29 AM
My experience seems different from others here. It has been close to 6 years now.
I hadn't been eating dairy for years when I was diagnosed, but I was able to add it back after about a year. Then I started reacting to it again. I found some grass fed milk locally and I can drink that, but when winter comes, the cows get wheat and I can't drink it anymore. The same thing happened with eggs. I was told that I must be intolerant of nightshades because I reacted to tomatoes. Then I found someone at the market whose tomatoes I could eat. Unfortunately she wasn't there the next year, but I had planted some of my own by then. Same thing happened with rutabega, squash, potato, etc. I would get quite sick sometimes from other sources, but when I grew my own I was good.
As far a your questsion goes, I did seem to be able to heal with a limited diet. I paid careful attention to getting all necessary nutrients and that can be difficult with a limited diet. My diet is still pretty limited in the winter. It would sure be a lot easier if I could find more sources of food that I could trust.
It is really nice feeling this healthy.
#15
Posted 23 February 2013 - 06:43 AM
I found going organic resolved a lot of my issues . Meaning that it was the pesticides ,waxes ,additives and fertilizers I was reacting to rater then the food its self .
Buying local organic fresh foods has made alot of foods tolerable. Winter is tough but we deal ![]()
** just to add ** certain foods are off my consumable list permanently,,, meaning even if organic they are NOT something my body tolerates . Soy,Gluten,Sugar/Artificial sweeteners and grains are OUT of my diet .
Gluten free Oct/09
Soy free Nov/10
After a very, very long battle to keep dairy .I am dairy free
i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy .
Celiac :based on DH biopsy and diet response.
Hashimoto's thyroiditis disease . April/11
Diagnosed type 2 Diabetes March/13
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users








