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Weight Loss
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I'm needing some advice, and maybe some peer support. Right now, because I'm still waiting on my insurance to go back into effect, I don't know if I have Celiac, Chrohn's, or UC (or something else). However, regardless of whatever it is I do have, I'm fighting weight loss and the effects it has on my own self-confidence. When I started this weight loss thing, I weighed 140. I lost eight pounds and weighed 132. Now I weigh 136 only because I've increased my caloric intake per day. However, where ever I'm gaining it I don't know, and my biggest reason for wanting to gain weight is because my face is showing the full effects of the loss.

I used to be fuller in the face, and now its like the fat in my face is all going away. It's more narrow, and you can see sinking parts in between my cheek bone and mouth, if that makes any sense. It's not so bad yet that I think everyone notices, but I see it and I do. I'm eating more, yet I'm still losing in my face. I don't understand. My doctor told me men usually lose weight in their face and hands first, but this is getting out of hand.

You see, the problem is, if I weighed 200 pounds, losing a little weight wouldn't look so bad. However, I started out at 140! I've always been thin, small-framed, and losing weight for me doesn't look good. From what I understand, my steatthorea is the cause for my fat loss, since my gastro told me I'm only absorbing like 70 percent of my daily fats. But, something has to happen so that I start gaining back in my face...

If nothing else, if any one of you have ever had to deal, or know of somone that has had to deal with this same problem, please let me know because it really bothers me a lot. Thanks.

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I'm afraid that I had the opposite problem and held onto weight and swelling before my diagnosis but after I changed my diet, I lost wieght because (I think) much of it was swelling and inflammation. I lost weight around my face, but it was a bit puffy before and it is a healthier look now.

What did pop into my mind was a purely cosmetic treatment. I had a laser light therapy on my face to treat my roseacea (red splotchiness); the lasers zapped the surface veins but it sort of plumps up the skin in a "youthful" sort of way. For a quick, but expensive (about $300), treatment while you wait for your weight to redistribute itself, you might want to consider it.

I would also recommend that you stay really well hydrated and eat as much produce as you can; often water and diet can have a huge affect on our skin and health. Good luck.

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You say you are going to be tested for celiac etc, also make sure they test your thyroid levels. I had graves disease and lost 3 stones and was like a skeleton for awhile, was very gaunt in the face, my eyes buldged and was extremely anxious.

Hope you find out whats causing your health issues.

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what kind of fats, carbs and proteins are you eating?

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I eat basically whatever, or at least I did at the time I had been tested, which was like four months ago or so. At that time, I was eating a lot of out to eat food (I know, I know) just because it was easier for me. So, as for carbs, fats, etc. I can only say that I probably didn't have the best diet, but I always got away with it anyway since I have always been small framed and couldn't gain no matter what I ate. Now I drink 2 ensure's a day, which adds like 700 calories per day to my diet, and I try to eat less fattening foods - though not always.

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Okey I see a lot of weird stuff in that supplement like soy protein and omega 6 vegetable oils, both of which are known to surpress thyroid and metabolism, I would definitely focus on whole foods instead such as white rice, tubers, butter/ghee, coconut oil and meat, if I were to attempt to gain weight from underweight

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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