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Finally Some Improvement, Updates At 5
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5 posts in this topic

Well ladies and gents of the internets, I have a silver lining to my thunderstorm. First ill start off by saying a little more abt me. I'm 27 and have been controlled by nerve racking pain and nasty other symptoms for the last 7 years. I've had trouble gaining weight in the process and always seemed to be at a vitamin deficit. Well over the past 8 days I have given up gluten and been feeling so much better. I know that this is a very short period of time but hey happiness can be found in everything. Since giving it up I have actually been able to semi take back control of my life. Stomach pains are almost non existing and I actually feel great. My family told me that I am not as grumpy and even seem to be considerably more alert. I spoke with my doc who wants to do more blood work and recheck everything. She seems very hopeful that we might have finally found an answer to my issues. Forgive my extreme happiness, I feel like I would burst at the seams if I didn't tell someone. God knows my family and friends are tired of hearing about it. Sincerely, - a happy zombie.

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This is wonderful to hear.

Know that many of us improve right away and experience some set backs - just remember how much you improved in this short time and go easy - recovering Zombies need lots of rest and loads of whole foods!

Thanks for sharing - let us know if you have questions.

Hopeful for you :)

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Great! Keep up the good work. From another Zombie with a tired of hearing about it family.

I am not tired of hearing about it!

Diana

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"Recovering zombie"... LOL Love it! :P

Congrats on figuring it out for yourself and good luck with the gluten-free diet. I wish you continued success. :)

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Whew! I know what a relief that must be for you, to find an answer after all that suffering :) Make sure she does the testing to confirm your self diagnosis, and do keep us informed of how you progress. Fire away with any questions that come up.

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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