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Cross Contamination....suggestions Please!
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3 posts in this topic

Hello! I'm pretty positive my whole family has issues with gluten. We do not have a DX...only positive results from gluten-free diet. Myself along with my three children have been gluten-free for almost a year....with a few mishaps here and there. My husband only eats gluten out of the house with the exception of beer. I've posted about this on another post...my 10 year old son has been blinking his eyes and licking his lips until they are extremely chapped. This all started after returning home from a vacation in October. We were not gluten-free on vacation. (his twin was DX with a low wheat allergy and this is why we started gluten-free....he had a rash and going gluten free cleared it).

So, he has been blinking (hard blinks similar to tics) since October. We go back to eating gluten free and he finally stopped blinking on 1-4-13!! YAY!! :)

We went shopping and my husband wanted to go out to eat the next day (1-5-13). My husband called the restaurant (flaming amy's burrito barn)

and was told they had a few items that were gluten-free.

We arrived at the restaurant (after a few hours

of shopping and with starving kids) and the gluten-free

option is hamburger in a bowl topped with

lettuce and cheese. To avoid total meltdowns

(from all 4...lol, husband included) we ordered a

taco salad with chips. It was gluten-free but the chips

were fried in the same oil as gluten battered

meats....I know it was a terrible mistake! We left

and went to whole foods to do some grocery

shopping.....all 4 practically ran to the bathroom

as soon as we arrived ;) I'm dizzy and have a very noisy stomach. We leave the store and go to the next (approxamently 1 hour after eating). At costco my son starts blinking again and by Sunday his lips are chapped again. My youngest also starts licking his lips until they are chapped as well.

1-11-13 his blinking seems to be almost gone and lips are heeled again!

We have company over the next day (1-12-13) and I do all the cooking....but they thought it would be nice to bake gluten-free cookies and bring them over (gluten home). Well, blinking is back and lips are getting chapped again....ugh!

Now, is it possible to be more sensitive to trace amounts after being gluten-free for a year. Does this happen with NCGI?? Or could this be more like celiac??

I have my husband an appointment to get the full celiac panel done and made sure he has increased his gluten intake at work. He is eating two sandwiches, crackers, pretzels, and cereal daily until his test (next Friday) and he has gained almost 10 pounds (in 2 weeks). He is bloated, pimples everywhere, undigested food in stool, having muscle spasms in arms, and tired!

I do want to have the kids tested but I will wait for summer break. They are foggy brained when on gluten!

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Well, first off I wanna say good job so far. As my neice just reminded me tonight, just think... It could be worse. You sound like you are doing the right things. I don't know what works for everyone else, but I use a bit of kombucha when I think I've been "tainted". If you google it you might find some useful info. :)

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    • So I've been glutened....
      That sounds like a plan JMG.  If things aren't working then make a change, hopefully a positive change.  It seems to me we have more noticeable symptoms sometimes after being gluten-free a while.  I made a mistake last night and ate some tuna canned in water.  It definitely wasn't boring.  I usually have more sense than to eat tuna canned in water but screwed up last night.  They canned  it in broth of some sort.  Ingredients say vegetable broth and soy.  Yuck, not good for me.  It sure tasted good though, just ouch.  I am not saying it had gluten in it, but it does have soy and some kind of unnamed veggie monsters.  So it could be soy, or carrots or some other disgusting vegetable that got me.   Not all celiacs have additional food intolerances beyond gluten, but some do.  My gut could testify to that.  Anyway, if you have bloating, cut out all carbs and sugar for starters.  And try peppermint tea or Altoids.  Over here we have something called Pepto Bismol that helps soothe gut pain and another neat thing called aspirin.  And gluten-free beer as needed.  
    • Gluten free apparently not helping entirely
      Jean, Maybe your boss can find you a job in the office for a while?  It's worth asking maybe? It's not easy being on constant travel with celiac disease but it can be done.  Your effort to find safe food is going to be harder than most but it is not impossible.  But if you can't manage it you should really think about getting a non-travel job.  Your boss may be willing to work with you on an office position, even if it's temporary.  That would give you some time to look for a local job and also eat a safer diet. It's really up to you to control your diet and make sure it is safe.  If you can't figure out how to  do that while traveling you owe it to yourself to figure a way out of the travel. Celiac disease isn't always fun and games.  Not always.   I hope you find a way to improve your circumstances.
    • Gluten Free baby food pouches?
      Anyone know of any baby food pouches that are gluten free?  We love to have them on the go for our kids (not just baby), but I have no idea which ones to get now!  We used to get Meijer brand and Plum.   Thanks!
    • gluten free, oat free, egg free breakfast ideas needed for 6 year old
      Thanks for everyone's suggestions!  I think I felt at a loss when we had to cut oats- we used to do cheerios and oatmeal regularly and now those are out.  She has a sensitivity to oats as well as wheat/barley/rye. 
    • So I've been glutened....
      The bloating has, if anything, got worse. It seems better when I'm lay down, when I stand it gets worse. Although the lymph swelling has gone down so maybe I'm through the worst. Hope so anyway... I never used to get a great deal of GI symptoms. Certainly not so serious as the other stuff. It's making me wonder if I just react differently now having been gluten-free for some time. I've noticed lot's of you saying that reactions seem to change over time. Of course its possible the other stuff was masking the GI things. I almost dont trust my memory of those times anymore because a whole chunk of my life seems to have been lived through a brain fog. Tomorrow I'm thinking of going away for a couple of days, maybe just taking some ultra simple food with me so I can try and settle my stomach by boring it into submission      
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