Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Osteopenia - No Improvement In Scan Results
0

9 posts in this topic

Just had my check up at the Celiac Disease Center at Columbia University. I started with a bone scan after a year and a half wait since last one.

Unfortunately, my gluten free diligence, supplements, and organic whole foods diet, and exercise has not improved some of my density readings, specifically at the right hip.

My GI wants me to see an Endo with bone specialty.

has anyone had similar difficulty in improving bmd? I don't know if I am eligible for Forteo as I don't think I am at the point of fracture, but I am only 51 and don't want it to get worse or stay the same as it is. My T score for the neck of the right hip is -2.5

thanks for any feedback from those fellow sufferers.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Quincy.....I have not had a repeat bone density since my last one in 2011. Not in any hurry as it does take longer to build

bone in us 50 somethings than it does for the younger crowd. I am 53 and female. I have osteopenia in the hip and osteoporosis in the spine but am hoping that has changed for the better. I also take supplements and work out weight training in the gym twice a week. Can't do any more than that and I don't take any bone drugs as I want to see if what I do helps.

I am sorry things aren't improving yet for you but hang in there....it just might take longer than you think. I am interested to hear what the referral doc will have to say about it.

0

Share this post


Link to post
Share on other sites

..........but I am only 51 and don't want it to get worse or stay the same as it is. My T score for the neck of the right hip is -2.5

I'm a male/ 68 and yet to have a bone scan. I notice when I jog that my left hip begins to hurt after about 5 minutes. The right is OK. The pain comes and goes throughout a 30 minute walk/jog treadmill workout. What symptoms does a T- score of -2.5 have? Am I starting osteopenia myself?

Until I can get a scan, I'll err on the side of caution.

0

Share this post


Link to post
Share on other sites

I'm a male/ 68 and yet to have a bone scan. I notice when I jog that my left hip begins to hurt after about 5 minutes. The right is OK. The pain comes and goes throughout a 30 minute walk/jog treadmill workout. What symptoms does a T- score of -2.5 have? Am I starting osteopenia myself?

Until I can get a scan, I'll err on the side of caution.

Hi Opa,

The first test I had after my diagnosis was a bone density scan. I was surprised because I always worked out and felt strong. I was shocked to find out I had osteopenia. My first symptoms leading up to a diagnosis was pain in my right hip.

a score of -2.5 is borderline osteoporosis, so if my score was -2.6, for example, I would officially have osteoporosis for that particular bone, in my case the neck of the hip bone.

I would strongly advise that you speak to your doctor, or perhaps an endocrinologist, to have a bone scan done, though I don't know your diagnosis as celiac or gluten sensitivity.

0

Share this post


Link to post
Share on other sites

.................... though I don't know your diagnosis as celiac or gluten sensitivity.

Celiac for 30 years.

"Hear instruction, and be wise, and refuse it not." I definately will see a Doc. Thanks for posting this topic.

0

Share this post


Link to post
Share on other sites




Celiac for 30 years.

"Hear instruction, and be wise, and refuse it not." I definately will see a Doc. Thanks for posting this topic.

Opa3,

keep in mind, I went undiagnosed for probably most of my life, so the osteopenia was the result of malabsorption. You have been gluten free

for many years, so it would have to be assumed that you have healed and been absorbing calcium and vit D properly during that time. You

may be having muscle pain in the area.

0

Share this post


Link to post
Share on other sites

It might be an idea to check your Vitamin D, Calcium, Ionised Calcium and PTH ( several times ) - in case you have a Parathyroid adenoma causing the bone loss. Most Drs don't get Hyperparathyroidism at all - they still think it is a rare disease.. If they kept up to date they would find the stats are 1 in 250 woman over the age of 50 have HPT... which I would not call rare - would you ? Only one cure and chance to reverse the bone loss of HPT and that is surgery.

1

Share this post


Link to post
Share on other sites

Vitamin D level? Check that out before going over board on the Ca++.

0

Share this post


Link to post
Share on other sites

Finally, got a bone scan. :mellow:

 

I was Dx'ed with osteoporous of the lumbar spine (T-2.7), osteopenia of the left hip (T-1.7) and Femoral Neck (T-2.3).

Vit D was normal at 41.0 (range:30.0-100.0). The other bone nutrients calcium (serum=9.7) and albumin (serum=4.5) were normal. However, I still need to determine if an imbalance of phosphorous and PTH exist.

 

My PCP Rx'ed generic Fosamax, 70 mg, 1 tab/week. I opted to take Country Life's Calcium (1000mg)/Magnesium(500mg)/Phosphorus(500mg).  These Target-Mins are CGF.

Also, to boost Vit D level, I'm taking 1000 IU, 1 tab/daily.

 

Only time will tell if this treatment improves T values for me.  

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,535
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,640
    • Most Online
      3,093

    Newest Member
    Kasia2016
    Joined