Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does This Mean For Sure He Is Not Gluten Int/celiac?
0

7 posts in this topic

My 8yo ds was grain free for 10 months.

We added grains back in for 3 months.

He had blood work done but they forgot to order the celiac test.

He had stayed on grains up until a week before the 2nd test.

The 6 days before he had some quaker oats but nothing else until the day before.

The night before the 2nd blood draw he had a sandwich

The morning of he had a sanwich.

It was the best I could do because I thought we would be going off gluten very soon because he showed an allergy to wheat. Now we re still on grains until we see an allergist in a few weeks.

Do you think this test is accurate? Since the total IgA was 107 and considered "sufficient" that would mean he had enough gluten in his system right? Or am I wrong to assume that? here are his results:

Biomarkers

Total IgA = 107 (Sufficient) Range 17-94

Anti-Tissue Transglutamanase IgA (tTG IgA) = <1.2 (Negative) Range <4.0

Anti-Deamidated Gliadin IgA (DGP IgA) = 2 (Negative) Range <20

Anti-Gliadin IgA (AGA IgA) = 2 (Negative) Range <20

Anti-Gliadin IgG (AGA IgG) = 15 (Negative) Range <20

0

Share this post


Link to post
Share on other sites


Ads by Google:

Tammy, the Total IgA, when it says "sufficient" in the results, just means that your son makes what is considered to be a normal amount of IgA antibodies (in general) for someone his age. It says nothing at all about whether or not he was eating sufficient gluten for the test to be valid. Neither would the two sandwiches he ate immediately before the test affect whether or not he tested positive or negative for celiac. It is hard to say whether the one week of no gluten preceding the test had any impact on his results. I know this is very frustrating for you, that they "forgot" to do the celiac testing when that is what you were eating gluten for. However, it is what it is. :):rolleyes:

0

Share this post


Link to post
Share on other sites

Tammy, the Total IgA, when it says "sufficient" in the results, just means that your son makes what is considered to be a normal amount of IgA antibodies (in general) for someone his age. It says nothing at all about whether or not he was eating sufficient gluten for the test to be valid. Neither would the two sandwiches he ate immediately before the test affect whether or not he tested positive or negative for celiac. It is hard to say whether the one week of no gluten preceding the test had any impact on his results. I know this is very frustrating for you, that they "forgot" to do the celiac testing when that is what you were eating gluten for. However, it is what it is. :):rolleyes:

Well shoot. Do you think I should keep him on gluten (we still haven't stopped it because everything has been so uncertain.) for his allergy appt in a couple weeks? Then I could ask the allergist to run a new gluten panel. Does the number of 15 on the IgG seem like things could be close at all or am I over thinking it and maybe he doesn't have an issue?

I DO know that he is a different child when off grains. That is certain. I just don't know why. because when he was off grains he was also off tons of other stuff. Dairy, sugar and beans are some main foods he also avoided for that 10 mos or so.

0

Share this post


Link to post
Share on other sites

No, I do not think the 15 score has a lot of meaning. While not a negative, it is a very weak "peep" on the scale. But not getting positive scores on celiac testing does NOT mean that he does not have an issue with gluten. It just means that he flunked the test :D because he didn't study hard enough? :rolleyes: I do believe you when you say he is a different child when off grains - heck, I believe I was talking about non-celiac gluten sensitivity a long while before people like Dr. Fasano got around to it. When you are SURE that all testing is complete, definitely take him gluten free, no doubt in my mind, regardless of what the test results are. It's just this darned testing that's getting in his way. Once he is off grains (and I would include dairy at first) you will find out if there is anything else he needs to be off. This could include sugar, beans, soy, corn.... no way of knowing right now. If you try removing one or more of them and he still has problems then take him back to what he was eating when he didn't have problems and trial the other foods one at a time.

Yes, you have come this far, go the extra couple of weeks on gluten until the allergy appointment and ask for the panel to be run again, and tell the allergist why.

0

Share this post


Link to post
Share on other sites

Thanks. I sure hope the allergist will listen. We've never seen him before. He has a blog and I've read several of his articles. He *seems* to have a very common sense approach, which is what drew me to him.

0

Share this post


Link to post
Share on other sites




Thanks. I sure hope the allergist will listen. We've never seen him before. He has a blog and I've read several of his articles. He *seems* to have a very common sense approach, which is what drew me to him.

who is the allergist? just curious :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,431
  • Topics

  • Posts

    • Celiac Sensitivity?
      For dining out, check out the website: http://Www.findmeglutenfree.com.  They list restaurants with gluten free menu's and options in your area and there are reviews from other celiacs on there to help you figure out the better, safe places to eat.  Great web site!   Although it is optimal to not dine out at first, reality sometimes gets in the way.  I had booked a trip months before I got really sick and would have lost a lot of money if I did not go.  A month after diagnosis, I flew overseas and ate out for dinner only every night.  I ate plain foods but they were well prepared so still quite good. I never got sick.  I was careful and it worked. Luckily, Europe was way more gluten free knowledgeable than the US at that time and still is.  So, it can be done if you are very careful!
    • Anyone experience brain fog like this?
      Thanks for the reply, melprkr! Feeling like you're still in a swimming pool moving is a good way to put it. It feels kind of like motion sickness, come to think of it, or a really bad hangover. I was curious because my experience of 'brain fog' in the context of thyroid problems feels so different than brain fog caused by gluten, and I couldn't quite figure out how to explain it. Swimming pool comes pretty close, though. Hope you feel better soon as well!
    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,913
    • Most Online
      1,763

    Newest Member
    Mamalarge
    Joined