Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gluten Free In Germany


MindytheOrganist

Recommended Posts

MindytheOrganist Enthusiast

Son-in-law is being stationed in Germany, in Grafenwoehr. My first grand-baby will be born there this coming August. Any suggestions/ideas on gluten-free options? We will probably have to stay in a hotel. I've already written down suggestions from the previous posting about long flights, but any new ideas would be appreciated. Husband is celiac, but shows no obvious symptoms, even after being accidentally severely glutened at a Biaggi's. I'm hoping daughter will be able to "scope out" the area for us, but, obviously, she will have other things on her mind :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aming44 Newbie

I don't know that specific area in Germany, but the brand Schar is made there and widely available places the I've been to...It's got great breads, pretzels, snack kinds of things...

I would also suggest writing down/saying to restaurants the advice from this website: Open Original Shared Link

Link to comment
Share on other sites
mushroom Proficient

I did not have to eat gluten free when I was in Germany, but your mention of Grafenwoehr brought back a whole host of memories, Mindy, since that was a first-line-of-defense town on the border of east and west in the cold war days :blink: I worked in the psychiatric clinic of a USAH and many's the time a young private would be brought in having cracked under the stress of the tensions back in that time. :unsure: Sad to say, I still think of all the wonderful breads (and wurst, of course) when I think of Bavaria. I am sure that things in Grafenwoehr are very different now from what they were then :)

Link to comment
Share on other sites
  • 3 weeks later...
secokely Newbie

Congratulations on your grandchild! I am currently living in Bavaria myself as my husband is stationed at another (much smaller) Army base over here. Fortunately Graf is a very large post and has a sizable commissary, if you are able to get temporary access to post you can help go shopping for both yourself and your son's new family there and should be able to get whatever you are used to eating back home. If you are looking at German markets and are curious about a product "gluten frei" is the designation they use and any "bio markt" will have a variety of gluten free items. I will say it will be incredibly challenging since the traditional German breakfast a roll with meat or jam and at four they typically have coffee and cake. The majority of food in restaurants will come breaded or with gravies so either find items that will not have these or get comfortable being able to special order things. Again, Graf is a large instilation so the surrounding area is very good with English so if you aren't very comfortable conversing in German you shouldn't have too many problems :)

Link to comment
Share on other sites
GermanUSAfan Newbie

In Germany there is a big drugstore chain called "DM". There you get a lot of different bread, rolls, cookies, snacks. Normally you find a DM-market in every town, even in the small ones.

Link to comment
Share on other sites
  • 1 month later...
OleMissLass Rookie

Thanks so much for all these tips!  I am traveling to Frankfurt and Heidelberg next week and will definitely need access to safe gluten-free snacks since I'm pregnant and can't take the chance of contamination. 

Link to comment
Share on other sites
  • 4 weeks later...
MindytheOrganist Enthusiast

Grafenwoehr is now a training facility, from what I understand from my son-in-law.  I remember most of the Cold War, the bomb drills and such.  I'm sure it's very different now.  It seems like the Army bends over backwards to help people transition from the US to Germany.

 

I did not have to eat gluten free when I was in Germany, but your mention of Grafenwoehr brought back a whole host of memories, Mindy, since that was a first-line-of-defense town on the border of east and west in the cold war days :blink: I worked in the psychiatric clinic of a USAH and many's the time a young private would be brought in having cracked under the stress of the tensions back in that time. :unsure: Sad to say, I still think of all the wonderful breads (and wurst, of course) when I think of Bavaria. I am sure that things in Grafenwoehr are very different now from what they were then :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seezee Explorer

We spent a month in Germany near Munich. It seemed really hard to eat out as everything is breaded and waiters. The other thing to watch out for was wheat syrup that they have in a lot of things we can normally eat here that are made with corn syrup like candy and yogurt. We cooked a lot. Train stations were especially hard as they were filled with baked goods and not much else. 

Link to comment
Share on other sites
  • 1 month later...
Guest2000 Newbie

I'm late to the party, but I did want to say if anyone needs anything re:Germany, feel free to ping me. I've been here for six years and gluten free the entire time. I'm in the west south of Frankfurt am Main if that helps any, but the availability of items and products are nationwide. :)

Link to comment
Share on other sites
JuergenGermany Newbie

Hi,

i am late too but maybe more people with Celiac Disease from the US want to travel to germany so i want to give you some more information. My Wife got her dignosis in 2008 and for now 5 years we are very familiar with celiac Disease.

 

As stated before meanwhile there are many shops, so called "supermarkets" which sell glutenfree Products:

The biggest and nationwide are:

- DM

- REWE

- Kaufland

- REAL

 

You get packed bread and cake for Travelling. Some products have to be baked before you can eat it.

 

Even in so called Discounters you get packed products with the gluten free sign (Gluten Frei) or the Text on it. (Mostly on the back of the product)

Just look for these Shops:

LIDL

ALDI

NORMA

PENNY

 

Even the restaurants get more celiac friendly in germany.

 

On the Site www.glutenfreeroads.com you may search on Shops and Restaurants which had a officially certificate. But always please ask what meals are glutenfree.

 

Besides this officially tested there are a lot more Restaurants spread over Germany.

 

We have founded a Facebook Group "Zöliakie Austuasch" with up to now 1100 people in it who share Tipps for Traveling and Eating Outside. Although this group is mainly german we answer english questions too.

Link to comment
Share on other sites
anti-soprano Apprentice

So glad to see this post.  I am teaching in Berlin for 5 weeks this summer. Unfortunately, we are staying in a hotel and I will only have access to a refrigerator- no microwave or stove for cooking my own food.  The prospect of essentially eating every meal out is starting to weigh heavily on me.  Unfortunately, I expect to be glutened often.  I have found a English blog about being gluten free in Berlin that has a guide on where to find gluten-free shops and restaurants, but I am wondering about the "safe" foods I can normally purchase in the US by checking labels.  I'm glad to be warned about the wheat syrup- seezee.  Is there translated word I can look for on the package?  Are cold cuts in Germany generally safe or are only certain brands?  I'm thinking yogurt, nuts, cold cuts, and cheese are going to be my staples along with whatever gluten-free products (crackers, bread, etc) I can round up at the specialty stores.

 

Mindy- the Berlin blog may be helpful to you as well because it reviews products sold there and he lists a couple of chain restaurants that label what foods are gluten-free naturally.  Maybe those chains would also be in the town you are staying in.   Open Original Shared Link

Link to comment
Share on other sites
Guest2000 Newbie

There's actually a lot of places in Berlin that are Celiac friendly.

 

If you go to the shops mentioned in the post above yours, you should be able to easily find gluten-free prepackaged items in the freezer section and in the specialty foods sections.

 

It will really depend when it comes to coldcuts. You can get some gluten-free, I've found Gutfried to be a good company, but we're also avoiding pork, so that's probably why.  Youghurt for us is also case-by-case not only due to gluten but gelatin (pesky pork again).  Nuts are case by case. Some have wheat, some don't.

Link to comment
Share on other sites
anti-soprano Apprentice

Thank you- I will write down the brands you mentioned and check everything else.  Thank you for the warning about the nuts as well!

Link to comment
Share on other sites
  • 2 weeks later...
lpellegr Collaborator

Any advice on Heidelberg?  I may be going to a conference in November and need to find safe food for just a few days, within walking distance of the convention center.  The conference registration asked about dietary restrictions, but who knows whether they can accomodate gluten-free.

Link to comment
Share on other sites
MindytheOrganist Enthusiast

Thanks for all the advice!  Daughter has been scoping out stores as well, and we are probably going to ship some food over before our visit.  I will definitely use the web sites because I hope we can do a lot of sight-seeing.  Especially to Leipzig, because as an organist, I'm a huge Bach fan!

Link to comment
Share on other sites
gfyvr Newbie

When I was in Germany there were health food stores named Reformhaus-or something close to that spelling. Do they still exist? I found them everywhere it seemed-in small towns and larger ones plus there was one in the Frankfurt International airport where I was able to pick up snacks for my trip home.

Link to comment
Share on other sites
  • 2 weeks later...
anti-soprano Apprentice

When I was in Germany there were health food stores named Reformhaus-or something close to that spelling. Do they still exist? I found them everywhere it seemed-in small towns and larger ones plus there was one in the Frankfurt International airport where I was able to pick up snacks for my trip home.

Ohh---  That's so good to know that Frankfurt airport has a Reformhaus!  Thank you for the information.  I'll be connecting flights there both ways.  

 

Just FYI for travelers checking this thread out in the future:  I contacted the German Celiac society and they have a list of foods that are safe for purchase in the supermarket- updated yearly.  Unfortunately, you do have to pay for it (probably about $30-35), but the representative said it was 600 pages long so I guess they have to cover the cost of printing it at least.  It is worth it to me because I'll be there 5 weeks and must find food that I do not have to cook or microwave in addition to eating out.  Plus, I can't be trusted with labels in German, although I guess I'll still need to check (or at least try to) in order to be 100% sure since we all know products change.

Link to comment
Share on other sites
NJKen Rookie

When I was in Germany there were health food stores named Reformhaus-or something close to that spelling. Do they still exist? I found them everywhere it seemed-in small towns and larger ones plus there was one in the Frankfurt International airport where I was able to pick up snacks for my trip home.

Yes, there are Reformhauses all over Germany, Austria, and Switzerland.  Those that carry food are a good source for gluten-free items, but some of them only have natural pharmaceuticals and cosmetics.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
×
×
  • Create New...