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Pictures Of Mine
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Tested negative for the Celiac Panel, but I expected that. The line work in my tattoo swells up and I assume that's because it's already damaged skin - I've had it for 6 years though. That's the most annoying part. I'm experimenting with gluten free for a month to see if it improves. It's been almost a week and It was getting better, but it seems to flare up with everything I eat. I'm sick and tired of the itching and burning and doctors who tell me "it's something" but we don't know what.

So needless to say I haven't been diagnosed. What are your thoughts from looking at this picture?

http://i216.photobuc...207D4A946CE.jpg

http://i216.photobuc...207D98BE6F4.jpg

Edited by texas flood
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That's kinda how mine looks but only if I have a minor flare up. In my experience, DH is most easily identified by the way it feels. It is so insanely uncomfortable- pure torture- literally makes you consider suicide when it is undiagnosed for SO long. When I finally decided to go gluten free it took several weeks to see a huge improvement and about 6 months to completely "heal". I still get flare ups here and there, likely from cross contamination, but gluten free is the only cure (in my experience). Try to stick it out for longer than a month and be super super strict. Going gluten free can help with TONS of different skin conditions anyway so it is worth it to try.

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Several weeks ago when my flares were really bad, the edges of my tattoo were raised also...it's 3 years old.

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I have blisters.

siderashclose_zps3d8ab039.jpg

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Oh my, sisterlynr, that looks really painful. You poor dear :(

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Oh my, sisterlynr, that looks really painful. You poor dear :(

Yes, painful, itchy and the whole nine yards. This picture was taken after I started healing with taking Dapsone and being gluten-free. Now (today) most of those are scarring nicely. I think the Dermatologist I see in February thinks the light therapy will aid in healing and have been told the light therapy is very soothing. Ready to go now! Had to wait as he is a very busy doctor.

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Mine is more like a rash and is splotchy and slightly raised. It looks like eczema and sometimes itches. The worst it has ever been was when I reacted to a body wash Andy body was covered in it!!

My arms also turn bright red when I get "glutened." My face and neck turn bright red instantly!!

I get red itchy bumps along my jaw line... It's crazy how our bodies react to things!!!

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    • It starts as a piercing itch and the skin turns reddish with a few tiny red bumps. Then tiny watery vesicles appear and itch like crazy. The whole process from start to finish is about 3 weeks and the lesions leave a purplish skin tone and scab. I get them on the back side of both knees near the bend.  Sometimes it's just a few scattered vesicles in the same area. I've had Drs say eczema or herpes. My next step is to find a dermatologist familiar with dh. Thanks for the input.
    • DH can look like that but other things can as well. It would help if you described the way it acts/presents. You can get a dh biopsy. Read threads in this section to find out how the biopsy is done correctly. 
    • my celiac was triggered by pregnancy.  had no clue.  symptoms creeped up (started with indigestion, deemed as 'colitis' or 'ibs') but eventually all the ones you mentioned above all joined the party.  sounds like you are headed in the right direction.  one of the points of diagnosis is the reaction to the gluten-free diet.  keep digging.  half the people on here don't have a firm diagnosis (science really needs to catch up with this disease)  and a false negative blood test is fairly common, for whatever reason - if you've not been eating gluten every day for like 8 weeks, it may not detect antibodies, which is what these tests are measuring.  sorry you're having this dilemma!  hope you find some answers.
    • tom & chee!  good to know   they grill the sandwich on a separate pan?  or do you just order soup and salad.  so cool to find more places to eat out!!
    • Hi everybody,  I have had symptoms of Celiac since mid pregnancy and they have gotten worse over the last 5 months post partum. I have constipation, periods stopped, extreme fatigue,  joint pain, weak muscles, dizzyness, migraines, light sensitivity,  pins and needles in hands and feet, elevated TSH, depreason and anxiety. Was put on thyroid meds but it didn't help any of my symptoms. My doctor told me to try gluten free and reintroduce it. I tried it for 2 weeks and started feeling quite a bit better, then reintroduced it and felt worse than ever! It's definitely a gluten problem. She suggested I get the Celiac panel run so I got tested for Ttg iga, DGP igg and EMA all came back NEGATIVE! by this point I had only reintroduced gluten for a few days. She said my antibodies shouldn't go down by much in this time frame. Should I push for a referral to a GI doctor? I don't know why I feel the need for diagnosis? Probably my mother in law laughing when I said I can't eat gluten anymore and she tried to offer me things like donuts, saying it's just a little.  She just doesn't get it. So now, do I suffer for 6 weeks to get the biopsy or just stop eating gluten and be done with it.  I have also noticed while introducing new foods to my baby that he throws up whenever I give him anything wheat based. I doubt they can diagnose a baby and I refuse to damage his intestines for a diagnosis.  Maybe I should get my daughter tested as well? She is 3 and has been complaining of upset tummy and is frequently constipated. She is growing well though but is also quite thin. She is not a big eater. She may be constipated because she holds it. She is afraid to poop on the potty. Since I have had symptoms for only about 10 months, could there not be much damage yet? Sorry for the long post! 
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