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Pictures Of Mine
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7 posts in this topic

Tested negative for the Celiac Panel, but I expected that. The line work in my tattoo swells up and I assume that's because it's already damaged skin - I've had it for 6 years though. That's the most annoying part. I'm experimenting with gluten free for a month to see if it improves. It's been almost a week and It was getting better, but it seems to flare up with everything I eat. I'm sick and tired of the itching and burning and doctors who tell me "it's something" but we don't know what.

So needless to say I haven't been diagnosed. What are your thoughts from looking at this picture?

http://i216.photobuc...207D4A946CE.jpg

http://i216.photobuc...207D98BE6F4.jpg

Edited by texas flood
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That's kinda how mine looks but only if I have a minor flare up. In my experience, DH is most easily identified by the way it feels. It is so insanely uncomfortable- pure torture- literally makes you consider suicide when it is undiagnosed for SO long. When I finally decided to go gluten free it took several weeks to see a huge improvement and about 6 months to completely "heal". I still get flare ups here and there, likely from cross contamination, but gluten free is the only cure (in my experience). Try to stick it out for longer than a month and be super super strict. Going gluten free can help with TONS of different skin conditions anyway so it is worth it to try.

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Several weeks ago when my flares were really bad, the edges of my tattoo were raised also...it's 3 years old.

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I have blisters.

siderashclose_zps3d8ab039.jpg

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Oh my, sisterlynr, that looks really painful. You poor dear :(

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Oh my, sisterlynr, that looks really painful. You poor dear :(

Yes, painful, itchy and the whole nine yards. This picture was taken after I started healing with taking Dapsone and being gluten-free. Now (today) most of those are scarring nicely. I think the Dermatologist I see in February thinks the light therapy will aid in healing and have been told the light therapy is very soothing. Ready to go now! Had to wait as he is a very busy doctor.

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Mine is more like a rash and is splotchy and slightly raised. It looks like eczema and sometimes itches. The worst it has ever been was when I reacted to a body wash Andy body was covered in it!!

My arms also turn bright red when I get "glutened." My face and neck turn bright red instantly!!

I get red itchy bumps along my jaw line... It's crazy how our bodies react to things!!!

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    • Good to know, I'm allergic to sulfa as well but have taken doxycycline for a different reason without problems. I'll be storing this idea for future reference....hopefully unneeded !
    • i hope you tipped that waitress well????
    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
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