Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pictures Of Mine
0

7 posts in this topic

Tested negative for the Celiac Panel, but I expected that. The line work in my tattoo swells up and I assume that's because it's already damaged skin - I've had it for 6 years though. That's the most annoying part. I'm experimenting with gluten free for a month to see if it improves. It's been almost a week and It was getting better, but it seems to flare up with everything I eat. I'm sick and tired of the itching and burning and doctors who tell me "it's something" but we don't know what.

So needless to say I haven't been diagnosed. What are your thoughts from looking at this picture?

http://i216.photobuc...207D4A946CE.jpg

http://i216.photobuc...207D98BE6F4.jpg

Edited by texas flood
0

Share this post


Link to post
Share on other sites


Ads by Google:

That's kinda how mine looks but only if I have a minor flare up. In my experience, DH is most easily identified by the way it feels. It is so insanely uncomfortable- pure torture- literally makes you consider suicide when it is undiagnosed for SO long. When I finally decided to go gluten free it took several weeks to see a huge improvement and about 6 months to completely "heal". I still get flare ups here and there, likely from cross contamination, but gluten free is the only cure (in my experience). Try to stick it out for longer than a month and be super super strict. Going gluten free can help with TONS of different skin conditions anyway so it is worth it to try.

0

Share this post


Link to post
Share on other sites

Several weeks ago when my flares were really bad, the edges of my tattoo were raised also...it's 3 years old.

0

Share this post


Link to post
Share on other sites

I have blisters.

siderashclose_zps3d8ab039.jpg

0

Share this post


Link to post
Share on other sites

Oh my, sisterlynr, that looks really painful. You poor dear :(

0

Share this post


Link to post
Share on other sites




Oh my, sisterlynr, that looks really painful. You poor dear :(

Yes, painful, itchy and the whole nine yards. This picture was taken after I started healing with taking Dapsone and being gluten-free. Now (today) most of those are scarring nicely. I think the Dermatologist I see in February thinks the light therapy will aid in healing and have been told the light therapy is very soothing. Ready to go now! Had to wait as he is a very busy doctor.

0

Share this post


Link to post
Share on other sites

Mine is more like a rash and is splotchy and slightly raised. It looks like eczema and sometimes itches. The worst it has ever been was when I reacted to a body wash Andy body was covered in it!!

My arms also turn bright red when I get "glutened." My face and neck turn bright red instantly!!

I get red itchy bumps along my jaw line... It's crazy how our bodies react to things!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined