Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Igg Intolerance Testing?
0

10 posts in this topic

Hi everyone!

I'm just wondering if anyone has experience here with intolerance tests? I'm having trouble with my leaky gut which is making me intolerant to many foods and I am rotating and keeping a food diary, but I am still getting worse. I recently got a meridian stress test which tested for food sensitivities and it showed I was sensitive to all grains (including ones i haven't eaten) and it said I was fine with several things I swear I'm intolerant to like peanuts, dairy and bananas. I'm really confused! I'm scared my leaky gut will never heal because I can't tell what I'm intolerant to and I keep getting mixed info from everywhere!... The only tests for intolerances I have found in Australia are an elisa test that costs $800 and a hair test which I am not sure will be accurate. If anyone can help me with intolerance tests they've tried or recommend some in Australia or even internationally I would really appreciate it!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm sorry, can't help. My intolerance testing was good old trial and error. I tried it and if I didn't tolerate it it was an error :D

0

Share this post


Link to post
Share on other sites

Lol no worries! I was doing the whole trial and error thing at first and I was healing pretty well! Then my gut just randomly went out of control and hasn't really improved since :unsure: it's probably something else going on, but I'm still very worried that my intolerances will keep me from healing if I solve it

0

Share this post


Link to post
Share on other sites

I have had both the blood and hair tests done. Daughter and I both loved the hair test! Caught things that the blood test didn't test for. Like herbs.

0

Share this post


Link to post
Share on other sites

Hi everyone!

I'm just wondering if anyone has experience here with intolerance tests? I'm having trouble with my leaky gut which is making me intolerant to many foods and I am rotating and keeping a food diary, but I am still getting worse. I recently got a meridian stress test which tested for food sensitivities and it showed I was sensitive to all grains (including ones i haven't eaten) and it said I was fine with several things I swear I'm intolerant to like peanuts, dairy and bananas. I'm really confused! I'm scared my leaky gut will never heal because I can't tell what I'm intolerant to and I keep getting mixed info from everywhere!... The only tests for intolerances I have found in Australia are an elisa test that costs $800 and a hair test which I am not sure will be accurate. If anyone can help me with intolerance tests they've tried or recommend some in Australia or even internationally I would really appreciate it!

I'm not in Australia. However, I have had 3 different panels of the ELISA test. The first (100 commonly eaten foods) found my cane sugar and egg intolerances (IgG reactions). I still had symptoms. So I took the vegan panel, but had no significant reactions. So I took the herb/spice panel and discovered I reacted strongly to vanilla and nutmegs. I'm soooo glad I used ELISA. My intolerances (IgG and IgA reactions) are all ingredients in baked goods and processed foods. I would have never guessed all those or even been able to isolate all those with elimination tests. Yes, I had to pay outa pocket, because my HMO didn't cover those tests. However, i consider those test results well worth the money, because that shortened my journey to health. I aIso had to endure 4 years of gut bug infections (8 total but not all at once) before I found an NP who tested me for hypothyroidism, which explained my other symptoms.

1

Share this post


Link to post
Share on other sites




Thanks a lot guys! I think I might try the hair test :) i would prefer the elisa but iit's a bit too expensive for me and the cheaper ones i find don't cover enough food. Hopefully it will work and I'll be able to start healing soon!

0

Share this post


Link to post
Share on other sites

The hair test is a good one, so I've heard, I didn't have it. I had the ELISA 96 food panel done and it showed quite a bit. I've been able to add some of it back in slowly, but also had to avoid some things that were previously okay. The research shows that the reliability of these tests isn't very good and the only true way to know is an elimination diet. Eat only whole foods, such as fruits, vegetables, nuts, seeds and meats for a few weeks and then add one other food item at a time and keep track of your reactions. The things I've learned about intolerance tests are they are always changing. If you tested every month, you would get different results, depending on what you've eaten. I have a celiac friend who has been gluten free for over a year, retested and gluten showed up as okay, but only because there had been none in her system for so long. I'm not knocking the testing, I've had some done as well, but really the only true way is to test each food yourself and see what happens. Best of luck to you.

0

Share this post


Link to post
Share on other sites

I have never seen any scientific evidence that hair testing works. Before you spend your money, you might want to see if they are legit. Remember, a website trying to sell you something, in this case a " test", is not going to have objective scientific evidence. Same with these stool testing places that refuse to let their methods be peer reviewed.

0

Share this post


Link to post
Share on other sites

I am writing from Canada, so can`t help on Specifics like testing in your country...but I have a suggestion.

Have you looked into or considered other causes for your trouble? My husband was fine one day, down 30 lbs and weak and had diarrhea the next.. then fine again for a while and ... repeat. Everything he ate or didn`t eat seemed to give him trouble. After much testing the dr`s found a bacterial infection called H plylori. As soon as it was treated he started to feel like his old self.

I am just sugessting, food intolerance may be a SYMPTOM of an underlying issue. have you been tested for bacterial infection, viral infection, parasites, or other possible causes?

In my case, the first thing we checked was to make sure i didn`t get hubby`s bacteria, when that came back neg... we began to follow the food intolerance trail.

0

Share this post


Link to post
Share on other sites

Hello, I'm also in Australia and been waiting a while to see an allergy/immune specialist for testing, I finally have my first appointment in 10 days but I've been not well for around 20 years so I'm looking forward to that. I've been doing a lot of research on the testing and as far as I know the immunocap test costs $350 with no rebates and you can also have a RAST test done through your local pathology for any 4 chosen allergens for $90 after rebate? I believe. The immunocap test is the one l'll be going for since it's a IgE antibody test against 100 things and at $350 that's a better deal, my IgE levels are very high (40 times over the limit) , I'm sure I'm naturally very sensitive to allergins and technically atopic but I also seem to have tons and tons of food allergies, I'm thinking the major problem is milk protein and grains but at the same time I went 7 years strictly eating no dairy and still was having a constant reaction to something at that time so there are multiple problems. The immune level test (IgA, IgG, IgM, IgE) is free and if you haven't had that maybe you can put that on your list of things to test. I came up fine on most of those, the IgG level was slightly high but the IgE was the one that got my doctors excited since they finally found something that was far enough out of whack to cause my other weird symptoms.

I've also had a couple of parasite antibody tests which are a blood test and also free, there's many parasite antibody tests your doctor can have done free of charge, I feel it was certainly worth doing the helicobacter test since that causes a lot of allergy problems but I didn't have it. in the meantime I'm taking fairly heavy doses of anti parasite drugs to rule a few more things out. I've been on the antifungal diflucan which helped but I didn't still get my gut flora rebalanced although my digestion is greatly improved!. I'm also taking the anti histamine Zyrtec which as all but stopped any stomach pain I had on eating foods. The bad thing is that it's let me eat almost anything I normally have problems with and only going to the toilet once a day instead of 5 :P, great for gaining weight, but not at all not good for lowering my IgE levels.

I'm probably going to have to go on a really serious elimination diet at some stage where I only eat one thing and supplemented with amino acids but first I want to have that immunocap test. I've eaten whole foods only for months and not seen any real improvements, well only if I go almost 100% protein free, then I do improve, but that in the long term just makes things worse.

Here is a web page regarding some of the costs in Australia http://www.allergydr.com.au/cost

And a little more info on the standard immunocap test here http://www.phadia.com/Laboratory/Allergy/Products/ImmunoCAP-ISAC/

You can also read this

http://www.phadia.com/Global/Corporate%20Allergy/Files/DfU/Assay%20Kit%20IgE/DfU-ImmunoCAP-ISAC-20-01-02-3-RUO.pdf

They can do hundreds more allergens than the standard test has but I'm not sure if those are all available in the Australian labs, this is the test that to me makes sense because it's a numbers game and real numbers and real antibodies get me more excited than degrees of rashes on my skin

good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,105
    • Total Posts
      920,392
  • Topics

  • Posts

    • So far I've had no problems with gluten-free Cherrios and I've been eating them since they started producing the gluten-free line. Generally I will have some reaction to gluten if there is contamination in the product I'm eating. But I'm sure someone has gotten a bad batch or is simply very sensitive to trace amounts of gluten. It's up to each individual to decide whether you want to chance trying them. The article mentioned by squirmingitch sheds light on the problem with anything listed as gluten-free. Contamination can occur at any point in the harvest or processing, and testing may miss it. I also eat Chex, Nature's Path cereals and have tried other brands w/o any problems. I do miss gluten-free Rice Krispies, they made for a nice addition to meat loaf, shame they discontinued the item.
    • Here is another point.  My hubby went gluten-free per the poor advice of his GP and my allergist.  It worked.  A tough first year, but he got well.  Thirteen years later, I got diagnosed with celiac disease.  I was shocked!  😱.   Does he have celiac disease?  We will never know because we can not afford to have him do a challenge.  He refuses and I can not blame him.  He knows he will be very sick!   The point?  I am so lucky that we both can not have gluten.  I never worry about him making me sick or vice versa. We made the house completely gluten free for  1) our health and 2) the fact that our kid started helping in the kitchen. Kids make mistakes and I personally need a safe haven.  She wants gluten?  I buy prepackaged stuff and she takes it to school.  All parties and events at my house are gluten free.  Lots of work, but we stay healthy.  She does not have celiac disease.  When she is preparing for a celiac test,  I send her on the porch to eat cookies or bread or whatever floats her boat.  We travel in a gluten-free RV.  I have five sizes of ice chests.  We just have to be prepared for any event.   How can we live this way?   We love feeling good.
    • Freize is right, you need to think about your environment.   Based on that a study I posted for you, you will note that the patients who were diagnosed with refractory celiac disease and THOUGHT they were diet compliant found that they WERE NOT diet compliant.  How is this possible?   This is way out there, but unless you are growing all your own food, you don't really know if it is gluten free.  In the US, we do have laws to help protect our food supplies (no perfect, but a start).    I can not speak for India.  For example, what about your soy?  It can be contaminated by the farmer as it is often rotated with wheat.  Here is an article by Jane Anderson who has celiac disease.  She is very strict as she has DH (celiac rash), but she cites Trisha Thompson who tests foods for gluton contamination, The gluten-free WatchDog (like Consumer reports).  She found that soy which is naturally gluten free, but can be cross contaminated by wheat: https://www.verywell.com/is-soy-gluten-free-562371 so, start thinking about your food supply. As far as a negative TTG IGA or TTG IGG?  I test negative to both.  Only the DGP IGA has ever been elevated in my blood tests (even repeats), yet I had a Marsh Stage IIIIB on my biopsy.  Have you had a DGP IGG?  (I do not see this in your posting).   http://www.cureceliacdisease.org/screening/ These additonal celiac tests might help you feel confident that you have celiac disease and not something else that is damaging your villi.  But remember, some  folks have celiac disease even with negative blood.  I am not IGA deficient, so this is an area I have not researched.  Not to mention that some celiac researchers do not think that the celiac  antibodies tests are good for diet compliancy.   I wish I had better answers for you.  Try a grain free, whole foods diet of meats, fish, eggs, and vegetables for a while.  All food prepared by you. Who cooks your food now?  Is your home gluten free?  Cross contamination at home?  Kissing a loved one.  We had a doctor with celiac disease who was getting glutened by her little children who were consuming gluten!  
    • I won't say I will never eat out but I can't see me eating out for the foreseeable future. Even then, I will most likely only eat at a dedicated gluten free place. I am extremely sensitive to the tiniest amount of gluten and it's just not worth the risk to me. Eating out is playing Russian Roulette as far as I'm concerned and I'm not ready to play that game yet.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,144
    • Most Online
      1,763

    Newest Member
    GlutenFreeGreg
    Joined