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3+ Months. Hope.
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3 posts in this topic

I'm a 50+ year old man. For more than 4 months I suffered severe nausea and diarrhea. After countless tests of various types, I scored >225 on both antibody tests. Before we did an endoscopy, I switched to a gluten free, dairy free diet.

The first 10 days were terrific. I felt a lot better immediately. But then for 2 months I had good and bad times. The nausea still sometimes chased me to my bed where I would spend 3-4 hours 5 days of the week. And certain fatty foods still made me sick, even gluten free.

Over the past month I've had more improvement. I have now had 12 days nausea free, and the diarrhea has stopped.

I'm getting used to the limited dietary choices - thank God for bacon and eggs! - and I feel better by miles from before I was diagnosed and in fact for years before.

My gastro tells me I've probably suffered stomach upset for years because I was undiagnosed. (More toast and crackers, I used to say when I was first sick, and of course that made me worse.)

It's a pain. Eating out is hard. Traveling can be nearly impossible. But Glutino nutrition bars and Mi-Del cookies have saved me on the road many times! Rice, ahhh, the most important meal of every day.

I don't wish this on anyone; it can be severely limiting. But feeling good is the best revenge on the damn gods of celiac.

Everyone, hang in there, especially those of you new to the diagnosis.

Good luck!

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Wonderful post ! Hope you continue to improve :)

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Best of health to you. A car oven is wonderful when one is on the go. I can cook porkchop, hamburger, or likewise with veges in mine!

Diana

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      We use Florajen 3 as well. Most pharmacies keep it behind the counter so be sure to ask.
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      I have to agree with Gemini, you must not go gluten free until you've had an endoscopy with biopsies (first you get the blood work done, then you get your confirmation by a follow-up endoscopy), it's the reaction to the gluten that creates the antibodies' you won't get that reaction if you don't eat gluten. It might seem inconvenient, but in the long run it will be worth it.
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      I'm still awaiting the results of my biopsy. I have Latent Autoimmune Diabetes of Adults, which is basically type 1 diabetes diagnosed as an adult. (I was 32.) I have second degree relatives with celiac, although, my mom and my sister have yet to be tested. My mom's side of the family has a variety of autoimmune issues. My tTg-IgA was weakly positive (7.5), my DGP IgA was weakly positive (26), and my EMA was positive. My GI MD said he could see some inflammation on my duodenum during my EGD. I desperately want an answer to the issues I've been having. My primary complaints have been fatigue and joint pain, so I hadn't really considered celiac, thinking my GI issues were due to exhaustion. I am thinking I may stay gluten-free regardless of the biopsy results. I've been feeling better since cutting out gluten immediately after my EGD. I also feel like my lab work, diabetes, and family history are enough to warrant caution. Any thoughts or advice on this would be greatly appreciated. Thanks!
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