This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Please Help-Not Sure What To Make Of These Symptoms
I am sorry that you are sick! Have you been tested for celiac disease again (just to rule out a glutening?). Symptoms for celiac disease can wax and wane (change).
Do not jump to conclusions about cancer! I had lower abdominal pain and doctors though it was a female issue. Turned out I had a non-functioning gallbladder that did not present in a typical fashion!
You are in a tough position! A positve TTg of over 200 sounds like (labs ranges can vary) your son could have celiac disease. The TTg is just one celiac disease a screening test. I would ask for the complete panel. If that was not ordered. Some of the other celiac tests are very specific to celiac disease. A genetic test can help rule out celiac disease as 30 % of the poulation carries the gene but only a few lucky ones 😃 actually develop celiac disease. That might be worth getting too!
Here are the tests:
-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-total serum IgA and IgG (control test)
-endoscopic biopsy - make sure at least 6 samples are taken. The small intestine is vast! Over 20 feet in length and when stretched out is is the size of a tennis court! How many biopsies were actually taken? And where were they taken? It is so easy to miss damage areas!
VERY IMPORTANT: Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate. About 8 to 12 weeks for the blood test. How much gluten is he getting? I had to give my daughter gluten daily (we have a gluten-free home) for three months before I had her tested.
(Source: NVSMOM -- 😊)
Welcome to the forum and let us know how it goes! Get all copies of lab results too!
You really need to remain on a gluten diet until that GI appointment. A biopsy requires consuming gluten for four weeks daily (8 to 12 for the blood test). I would hate for you to get negative biopsies and remain in diagnostic limboland.
You need to do some more research. After all, you are your best health advocate! This link to the University of Chicago can help:
By the way, it took me two years to heal. That seems to be pretty common around here. My anemia resolved within a few months, but all the other little symptoms took time!
I am so sorry that you are in a situation living with a roommate who is not considerate! Yes, you could be getting glutened. Can you see your GI and get another celiac test to see if gluten is actually your problem? When I was glutened on 7/7/2015, 30 days later, my celiac antibodies were as high as they had been when I was first diagnosed. Everything, even safe food, hurt to digest. My GI thought I might have SIBO, but it was simply gluten! It took two months to feel better and another month to get back dairy. Yes, I became lactose intolerant again! That was a really a bummer! I also picked up a new illness (rashes, hives and intestinal pain). So that initial glutening and probably another few while on vacation, Set off a celiac autoimmune response and triggered a new illness! I have no clue (but a few suspects) as to what glutened me to this day! (I am not even going to test my theories either!
I hope you can manage for another six months! Good luck and feel better soon!