Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dairy And Ncgi
0

9 posts in this topic

Hi -

Was DX about a month ago as esophagitis, gastritis, and was told I did not have celiac. Of course, knowing myself and my reactions to gluten, I went gluten free almost immediately following the endoscopy. I have been doing well since then most of the time.

Because I have read on here about avoiding dairy if you are Celiac or NCGI, I have done my best to do so. But for me it is hard because my reactions are very varied. For example, I can eat sugar free tapioca with no problem even though it is milk-based and can eat small quantities of butter as well. However, sour cream leaves me down for the count! I have been trying to eat Fage as I did before my DX to varied results. I ate a blueberry 0% fage and felt some minor cramping and a little gassy, but today, I had a strawberry fage and I have been in bed since 1pm with horrible abdominal discomfort and D. My question is two fold: 1) what is it about dairy that doctors will tell you to avoid it when you have gut issues? 2) why am I having reactions to some forms of dairy and not others? I think that's what is keeping me from avoiding all forms of dairy at this point...can anyone help?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Generally speaking, according to the definitions of celiac disease (villous atrophy) and NCGI (no intestinal damage) if you are NCGI you 'should' be able to digest lactose (milk sugars). Those with villous atrophy usually cannot because the enzyme lactase is made at the tips of the villi which atrophy in celiac, so therefore it is absent until healing takes place. This is why they say that celiacs can normally 'resume dairy' once they are healed, but they really mean 'can digest lactose'. Some people also have problems with the protein called casein in milk which is digested by different enzymes, so it is often just recommended that you avoid all dairy at first and then try adding it back in six months. If you cannot handle casein you normally do not regain this ability. And for some, dairy is difficult to digest at best of times and especially after developing a sensitivity to gluten.

So where does this leave you? Let me give you my own example. I knew I was lactose intolerant before I knew I was gluten intolerant. I did not have any problems with yogurt, cheese, sour cream, butter, but I could not have milk, ice cream, cream or frozen yogurt, all high in lactose. Once I healed from the gluten onslaught (and I was never tested so have no diagnosis) I am now again able to eat these things as well.

The things you would be most likely able to digest if you were merely (perhaps temporarily) lactose intolerant would be butter and hard cheese like cheddar. Those would be the first to test yourself on. If those were okay, you could then try yogurt, although you say you are having trouble with Fage (I am not familiar with the product) and sour cream puts you down, so you know not to try that. Some grated parmesan on pasta would be worth trying, and Lactaid milk, or Lactaid tablets with regular milk or other lactose containing products, both of which contain lactase enzymes.

I hope this helps clarify it for you. :)

0

Share this post


Link to post
Share on other sites

Thanks, mushroom! Appreciate the reply and the explanation. It does make sense...my doctor recommended today that I stay off dairy for awhile. Like an idiot today, I tried my tapioca which I previously had been okay with and 5 minutes later, I got sick. Well, I guess if I needed proof, I got it - in spades!

0

Share this post


Link to post
Share on other sites

There are plenty of substitute milks out there to use - almond, hemp, rice (other than Rice Dream which is filtered with barley and many have problems with), even coconut; I personally do not recommend soy milk, but that is your choice :)

0

Share this post


Link to post
Share on other sites

Oh trust me, not about to touch soy milk. I was drinking flax milk for awhile which I really liked. I think I need to find some non-dairy substitutes for pudding because after what I have heard about lactaid pills, I don't really want to try them...besides I have enough meds and vitamins already, I really don't need to add another!

0

Share this post


Link to post
Share on other sites




... I think I need to find some non-dairy substitutes for pudding ...

I need mah puddin'! I need my puddin' now! :D

Seems like I saw a post about making chocolate pudding with avocados and chocolate powder a while back. And maybe one about making pudding using bananas or was it ice cream made with bananas? Probably there is something in the recipe section for it.

0

Share this post


Link to post
Share on other sites

I need mah puddin'! I need my puddin' now! :D

Seems like I saw a post about making chocolate pudding with avocados and chocolate powder a while back. And maybe one about making pudding using bananas or was it ice cream made with bananas? Probably there is something in the recipe section for it.

Hehe! :)

And ooh a pudding with bananas - I will have to check out that section! Thanks!

0

Share this post


Link to post
Share on other sites

Even after all this time, I only eat plain yogurt, never pre-flavored. If I want anything in it, I add it myself, from single ingredients I already know I do not react to. And I make sure it is as plain as plain can be, without added milk solids like dry milk or anything else, other than the lactobacillus cultures, because who knows what is in that stuff, really, re its true gluten status and whether or not all the lactose was processed out by aging. I don't have any trouble with the plain Fage, and believe me, I've reacted to a lot of different brands of allegedly "gluten free" yogurts. <_< I see my local store runs out of plain Fage often and is trying to sell the smaller, more expensive, flavored Fages, but I will just drive further to get the kind that I need. Same with sour cream, it's difficult to find a sour cream these days that is made from just "cream" and cultures. There are thickening agents which may not agree with your current gut status. You may have to go organic on this type of item to find one not loaded with additives. Try using some organic cultured butter, that has made a big difference for me in terms of being able to tolerate butter, instead of always having to use olive oil. I think part of these reactions are to an increased sensitivity with our damaged, leaky guts to the chemicals the regular cows are exposed to, then pass along in their milk. Since the last decade with the ongoing problems with the price supports for dairy, they've really pushed these cows to produce a lot more milk, and it stresses them. :(

0

Share this post


Link to post
Share on other sites

Thanks for the advice regarding the yogurt...I don't think I will try it quite yet, but when things start to heal, I will give the plain Fage a try...although the taste kind of scares me...maybe as you said, I'll add something I know I'm okay with to mask the taste...or just find something else.

I actually had a sweet potato yesterday with butter and while I had some mild discomfort, there was no running to the bathroom lime episodes for me, so I consider that a win, which is a good thing because I'm not sure what I would end up using as an alternative to butter!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,655
    • Total Posts
      921,622
  • Topics

  • Posts

    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,655
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined