Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Ferritin Rising Since Going Gluten-Free!
0

4 posts in this topic

Hi folks,

I am so happy! Went on the gluten-free diet in October (to feel better like everyone talks about) and was that ever an eye opener! I honestly had no idea that this could be my problem and really knew nothing about Celiac AT ALL!

My labs just came back since going gluten-free (albeit that is a struggle all it's own) and my Ferritin and Hemoglobin is rising with NO iron supplementation! It's a miracle! My hematologist of three years (who has been pressing me about my GI doc missing something) just called THRILLED. When I told him I was not taking supplements but had merely gone gluten-free, he said, "I hear you, I hear you. Happy New Year dear!".

This journey has been so long. I've spent so many years sick and, no, I don't have a crystal ball but just to THINK this is the answer, well, I am doing cartwheels (in my head because, Lord knows I don't feel well enough for the real ones YET). But I finally have hope.

I'm sure I'll have more to share as the days go by but thank you for your support during this process so far. It is quite the crazy journey at the beginning (WOW what a life changer) but I am so looking forward to continuing the healing process. Thank God for the "fad diet"! It ain't a fad to me. It's a gift.

Sorry for blurting but today is a good day :)

Cali

1

Share this post


Link to post
Share on other sites


Ads by Google:

I am happy for you. I ran out of Ferritin supplements and I feel it. Hopefully my levels will be headed up again soon.

I think I have 30 years of damage? How about you?

0

Share this post


Link to post
Share on other sites

That's fantastic!! Isn't it great when the numbers reflect how you're feeling?!

Laura

0

Share this post


Link to post
Share on other sites

It's been a roller coaster ride because I have been getting glutened since the start of the diet (about every week to 10 days) so this came as a big surprise. Of course, the Ferritin has quite a ways to go and my D is in the dirt (which also causes fatigue). It is the first time my Ferritin level climbed without supplementation which, to me, speaks volumes. My body is working hard to heal (probably has worked like crazy to fight off the invaders) and so I still just want to sleep all the time (except when it's bedtime). The longest stretch of being gluten-free has been 15 days and that was the first time out. I did take Floravital liquid iron in December but only five days worth. Maybe that's an ultra good vitamin!

I think my body has a lot more healing to do and the numbers might precede my energy level. HA

LadySaved, someone posted a childhood picture of me on Facebook a few years back which horrified me. I was 11-years old and very skeletal looking. I'm holding a roll. It was the first thing in this process that made me think, "holy crow, something has been going on with me for longer than I thought"! Add a few years to that 30 and the last 8 have been a nightmare. Someone here posted that every year being gluten-free greatly decreases the chance of lymphoma and the other diseases that come from this. Having started the medical musical chairs in '05, I am hopeful to turn this slide down the road of unwell, around and actually have a life.

My hematologist still wants me to keep my appointment with the urologist for a cystoscope :-Q but I guess it's prudent to make sure everything is checked out. It's not over yet but this news is very motivating and confirming.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,364
    • Total Posts
      920,549
  • Topics

  • Posts

    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined