Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Anyone Have Dh Flare Up From Tylenol Pm?!

tylenol

  • Please log in to reply
6 replies to this topic

#1 brandiecane

brandiecane

    New Community Member

  • Members
  • Pip
  • 6 posts

Posted 17 January 2013 - 02:02 PM

Hi everyone,

I am brand new to this forum. I joined because I am freaking out about a DH flare up and I do not know what the heck is causing it! I am very meticulous about avoiding gluten. I only use gluten-free lotion, shampoo, everything! I am 8 months pregnant and all of a sudden am having a terrible DH flare up on my legs (which is usually where it happens). I have been having back pain and trouble sleeping bc of the pregnancy and my doc suggested I take Tylenol pm every night to help me sleep. I have read that NSAIDs aggravate DH, but I thought tylenol was safe for DH. Does anyone else have this problem!? Is this normal?! I don't know what else it could be.

Please help!

-Itchypregosaurus!
  • 0

Celiac.com Sponsor:

#2 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,295 posts

Posted 17 January 2013 - 07:19 PM

Hi itchypregosaurus. Welcome to the board.
Tylenol seems to be the safest for us of the NSAID's but I find that even it aggravates my dh if I'm not very, very judicious in my use of it. I never use Tylenol PM so I can't speak for that specifically but plain Tylenol affects me if I take them day after day.
Also, I've read in a lot of the medical literature that pregnancy can make the dh flare like rip. Furthermore, that you may not have had the dh flare with earlier pregnancies but then you get pregnant with another child & it pops up. The stuff is vexing to be sure!

I'm so sorry this is happening to you. What about asking your doc about strong Benadryl to sort of knock you out at night?
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#3 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,295 posts

Posted 17 January 2013 - 07:37 PM

Just saw your post on the photo bank. As far as chlorine goes I couldn't say. We have city water right now & so I'm getting chlorinated but I have not been in a pool or hot tub. I also haven't been showering in anything but city water so have no comparison to non chlorinated water. Interesting thought though.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#4 brandiecane

brandiecane

    New Community Member

  • Members
  • Pip
  • 6 posts

Posted 18 January 2013 - 02:46 PM

Just saw your post on the photo bank. As far as chlorine goes I couldn't say. We have city water right now & so I'm getting chlorinated but I have not been in a pool or hot tub. I also haven't been showering in anything but city water so have no comparison to non chlorinated water. Interesting thought though.


Thanks for replying! I stopped taking the Tylenol PM. I'm definitely going to ask about something else to help me sleep. I stumbled on the chlorine info a while back. The research said that heavily chlorinated pools can cause DH flare ups- and is sometimes linked to causing the onset DH symptoms. I thought this was very interesting bc DH first presented itself when I was 25 after a long day at the pool. I went first thing in the morning to get some sun and I remember thinking the pool had just been treated bc the chlorine smell was very strong. Later that day I had my first DH outbreak. Of course I was misdiagnosed for two freakin' years but finally I have it mostly under control. That summer was when I started drinking beer too. Prior to that I only drank wine and girly drinks. I often wonder if the increase of gluten from the beer was also a culprit. I never had any other indications that gluten was a problem for me. I've been Gluten-Free now for over a year. I hate that I can't ever be completely cured. It's really frustrating. Anyway, I've tried the chlorine theory twice and both times I had a flare up :/ One more thing I have to avoid.
It is so great to be on this forum and read other people's stories and struggles of the same condition. I haven't met anyone with DH and I find that explaining it to people is useless bc no one can relate.
  • 0

#5 squirmingitch

squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,295 posts

Posted 18 January 2013 - 05:02 PM

Interesting Brandi; my strongest gut reactions were always from beer also. As a teen experimenting with drinking I quickly decided beer was NOT the drink for me as I would have violent GI reactions from it --- screaming pain/cramps in the gut & D.

Do you think you can find that info. on chlorine again? It would be great if you could & then post a link here. I haven't come across that info. & would be very interested in reading it.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#6 kareng

kareng

    Dispeller of Shady

  • Moderators
  • PipPipPipPipPipPip
  • 13,997 posts

Posted 18 January 2013 - 05:11 PM

http://www.curecelia...erpetiformis-dh

"Does chlorine cause a reaction for those with celiac disease, especially those with dermatitis herpetiformis (DH)?
No such link between the two has been researched or reported."
  • 0

"You have problems.  There are not enough paper clips, and then you've got world hunger.  Your problems are somewhere in between." -DPR,III

 

Celiac.com - Celiac Disease Board Moderator
 

LTES

 

purring-kitty-smiley-emoticon.gif

 


#7 brandiecane

brandiecane

    New Community Member

  • Members
  • Pip
  • 6 posts

Posted 19 January 2013 - 07:36 PM

http://www.curecelia...erpetiformis-dh

"Does chlorine cause a reaction for those with celiac disease, especially those with dermatitis herpetiformis (DH)?
No such link between the two has been researched or reported."


I found this same website FAQ when I was doing my research. I have found several other DH sufferer comments on forums about highly chlorinated pools triggering a DH outbreak. Personally, I have tested this theory twice and both times it was very apparent that chlorine without a doubt causes a flare up. Although, there isn't any peer reviewed reseach on the subject, the only evidence is personal testimonies.
  • 0



0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: