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Blood Test Negative Endoscopy Yesterday Questions

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Hi All - I have been VERY sick since the end of Nov. I have always has stomach issues, bloating, coughing, etc. I have lost over 20 lbs in the past month and have had a BILLION tests done. I won't get into it all because the story is so long. This week I had a HIDA Scan done which showed my gallbladder isn't functioning normally, 11%. It's supposed to be at least 35-40%. I was supposed to start a brand new job this coming Tue. and am now having surgery to remove my gallbladder on Monday. In the meantime both GI and General Surgeon recomended that I go through with yet another test and have the endoscopy done to rule out anything else. I did this yesterday. It showed that my stomach lining is inflammed and even starting to erode! The GI took biopsy's of this. To check for celiac and also a possible infection. I was doped up still from the procedure and don't remember everything he said. He told my Mom that he didn't think it was probably celiac because my intestines didn't look bad at all, just my stomach. He told me ideally he would like me to wait another week for surgery to see what the biopsy's come back with. However, I am also being told this gallbladder not functioning will NOT get better and will just continue to get worse. In an ideal world I would wait, however I cannot keep pushing my start date back on my new job. I don't want to have an surgery that I might not need, but I don't want to find out it's also celiac or a bacteria and 3 weeks into my new job, need my gallbladder out now. Also with the findings on this test could I be gluten intolerant but not celiac? My cousins daughter who was about 6 at the time, had an endoscopy as she was bleeding in her stools. They found her stomach had inflammation and they did tell her to remove gluten (but didn't confirm) celiac. I know they are also testing for H-Pylori (to which I have already had a negative blood test for, and negative stool test for, however I was on prilosec during the stool test which can produce false negatives) I would like to hear feedback from all of you. My syptoms have been chest pain/breathing difficulties (gone now), stomach burning, nausea, vomiting, diaherrea, constipation, green stool, high white blood count.


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Hi Bekkaz,


Gall bladder issues are somewhat common in people with celiac disease.  You can search the forum and find threads from people about them.  Wether the gall bladder would get better or not on a gluten-free diet is a good question.  I don't think there is any way to know without trying it.  I think you already had you gall bladder removed though so guess it will remain unknown.


I really just wanted to reply because it seems we missed your thread, sorry! :(


Here's an article about non-celiac wheat reactions.  The researchers don't know much about it's effects yet, or how to test for it, but they are learning.


Non-celiac wheat sensitivity article


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    • Person above me is correct. You need a skin biopsy, and it must be performed correctly. I never had a positive blood test but my biopsy came up positive for DH. Going gluten-free for a month usually won't  clear up DH. It commonly takes ~6 months, and this only on a very strict gluten-free diet. Any exposure to even small amounts of gluten (through cross-contamination, etc) can lead to flareups.     
    • Has your derm ever done a dh biopsy? BTW, it's not taken ON a lesion, it's taken on clear skin adjacent to a fresh lesion. I bet your derm doesn't know that. I bet if you ask for a dh biopsy he will take it right on top of a lesion. Ditch him & get a derm who knows about celiac & dh & how to properly take a biopsy for it. The antibodies can stay under the skin for years. The derm is wrong.  Please describe how the rash acts & what it feels like.
    • Yes, there are other grains that have gluten but they don't have the TYPE of gluten that affects celiacs. Celaics can not have the gluten in wheat, barley, & rye. Corn has gluten but it is not the kind of gluten we react to. I actually use corn gluten in my garden as it prevents weed seeds from sprouting. LOL! Hey, it works great! Read these: Gluten is the name for the protein in grains. All grains contain protein that is theoretically gluten but people with celiac disease and most other gluten allergies only react to the form of gluten found in wheat (including spelt, kamut, triticale and all varieties of wheat), barley, and rye. From:   I've run across another gluten urban legend that needs to be dispelled: the idea that people with celiac disease and non-celiac gluten sensitivity actually react to gluten in all grains, not just wheat, barley, rye and sometimes oats. This just isn't true, despite what you might have heard or read. People who react to the gluten protein found in wheat, barley and rye don't automatically need to avoid rice, corn, millet, sorghum and other grains. From:   There are some unsavory sites out there in internet land that will tell you celiacs cross react to all grains. They generally have something to sell, a book, a video, some vitamins or other things. They use scare tactics to sell what they are selling. These claims simply are not true. If they were, then all the people on this site who have gotten well while not eating wheat, barley & rye but continuing to eat rice, quinoa, corn & so forth would not have gotten well; they would be dead by now & there would be no "old timers" on this site because they would have eventually died from eating grains other than wheat, barley & rye. Celiacs can develop sensitivities to other foods, even foods like cabbage or lettuce or potatoes or even rice or maybe only brown rice but that does not mean they are reacting b/c of gluten in those things. You may be doing great since eliminating rice from your diet and that is wonderful that you figured out that it affects you but that does not mean the rice contains the kind of protein that celiacs can not tolerate.  
    • So, I've had a skin condition for years which looks like DH but blood tests for it come back normal.  High doses of steroids or of immuno-suppressants work well to clear my skin, but as soon as they are reduced the inflammation returns.  I tried a gluten free diet for a month, during which my skin seemed to set on fire even more.  My dermatologist says if my problem was DH then I would have had a positive result from going gluten free for four weeks, although information on the internet suggests it takes at least 6 months.  Does anyone have some experience of something like this?  Do I believe my dermatologist or the internet???
    • Working a modifying a recipe to be both Vegan and Grain free. I am a bit low on funds right now and can not test it. Feed back is welcome and if you do it perhaps  get me a grams breakdown for duplication. 1 cup almond flour
      ½ cup unsweetened shredded coconut
      1 teaspoons cinnamon
      1 teaspoons apple pie spice
      1 teaspoon baking soda
      ½ teaspoon salt
      ¾ cup unsweetened applesauce
      ½ cup almond butter
      ½ cup Maple/Agave
      2 Tablespoons soft coconut oil
      2 Tablespoons Ground Flax Seed combined with 5 table spoons water whisked and set aside
      1 medium apple, diced small (about 1¼ cups)
      1 cup chopped pecans
      ¼ cup flax seeds

      Preheat oven to 350° F and grease a 9 x 13 inch baking pan.
      In a mixing bowl, whisk together the almond flour, coconut, cinnamon, baking soda, and salt.
      Add the applesauce, almond butter, honey, coconut oil, and ground flax mixture. Beat with a mixer until everything is incorporated.
      Stir in the diced apple, pecans, and flax seeds.
      Spread the batter in the prepared pan and bake for 25min
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