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Blood Test Negative Endoscopy Yesterday Questions
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Hi All - I have been VERY sick since the end of Nov. I have always has stomach issues, bloating, coughing, etc. I have lost over 20 lbs in the past month and have had a BILLION tests done. I won't get into it all because the story is so long. This week I had a HIDA Scan done which showed my gallbladder isn't functioning normally, 11%. It's supposed to be at least 35-40%. I was supposed to start a brand new job this coming Tue. and am now having surgery to remove my gallbladder on Monday. In the meantime both GI and General Surgeon recomended that I go through with yet another test and have the endoscopy done to rule out anything else. I did this yesterday. It showed that my stomach lining is inflammed and even starting to erode! The GI took biopsy's of this. To check for celiac and also a possible infection. I was doped up still from the procedure and don't remember everything he said. He told my Mom that he didn't think it was probably celiac because my intestines didn't look bad at all, just my stomach. He told me ideally he would like me to wait another week for surgery to see what the biopsy's come back with. However, I am also being told this gallbladder not functioning will NOT get better and will just continue to get worse. In an ideal world I would wait, however I cannot keep pushing my start date back on my new job. I don't want to have an surgery that I might not need, but I don't want to find out it's also celiac or a bacteria and 3 weeks into my new job, need my gallbladder out now. Also with the findings on this test could I be gluten intolerant but not celiac? My cousins daughter who was about 6 at the time, had an endoscopy as she was bleeding in her stools. They found her stomach had inflammation and they did tell her to remove gluten (but didn't confirm) celiac. I know they are also testing for H-Pylori (to which I have already had a negative blood test for, and negative stool test for, however I was on prilosec during the stool test which can produce false negatives) I would like to hear feedback from all of you. My syptoms have been chest pain/breathing difficulties (gone now), stomach burning, nausea, vomiting, diaherrea, constipation, green stool, high white blood count.

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Hi Bekkaz,

 

Gall bladder issues are somewhat common in people with celiac disease.  You can search the forum and find threads from people about them.  Wether the gall bladder would get better or not on a gluten-free diet is a good question.  I don't think there is any way to know without trying it.  I think you already had you gall bladder removed though so guess it will remain unknown.

 

I really just wanted to reply because it seems we missed your thread, sorry! :(

 

Here's an article about non-celiac wheat reactions.  The researchers don't know much about it's effects yet, or how to test for it, but they are learning.

 

Non-celiac wheat sensitivity article
http://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

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      Update: I am about at my wit's end. I won't be able to see my new doctor until July 17 to get a referral to a GI doctor, so I continue to eat gluten and the effects continue to worsen. Today my boss, whom I have been working with for 12 years, and I had a meeting where he said he's noticed a change in many things, such as speech, not articulating well, forgetfulness, and other things that are affecting my work product. I finally told him I know there is something wrong with me medically and I've been trying to get to the doctor to no avail. I recall those four weeks early in the year when I tried out gluten free and was beginning to feel much better- more present, more sharp, and then went back on gluten in preparation for the blood test.  I just don't think I can do this gluten thing any longer and am thinking of going cold-turkey gluten free.  I'm 54 years old, am beginning not to care about a diagnosis because I just want to feel better and be able to do what I need to do. Because of how I felt going off of gluten earlier in the year, and eating gluten free when I was on the McDougall plan years ago, and how I feel while doing this gluten challenge, I am pretty convinced that my issue is gluten.  Any words of encouragement would be welcome.  If you've done gluten free and never looked back, tell me about it. 
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    • Gluten does WHAT to the brain?
      "Wondering what kind of life my brother could have had - if  he had celiac - constantly haunts me" My sympathies that is just tragic, as this story is.  I hope you are at peace knowing you are aware of your celiac and help so many lost, scared, and confused celiacs here. It can never bring back your brother but I hope it can give soften some of what you feel that was/is beyond your control. His suffering and your loss has made you a better advocate to yourself and in your work helping us. I don't like my body or my  brain on gluten either. I do fear that people overlook the toll inflammation takes on the brain. It likely may explain decades of mental illness that was brain based inflammation unknown until changes in technology advancement catch up. However consuming gluten to study how one enters psychosis may not be the best method. Do no harm.  
    • Gardasil
      I got this vaccination in 2009 when I was 20 and it completely altered my life. Made my celiac disease so much worse, sleep 15-18 hours a day, SIBO, it has completely altered my life since getting this vaccination. My doctor has two twin girls about my age and they both have digestion problems after receiving gardasil
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