Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Blood Test Negative Endoscopy Yesterday Questions
0

2 posts in this topic

Hi All - I have been VERY sick since the end of Nov. I have always has stomach issues, bloating, coughing, etc. I have lost over 20 lbs in the past month and have had a BILLION tests done. I won't get into it all because the story is so long. This week I had a HIDA Scan done which showed my gallbladder isn't functioning normally, 11%. It's supposed to be at least 35-40%. I was supposed to start a brand new job this coming Tue. and am now having surgery to remove my gallbladder on Monday. In the meantime both GI and General Surgeon recomended that I go through with yet another test and have the endoscopy done to rule out anything else. I did this yesterday. It showed that my stomach lining is inflammed and even starting to erode! The GI took biopsy's of this. To check for celiac and also a possible infection. I was doped up still from the procedure and don't remember everything he said. He told my Mom that he didn't think it was probably celiac because my intestines didn't look bad at all, just my stomach. He told me ideally he would like me to wait another week for surgery to see what the biopsy's come back with. However, I am also being told this gallbladder not functioning will NOT get better and will just continue to get worse. In an ideal world I would wait, however I cannot keep pushing my start date back on my new job. I don't want to have an surgery that I might not need, but I don't want to find out it's also celiac or a bacteria and 3 weeks into my new job, need my gallbladder out now. Also with the findings on this test could I be gluten intolerant but not celiac? My cousins daughter who was about 6 at the time, had an endoscopy as she was bleeding in her stools. They found her stomach had inflammation and they did tell her to remove gluten (but didn't confirm) celiac. I know they are also testing for H-Pylori (to which I have already had a negative blood test for, and negative stool test for, however I was on prilosec during the stool test which can produce false negatives) I would like to hear feedback from all of you. My syptoms have been chest pain/breathing difficulties (gone now), stomach burning, nausea, vomiting, diaherrea, constipation, green stool, high white blood count.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Bekkaz,

 

Gall bladder issues are somewhat common in people with celiac disease.  You can search the forum and find threads from people about them.  Wether the gall bladder would get better or not on a gluten-free diet is a good question.  I don't think there is any way to know without trying it.  I think you already had you gall bladder removed though so guess it will remain unknown.

 

I really just wanted to reply because it seems we missed your thread, sorry! :(

 

Here's an article about non-celiac wheat reactions.  The researchers don't know much about it's effects yet, or how to test for it, but they are learning.

 

Non-celiac wheat sensitivity article
http://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,755
  • Topics

  • Posts

    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
    • I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,688
    • Most Online
      3,093

    Newest Member
    AbuBakar
    Joined