Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

When To Start Gluten Free Diet?
0

7 posts in this topic

I had my EGD yesterday to check for celiac. My antibody levels are very high which is why I was referred to a gastro. After the procedure, the doc said he saw scalloping in various spots in the third and fourth level of the small intestine. He took sample of them. He said he was suprised he didn't see more scalloping because of my lab results. He put me on protonix 40mg twice a day and told me to avoid all dairy for a week and then restart.He said to call and let him know if it relieved any of my symptoms. I mentioned the gluten free diet and he told me to wait. Is this a normal to cut out dairy but not gluten in the beginning. If not eating dairy does not change anything, shouldn't I proceed to a gluten free lifestyle?

I'm trying to wrap my brain around the diagnosis of celiac disease and the changes I will be making, but what is the usual process for someone newly diagnosed?

:unsure: :unsure:

0

Share this post


Link to post
Share on other sites


Ads by Google:

Perhaps he is waiting for the biopsy to come back before bestowing the "official diagnosis" seal of approval ?

I really don't get the thought that the part of your intestines that got damaged by gluten in celiac disease is going to heal up in just a week and allow you to resume dairy that quickly. :blink: This is an auto immune reaction and it takes a while for things to settle down. You may not be able to handle lactose, (milk sugar) and it may take a while for things such as yogurt, which don't have it, to not bother you.

If your blood test labs were really high and you have symptoms, and he saw damage, hopefully the biopsy will not come back negative and then you get told you don't have "it" after all, and to resume eating a regular diet.... <_<:o in that case, you should make sure to get print copies of your test reports, and go on a gluten free diet trial anyway.

0

Share this post


Link to post
Share on other sites

I'm not entirely sure why he chose a reflux med to reduce stomach acid if your looking at intestinal damage and celiac disease. Maybe he thought that it was dairy causing the scalloping (very rarely, dairy intolerance can cause villious atrophy), but that's a huge stretch.

If you're done with testing, I see no reason to wait for the results to try a gluten free diet. If you're not... I'd call back for clarification on whether or not there is a specific reason (other than "the diet is too hard" BS) for waiting.

0

Share this post


Link to post
Share on other sites

I agree with the advice that the others gave you: unless you are waiting to dofurther celiac testing, I can't understand why you should wait to go gluten-free. There's nothing risking about going gluten-free except you might consume more sugar if you choose to buy substitute baked items rather that eating more whole foods, otherwise it's a perfectly healthy way to eat. :)

Good luck with the diet. :)

0

Share this post


Link to post
Share on other sites

I think since some of my symptoms are bloating and gas he wanted to make sure it was from dairy? I've always had a intolerance to dairy, mainly milk or ice cream. I can handle them in small doses. With milk, the lower the fat content the easier it is for me to digest. I also have less problems with organic milk.

I think regardless, I'm going gluten free. I'm tired of all the symptoms.

Thank you for your advice it is greatly appreciated!

0

Share this post


Link to post
Share on other sites




As for the protonix, I have severe GERD. He said my stomach was inflamed due to the reflux. I would have begged for something anyway. :)

0

Share this post


Link to post
Share on other sites

My son-in-law, who has resisted our nutrition advice for years, finally went gluten-free 4 months ago. He no longer has his acid reflux and is off his meds. He also no longer has what he had always been told was Irritable Bowel Syndrome. He was amazed at how much better he feels with such a simple diet change.

Hopefully you will heal and no longer need the meds.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,672
    • Total Posts
      921,690
  • Topics

  • Posts

    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
    • My daughter had the HPV Vaccine last year. It was administered in three doses in April 2015, May 2015, and August 2015. Immediately after the third dose, she started having weird symptoms such has headaches, irritability, and a general feeling of being unwell (which she never had before). About three months later she started having gastro symptoms, most notably constant nausea. For several months we tried to figure out what was wrong and none of the doctors knew. After seeing many doctors and having a battery of tests, she was finally diagnosed with Celiac in August 2016. Her intestinal damage was a 3b Marsh score. No one else in our immediate or extended family has Celiac (myself and my other daughter were tested and are negative). No one else has symptoms or any indication that they could have Celiac. I feel like my daughter could have gone her whole life without being triggered and I'm feeling very guilty for making her get this controversial vaccine. I have done a lot of research and there seems to be conflicting studies regarding vaccines and autoimmune diseases. Some say there is no link, while others say there is a possible link, but it cannot be proven at this time. No one seems to know for sure what triggers Celiac...could it be vaccines? I'm wondering if anyone else feels that their Celiac Disease was triggered by a vaccine?  
    • Here is an article, albeit short, about Myocarditis and Celiac disease.  I have read before about a connection between the two and A-Fib is another one that can happen with undiagnosed Celiac. From one over-thinker to another......its the inflammation thing, along with maybe some genetic components to it.  I can't remember how long you have been gluten-free but it can take awhile for things to settle down, especially if your thyroid is wonky also.  I have Celiac and Hashi's so feel your pain, even though I have not had any cardiac involvement.  Some doctors really suck. I have a lifetime of bad with them so do not go that often, only when I have to and am leery about seeing any new ones. I am so done with that attitude of theirs. I think you need to find someone who has knowledge of Celiac and it's related conditions and who actually listens to the patient. That might be harder than finding a needle in a haystack but I wish you luck! 
      https://www.ncbi.nlm.nih.gov/pubmed/12045166
    • Older people often show clinically atypical symptoms of celiac disease, which can delay diagnosis. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,669
    • Most Online
      3,093

    Newest Member
    Cjplmon
    Joined