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I Think You're My People!
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5 posts in this topic

For 2 months now, I've been reading and commenting on this board, and i have to say how glad i am to have found you all. It's like i've found people who are "my" people!

My first food allergy was at 2 weeks, when my pediatrician had my mom giving me orange juice, and i vomited it across the room. That was the start of the food fun, i suppose. I've had terrible teeth and saw a few posts in the past week about others with that problem, so i looked online and found that celiac is the underlying cause of it! I've been allergic to citric acid since i was about 15 - but never met another person who was. And here there are a bunch of you that have it in your sig lines! Citric acid is evil stuff!

At about that same age, I became lactose intolerant, too. i've been taking digestive enzymes since i found them about 15-20 years ago and no doc could ever explain to me why i needed them to be able to eat - but here there are many people who use them. i've had all these food allergies/intolerances and other than my mom, never known anyone else who also had so many. When I order in a restaurant I have to ask "does this have cinnamon/oregano/basil/thyme/pork/citrus/blah blah in it?" Now I add gluten on to the list. I had the worst acne of almost anyone i knew - and a lot of people here also have skin issues.

I just read someone's post that said they were in their 50's and the first sign that they'd gotten glutened was their face the next morning. YES! I get that face too!

*sigh*

so i know this is a bizarre post but i just had to say thanks for being here. I'm learning so much by reading everyone's posts - so many of my "odd" symptoms seem to be connected to celiac disease. I wouldn't wish this on anyone, but at the same time, am thankful for me not being the only person with all of this stuff. I think people here understand - and after feeling like the weirdest person around, I'm glad for some company living in Food Intolerance Land.

btw, how do you put info into your sig lines?

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btw, how do you put info into your sig lines?

In the upper right corner, click on your username. In the pop-up, click on "My Profile." Click "Edit my Profile." On the left, click "Signature." Don't forget to click "Save Changes" at the bottom when done.

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I had to come because I laughed when I saw this post. I find myself often mentioning conversations from here to my husband and instead of saying things like "so I was talking to the people on the forums" which takes forever to say I stick with "I was talking to my people" or "my people say" and he knows exactly who I mean. I've been calling everyone here my people probably since I just started coming. :D

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Sometimes misery loves company. It was something I could show my kids and say, "Look how many other people have this!!?" You are not alone.

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I had to come because I laughed when I saw this post. I find myself often mentioning conversations from here to my husband and instead of saying things like "so I was talking to the people on the forums" which takes forever to say I stick with "I was talking to my people" or "my people say" and he knows exactly who I mean. I've been calling everyone here my people probably since I just started coming. :D

Your post made me laugh out loud! Very cute!

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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