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Nope Not Me!

other food intolerances food intolerance

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8 replies to this topic

#1 cindylou7

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Posted 20 January 2013 - 03:54 PM

I've read the posts of celiacs and other gluten sensitive souls and always thought everyone had it so much worse than I could imagine. I kind of had a "there but for the grace of God" attitude about the multitude of food issues many celiacs face. But I've come to realize that once you have some serious GI issues they don't just go away...sometimes they get worse!
I've been Gluten Free faithfully for quite some time and I am now finding other reactions and beginning a food diary/elimination diet to track it. So far the dairy sensitivity has worsened and I have been experiencing a reaction to soy too. I've also been having heart palpitations and shortness of breath (saw a cardiologist who assured me I was fine other than trivial valve regurgitation). Oh, and diverticulitis issues too, I'm beginning to believe all of my issues are just food related.
I have a new mantra...
I AM NOT CRAZY, OR DEPRESSED, OR A HYPOCHONDRIAC, I JUST HAVE FOOD ISSUES!
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“Worry is itself an illness, since worry is an accusation against Divine Wisdom, a criticism of Divine Mercy"

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#2 nvsmom

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Posted 21 January 2013 - 09:02 AM

(Hashimoto's) Thyroiditis can cause some of the symptoms you listed as your hormones swing from hyper to hypothyroidism. It could be worth checking out...beyond the food issues. :) ;)

Best wishes.
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"Acceptance is the key to happiness."

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Hypothyroid - August, 2012

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#3 cindylou7

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Posted 24 January 2013 - 09:40 PM

(Hashimoto's) Thyroiditis can cause some of the symptoms you listed as your hormones swing from hyper to hypothyroidism. It could be worth checking out...beyond the food issues. :) ;)

Best wishes.


Thanks, I've had my thyroid checked and it was good, I've wondered about sjogren's because I've also been having swallowing, choking issues, but that could also be due to GERD...oh well...
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“Worry is itself an illness, since worry is an accusation against Divine Wisdom, a criticism of Divine Mercy"

#4 beachbirdie

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Posted 26 January 2013 - 01:08 PM

Thanks, I've had my thyroid checked and it was good, I've wondered about sjogren's because I've also been having swallowing, choking issues, but that could also be due to GERD...oh well...


Forgive me for pushing this, but which thyroid tests did they do? Did you see the results?

Doctors often say they have checked the thyroid, but that usually means they tested TSH. If TSH is "normal" they don't look any further. Please, do check with your doc and find out if they ran Free T3, Free T4, and thyroid antibodies (anti-thyroglobulin known as TgAb and anti thyroid peroxidase, known as anti-TPO). You cannot know if you have autoimmune thyroid without those antibody tests, and autoimmune thyroid can definitely cause your symptoms.

As for the diverticulites, I've had two bouts with that. I'm finding that the soy-free, starch-free paleo/primal plan (with SCD variation so I can eat home-made yogurt!) is making a huge difference. I do not have abdominal issues as long as I stick to the plan.
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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#5 nvsmom

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Posted 27 January 2013 - 09:47 AM

Forgive me for pushing this, but which thyroid tests did they do? Did you see the results?

Doctors often say they have checked the thyroid, but that usually means they tested TSH. If TSH is "normal" they don't look any further. Please, do check with your doc and find out if they ran Free T3, Free T4, and thyroid antibodies (anti-thyroglobulin known as TgAb and anti thyroid peroxidase, known as anti-TPO). You cannot know if you have autoimmune thyroid without those antibody tests, and autoimmune thyroid can definitely cause your symptoms.


Beachbirdie is completely correct. I am almost positive that I've had thyroid issues for 15 years but the doctors would just check my TSH, which was a high normal or just above the range, and tell me I was normal.... I accepted that and didn't ask to see the specific lab results; that was a HUGE mistake on my part. My doctor finally "found" a thyroid problem when my TSH was triple the normal range, but my symptoms hadn't changed one iota from when my TSH was in the normal range... he would call it a coincidence. Sheesh. :rolleyes:

Those Free T4 and T3 labs should be in the upper half of the normal range, at about 65-80% of normal, so if the lab range was 0-10, you would ideally want to be at a 7. When my TSH was high, my Free T4 was at 10%, or in the above example it would have been a one... and I didn't feel very good.

Best wishes with it all. :)
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Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

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#6 cindylou7

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Posted 03 February 2013 - 03:08 PM

Beachbirdie is completely correct. I am almost positive that I've had thyroid issues for 15 years but the doctors would just check my TSH, which was a high normal or just above the range, and tell me I was normal.... I accepted that and didn't ask to see the specific lab results; that was a HUGE mistake on my part. My doctor finally "found" a thyroid problem when my TSH was triple the normal range, but my symptoms hadn't changed one iota from when my TSH was in the normal range... he would call it a coincidence. Sheesh. :rolleyes:

Those Free T4 and T3 labs should be in the upper half of the normal range, at about 65-80% of normal, so if the lab range was 0-10, you would ideally want to be at a 7. When my TSH was high, my Free T4 was at 10%, or in the above example it would have been a one... and I didn't feel very good.

Best wishes with it all. :)

Sorry i took a break from the forum for a bit...

My TSH was 2.28 and my Free T4 was .91

I spent a few days compiling all of my symptoms, organizing the patterns of highs and lows and went to the doc armed with my own "research". I figured that there had to be a reason for all of the things happening to me. They weren't just digestive but arthritic too and then there were the heart palps. He's running an ANA, RA, and Lupus panel as well as checking SED rate and another CBC.
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“Worry is itself an illness, since worry is an accusation against Divine Wisdom, a criticism of Divine Mercy"

#7 nvsmom

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Posted 03 February 2013 - 06:33 PM

Do you know your lab's ranges? A TSH of 2.28 is in the middle of my lab's range (0.2-6.0) but is on the high end if the range is 0.2-2.5... The ranges make a difference.

That's good the doctor is looking into rheumatic diseases too. Good luck with the tests.
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Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#8 cindylou7

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Posted 03 February 2013 - 06:42 PM

I don't know the ranges. It starts at .45 but the page cut off the end range. It didn't have a flag on it.

Thanks!
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“Worry is itself an illness, since worry is an accusation against Divine Wisdom, a criticism of Divine Mercy"

#9 beachbirdie

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Posted 04 February 2013 - 09:22 AM

Sorry i took a break from the forum for a bit...

My TSH was 2.28 and my Free T4 was .91

I spent a few days compiling all of my symptoms, organizing the patterns of highs and lows and went to the doc armed with my own "research". I figured that there had to be a reason for all of the things happening to me. They weren't just digestive but arthritic too and then there were the heart palps. He's running an ANA, RA, and Lupus panel as well as checking SED rate and another CBC.


Ask them to test your Free T3. If your lab uses ranges like my lab, your Free T4 is on the lowish end. I can't function if my TSH is as high as yours though your mileage may vary. I'd be really suspicious of early hypothyroid here. Endocrinologists are increasingly accepting of new TSH recommendations which say 2.5 (some say 3.0) is the upper end of the range...with that in mind, you are definitely on your way.

Not to mention that many hypothyroid patients show symptoms long before their labs catch up to them. I had a heck of a time getting my doc to stop looking at me as a potential cardiac patient (palpitations, high blood pressure, high cholesterol, anxiety) and start thinking about thyroid. Turns out most everything that was wrong with me at the time WAS thyroid.
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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012



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