Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nope Not Me!
0

9 posts in this topic

I've read the posts of celiacs and other gluten sensitive souls and always thought everyone had it so much worse than I could imagine. I kind of had a "there but for the grace of God" attitude about the multitude of food issues many celiacs face. But I've come to realize that once you have some serious GI issues they don't just go away...sometimes they get worse!

I've been Gluten Free faithfully for quite some time and I am now finding other reactions and beginning a food diary/elimination diet to track it. So far the dairy sensitivity has worsened and I have been experiencing a reaction to soy too. I've also been having heart palpitations and shortness of breath (saw a cardiologist who assured me I was fine other than trivial valve regurgitation). Oh, and diverticulitis issues too, I'm beginning to believe all of my issues are just food related.

I have a new mantra...

I AM NOT CRAZY, OR DEPRESSED, OR A HYPOCHONDRIAC, I JUST HAVE FOOD ISSUES!

1

Share this post


Link to post
Share on other sites


Ads by Google:

(Hashimoto's) Thyroiditis can cause some of the symptoms you listed as your hormones swing from hyper to hypothyroidism. It could be worth checking out...beyond the food issues. :);)

Best wishes.

0

Share this post


Link to post
Share on other sites

(Hashimoto's) Thyroiditis can cause some of the symptoms you listed as your hormones swing from hyper to hypothyroidism. It could be worth checking out...beyond the food issues. :);)

Best wishes.

Thanks, I've had my thyroid checked and it was good, I've wondered about sjogren's because I've also been having swallowing, choking issues, but that could also be due to GERD...oh well...

0

Share this post


Link to post
Share on other sites

Thanks, I've had my thyroid checked and it was good, I've wondered about sjogren's because I've also been having swallowing, choking issues, but that could also be due to GERD...oh well...

Forgive me for pushing this, but which thyroid tests did they do? Did you see the results?

Doctors often say they have checked the thyroid, but that usually means they tested TSH. If TSH is "normal" they don't look any further. Please, do check with your doc and find out if they ran Free T3, Free T4, and thyroid antibodies (anti-thyroglobulin known as TgAb and anti thyroid peroxidase, known as anti-TPO). You cannot know if you have autoimmune thyroid without those antibody tests, and autoimmune thyroid can definitely cause your symptoms.

As for the diverticulites, I've had two bouts with that. I'm finding that the soy-free, starch-free paleo/primal plan (with SCD variation so I can eat home-made yogurt!) is making a huge difference. I do not have abdominal issues as long as I stick to the plan.

0

Share this post


Link to post
Share on other sites

Forgive me for pushing this, but which thyroid tests did they do? Did you see the results?

Doctors often say they have checked the thyroid, but that usually means they tested TSH. If TSH is "normal" they don't look any further. Please, do check with your doc and find out if they ran Free T3, Free T4, and thyroid antibodies (anti-thyroglobulin known as TgAb and anti thyroid peroxidase, known as anti-TPO). You cannot know if you have autoimmune thyroid without those antibody tests, and autoimmune thyroid can definitely cause your symptoms.

Beachbirdie is completely correct. I am almost positive that I've had thyroid issues for 15 years but the doctors would just check my TSH, which was a high normal or just above the range, and tell me I was normal.... I accepted that and didn't ask to see the specific lab results; that was a HUGE mistake on my part. My doctor finally "found" a thyroid problem when my TSH was triple the normal range, but my symptoms hadn't changed one iota from when my TSH was in the normal range... he would call it a coincidence. Sheesh. :rolleyes:

Those Free T4 and T3 labs should be in the upper half of the normal range, at about 65-80% of normal, so if the lab range was 0-10, you would ideally want to be at a 7. When my TSH was high, my Free T4 was at 10%, or in the above example it would have been a one... and I didn't feel very good.

Best wishes with it all. :)

0

Share this post


Link to post
Share on other sites




Beachbirdie is completely correct. I am almost positive that I've had thyroid issues for 15 years but the doctors would just check my TSH, which was a high normal or just above the range, and tell me I was normal.... I accepted that and didn't ask to see the specific lab results; that was a HUGE mistake on my part. My doctor finally "found" a thyroid problem when my TSH was triple the normal range, but my symptoms hadn't changed one iota from when my TSH was in the normal range... he would call it a coincidence. Sheesh. :rolleyes:

Those Free T4 and T3 labs should be in the upper half of the normal range, at about 65-80% of normal, so if the lab range was 0-10, you would ideally want to be at a 7. When my TSH was high, my Free T4 was at 10%, or in the above example it would have been a one... and I didn't feel very good.

Best wishes with it all. :)

Sorry i took a break from the forum for a bit...

My TSH was 2.28 and my Free T4 was .91

I spent a few days compiling all of my symptoms, organizing the patterns of highs and lows and went to the doc armed with my own "research". I figured that there had to be a reason for all of the things happening to me. They weren't just digestive but arthritic too and then there were the heart palps. He's running an ANA, RA, and Lupus panel as well as checking SED rate and another CBC.

0

Share this post


Link to post
Share on other sites

Do you know your lab's ranges? A TSH of 2.28 is in the middle of my lab's range (0.2-6.0) but is on the high end if the range is 0.2-2.5... The ranges make a difference.

That's good the doctor is looking into rheumatic diseases too. Good luck with the tests.

0

Share this post


Link to post
Share on other sites

I don't know the ranges. It starts at .45 but the page cut off the end range. It didn't have a flag on it.

Thanks!

0

Share this post


Link to post
Share on other sites

Sorry i took a break from the forum for a bit...

My TSH was 2.28 and my Free T4 was .91

I spent a few days compiling all of my symptoms, organizing the patterns of highs and lows and went to the doc armed with my own "research". I figured that there had to be a reason for all of the things happening to me. They weren't just digestive but arthritic too and then there were the heart palps. He's running an ANA, RA, and Lupus panel as well as checking SED rate and another CBC.

Ask them to test your Free T3. If your lab uses ranges like my lab, your Free T4 is on the lowish end. I can't function if my TSH is as high as yours though your mileage may vary. I'd be really suspicious of early hypothyroid here. Endocrinologists are increasingly accepting of new TSH recommendations which say 2.5 (some say 3.0) is the upper end of the range...with that in mind, you are definitely on your way.

Not to mention that many hypothyroid patients show symptoms long before their labs catch up to them. I had a heck of a time getting my doc to stop looking at me as a potential cardiac patient (palpitations, high blood pressure, high cholesterol, anxiety) and start thinking about thyroid. Turns out most everything that was wrong with me at the time WAS thyroid.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,566
  • Topics

  • Posts

    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
    • Many things can damage the small intestine besides celiac disease: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ Happily, I can share that I became a Great-Aunt this week for the first time  to a charming little boy. Sadly, my lovely 19 year old niece was diagnosed yesterday with Crohn's.  She had so many symptoms of celiac disease, I was sure she had it.  Actually, I was hoping that she'd have it, because Crohn's can be much worse.  At least there is a "cure" or known trigger for it -- gluten!   Anyway, your daughter might be suffering from something other than celiac disease.  It is possible.  It could be a food intolerance (e.g. milk).  My niece has suffered for years with periodic episodes of abdominal pain, vomiting, etc.  She doesn't have all the "classic" Crohn's Disease symptoms either, yet a recent pill cam revealed a lot!  Her endoscopy was normal.  Celiac panel normal.  Gallbladder scan normal (non-functioning gallbladder is a family curse).  My heart goes out to her, but at least we know what we are dealing with.  Will she ever get celiac disease?  It could happen. Keep advocating, Mom.  That's what I kept telling my SIL.  I also provided my SIL  a family health history tree that each GI was happy to receive.  Unfortunately, no one has had Crohn's in the family.  But, at least it allowed him to test my nieces gallbladder and for celiac disease (a full panel,  mind you).   It would not hurt to get a second opinion.  
    • That uncle bens 10minute brown rice with the gluten free table on the box, i been going through hell these last few days, this shit is Not gluten free its contaminated 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,176
    • Most Online
      1,763

    Newest Member
    GMO Poisoned
    Joined