Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New To gluten-free, Question About Cravings
0

8 posts in this topic

My 7 year old son and family are going on a gluten free elimination diet to see if we can improve his mood swings and depression issues. Both my mom and sis are allergic to wheat so its not a far leap to assume it hereditary.

I have read as much as I can but haven't found an answer to my question yet. DS has been gluten-free for about a week. We are experiencing a lot of the withdrawal symptoms that many have mentioned. One thing I have found alarming is since being off gluten (I'm sure not perfectly yet) my son has developed crazy craving for dairy. He has pretty much disliked and didn't drink milk for 2 years and now he begs for milk, cheese, ice cream, chips with cheese flavoring, anything he can get his hands on really.

Is this part of the withdrawal symptoms or do you think something else is going on here? I don't particularly want to pull him off wheat and dairy at the same time since I'm worried it would overload him but I don't know what to do.

Help!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Why not test him for Celiac? At least the blood test, before you take him off gluten? That way you could have a diagnosis for school, college, hospitals, military, etc.

When a Celiac person starts to heal and is finely absorbing nutrients they couldn't absorb before, sometimes they crave the vitamins they are deficient in. sometimes they crave them but get it mixed up, too. Like craving sweets when what your body is saying is it needs fruit. So, maybe what his body wants is vitamin D & calcium?

0

Share this post


Link to post
Share on other sites

A yeast infection may make you crave dairy if you cut back on other carbs.

I did experience hunger cravings when I cut out gluten. I don't think it is unusual or anything.

Diana

0

Share this post


Link to post
Share on other sites

I'm not saying I'm normal, but I had and continue to have simalar cravings for dairy since going gluten-free. It drove me crazy when I had to give up dairy for awhile. During that time, I used coconut milk quite a bit in curries (Indian and Thai recipes.) Maybe he'd like curried fish (or chicken) over rice.

0

Share this post


Link to post
Share on other sites

We are working on getting a diagnosis but lately his mood had been getting so bad that he had begun threatening to commit suicide pretty much daily and also have crazy tantrums and mood swings. Honestly, I begin to worry that he might actually do it so per my mom's suggestion, I'm doing an elimination diet right now to see if it helps. Otherwise, probably my only other option is therapy/and or drugs which I absolute DO NOT want.

At first I thought he might have leukemia or be anemic because he had permanent dark spots under his eyes, had lost 6 lbs in 1 month (that's 10% of his body weight), was extremely lethargic, loss of appetite, was having crazy mood swings, joint pain, and stomach issues. Its only been a week but I *think* I see some improvement.

The vitamin D angle may very well be the case and I guess for now I should keep letting him eat dairy as it doesn't seem to affect his behavior besides wanting more than usual. This is all very new to us so its also extremely scary.

0

Share this post


Link to post
Share on other sites




Thats scary! Even more reason to get an official Celiac diagnosis, if that is what he has. You don't want him thinking he doesn't have a real illness so he can eat gluten in a few years. or schools or hospitals refusing to accomadet a gluten-free diet. You also don't want him on a bunch of drugs or with psych diagnoses when he really has Celiac.

Just an FYI - A wheat allergy isn't the same as Celiac.

0

Share this post


Link to post
Share on other sites

Thats scary! Even more reason to get an official Celiac diagnosis, if that is what he has. You don't want him thinking he doesn't have a real illness so he can eat gluten in a few years. or schools or hospitals refusing to accomadet a gluten-free diet. You also don't want him on a bunch of drugs or with psych diagnoses when he really has Celiac.

Just an FYI - A wheat allergy isn't the same as Celiac.

I know they are not the same thing. My mother has celiacs and also highly allergic to monosodium glutamate and my sister is gluten intolerant so I know the basics just not much more than that yet (it seems heriditary to some degree in our family). I do want to get him tested obviously but haven't researched where to start yet. I'm just hoping the medical industry will take me more seriously than that and won't just try to medicate him with prozac or some other mood stabilizers.

0

Share this post


Link to post
Share on other sites

Go to a doctor and get him/her to draw blood sample and send to lab for full celiac panel before you skew the results by being gluten free for very long. Very simple. He's got the symptoms, insist on this test, emphasizing he has symptoms of stomach problems, weight loss, and lethargy AND a family history. The cravings are also a symptom, but I don't know how many regular doctors would recognize that vitamin and mineral deficiencies caused by malnutrition caused by gut damage = whacky food cravings.

I have had these big time and have successfully used a gluten free vitamin B complex, a calcium/D/magnesium supplement, and a gluten free multivitamin to combat it. (besides food selections). You know how some "experts" scoff at the idea of taking vitamins while on a balanced diet? This is when you ignore them, because they are not living in your damaged and non-absorbing body.

Unfortunately if it is celiac, that does also damage the part of the gut lining which can process lactose, the milk sugar in dairy products. Yes, pulling him off dairy might be overload, but at least knock it back down to lactose free dairy, such as yogurt and/or aged cheeses. If this doesn't help, then you may have to ditch dairy (at least temporarily for a month or several, during the healing phase) and go to calcium fortified, non dairy substitutes such as coconut milk, hemp milk, almond milk or other nut milks, rice milk, etc. You can mix more than one kind to get what taste and texture you prefer, such as taking a nut milk and adding some canned coconut milk to it. You can soak chia seeds in nut milks to make "puddings" or mock yogurt. (just don't use RiceDream brand, as it is made with barley enzymes). There is also a powdered milk substitute called Vance's Dairy Free, which is potato based. There are also non dairy cheeses available, such as Daiya. Some people make "cheese" out of things like cashews.

Craving dairy can also be a sign of craving "fat" in general as a response to losing the carbs in gluten products. This can be countered by eating a lot more "good fats" in the form of olive oil, nuts, peanut butter, avocados, eggs, coconut oil, chocolate, even bacon, etc. Don't be afraid of things like hamburger meat at this time.... growing children need fat in a way that adults do not, and if they've not real overweight, don't try putting them on a low- fat diet. <_< The other good thing to add to the diet is to make sure that somehow you are getting at least 2 servings/day of green vegetables in them, even if you have to do this by making a smoothie with a banana added.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,337
    • Total Posts
      917,376
  • Topics

  • Posts

    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,469
    • Most Online
      1,763

    Newest Member
    RichieF
    Joined