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Family Drama
#1
Posted 20 January 2013 - 07:16 PM
I have had to stop talking to her, because she doesn't get it. She thinks Celiac is something fun??!! She thinks she will get special attention if she has it??!!
I told her all the scary stuff my doctors shared with me. I told her it wasn't a game. She has pulled this prank before - when my mother had breast cancer and when my baby sister was in a near fatal accident.
It's more annoying than anything else. She thinks it is a game. I would NEVER wish Celiac on anyone!!
So frustrated!!!
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#2
Posted 21 January 2013 - 12:03 AM
My sister (who is a hypochondriac) has now decided that she too has Celiac. She refuses to get tested, complains all the time about how she feels, and asks me about my symptoms.
I have had to stop talking to her, because she doesn't get it. She thinks Celiac is something fun??!! She thinks she will get special attention if she has it??!!
I told her all the scary stuff my doctors shared with me. I told her it wasn't a game. She has pulled this prank before - when my mother had breast cancer and when my baby sister was in a near fatal accident.
It's more annoying than anything else. She thinks it is a game. I would NEVER wish Celiac on anyone!!
So frustrated!!!
tell her you won't talk to her again unless she get tested, and then really do it. It is a reasonable and strong lever point. She might really be celiac as well. On the other hand, there's no obligation to be nice to an annoying person just because she's a family member: steer clear...
#3
Posted 21 January 2013 - 02:23 AM
tell her you won't talk to her again unless she get tested, and then really do it. It is a reasonable and strong lever point. She might really be celiac as well. On the other hand, there's no obligation to be nice to an annoying person just because she's a family member: steer clear...
Thank you alesusy!! I like your advice!! I'll definitely speak to her about getting tested!!
#4
Posted 21 January 2013 - 09:26 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#5
Posted 21 January 2013 - 11:18 AM
I STILL haven't forgiven myself for thinking she was making it all up. When I found out she had had celiac all her life, and that when she went gluten-free she became a new person, I felt terrible. It was only after I had lost her that I got celiac, and now I feel even guiltier. When I get to Heaven, the very first thing I am going to do is apologize to Mom.
#6
Posted 22 January 2013 - 07:37 PM
I do feel bad for not believing her, but she does have a track record for making things up. I hope she gets tested and then we will know the answer.
Thanks all for your comments!! Very helpful!!
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