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Celiac And Leukocytoclastic Vasculitis
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I have just been diagnosed with leukocytoclastic vasculitis after an accidentally being glutened. Does anyone else have have this or know of this? Any nformation would be greatly appreciated.

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Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)

Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

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I'm a celiac and I'm also sensitive to a lot of other allergens that lurk in processed food.  Ingesting gluten (by mistake, of course!) makes me vomit within about ten minutes but other food items like spices - which often contain food colouring or preservative - usually bring me out in a rash or give me diarrhoea.  I've just come back from a holiday in Malaysia and I have been a little bit lax, as I wanted to be sociable, and other people can be hostile to the "I have food allergies" comments.  I drank some white wine (often contains sodium metabisulphite - a killer for my gut) and I ate some local spicy specialities under persuasion.  Now, a couple of days after arriving home, I have those tell-tale purple dots on my ankles and calves, which look like the vasculitis rash.  Sometimes I get these spots under my instep when I know I have eaten an allergen by mistake.

Some years ago I had a giant aneurysm in my brain - in my right carotid artery - but, as you can see, I did get through it.  My experience tells me there must be a link between the two: celiac disease and vasculitis, in spite of the fact that doctors and specialists look at me like I'm crazy when I suggest this.  I'm going to pay attention to those purple spots and keep off the allergens!

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)
Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

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    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
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