2 replies to this topic

[susiq]

I have just been diagnosed with leukocytoclastic vasculitis after an accidentally being glutened. Does anyone else have have this or know of this? Any nformation would be greatly appreciated.

[mommida]

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)
Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)

[jhd666]

I'm a celiac and I'm also sensitive to a lot of other allergens that lurk in processed food.  Ingesting gluten (by mistake, of course!) makes me vomit within about ten minutes but other food items like spices - which often contain food colouring or preservative - usually bring me out in a rash or give me diarrhoea.  I've just come back from a holiday in Malaysia and I have been a little bit lax, as I wanted to be sociable, and other people can be hostile to the "I have food allergies" comments.  I drank some white wine (often contains sodium metabisulphite - a killer for my gut) and I ate some local spicy specialities under persuasion.  Now, a couple of days after arriving home, I have those tell-tale purple dots on my ankles and calves, which look like the vasculitis rash.  Sometimes I get these spots under my instep when I know I have eaten an allergen by mistake.

Some years ago I had a giant aneurysm in my brain - in my right carotid artery - but, as you can see, I did get through it.  My experience tells me there must be a link between the two: celiac disease and vasculitis, in spite of the fact that doctors and specialists look at me like I'm crazy when I suggest this.  I'm going to pay attention to those purple spots and keep off the allergens!

Ok I only had a bit of spare time to look into this.

There is a link between Celiac and Leukocytoclastic vasculitis. Posters here on the forum have mentioned the "purple spots" and I have thought of the auto immune disease ITP(which also seems to be managed better by a change in diet.)

It seems that Leukocytoclatic vasculitis is also known as hypersensitivity to allergens. (so a much higher concentration of individuals would be posting here.)
Kawasaki in kids kept coming up too. We had adopted a little angel here that had Kawasaki and went through heart surgery.

I have been having symptoms of this myself. (haven't found a doctor that will even begin testing for ANYTHING for a diagnoses)

In my opinion, you are lucky to have a diagnoses. I think there are many more individuals not diagnosed. (which is backed up by the information I read.)