Newbie Mostly Asymptomatic
Posted 21 January 2013 - 11:09 AM
I did have colic as a baby...and my only other celiac-related symptom was the 6 month pregnancy belly after having a beer (but who doesn't bloat up after drinking one).
After reading multiple posts, I'm leaning against the endoscope for confirmation. Blood work in July only revealed that I was over the normal range. Blood work from last week (and different lab) came back as follows:
Gliadin AB IGA 226.8
Gliadin AB IGG 160.0
Tiss Transglutaminase IGA 300.0
Endomysial AB IGA Positive 1:80
Tissue Transglutamanse IGG 116.4
I have an appointment to see a gastro guy next month.
What about probiotics? Again, I have no symptoms and was completely dumbfounded by the results.
Posted 21 January 2013 - 11:51 AM
"Gastro guy" will probably want to scope your innards. It's what they do ....
Posted 22 January 2013 - 05:37 PM
Posted 22 January 2013 - 06:11 PM
Probiotics and digestive enzymes can help healing and digestion once you are gluten free, but until that time (and I hesitate to say this because your scores are so high that I doubt you would heal in that time) you should continue gluten until you have had the endoscopy. But in the meantime, finding out your defiencies and starting to supplement them will get you on the way to healthier bones and body.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 22 January 2013 - 06:54 PM
I know how much it stinks to be told you can't consume gluten when you have little symptoms but you have to. If the biopsy finds the damage and you are diagnosed you MUST stop all consumption so you don't end up like my GI's other patient. Please also be aware that many people who thought they were asymptomatic notice a huge improvement of well being with both physical and mental symptoms vanishing, being more alert, energetic etc... I completely understand how much it sucks and how dumbfounding it can be, we are here for you if you need any support.
Posted 22 January 2013 - 08:47 PM
Posted 23 January 2013 - 08:14 AM
Your numbers and symptoms are very similar to mine, except I got stomach aches too; otherwise the joint pain, bloating, and menstral issues can often be attributed to celiac... my headaches and thinning hair were linked too. The only symptom you have that I don't is problems with the TMJ but there are others around here with jaw pain too.
Vitamin B-12, D3 and Calcium all within normal ranges. And get this my cholesterol is 140, triglyceride 55, LDL 87, pretty good eh? It's funny but not-I only eat gluten (Mom's a great baker) when I'm home for Christmas and the Christmas Eve tradition of the baccala...and the baked stuff shrimp and spaghetti with clam sauce. Back on the west coast, no pasta or bread or cookies in my kitchen. No frozen food in the freezer. I swim sometimes 1.5 hours a day 5-7 days a week. The numbers have scared me $%^^less. And since I have been back east, my joints are achy and it's not from the wind chill and shoveling Mom's driveway. Might be that dough boy and banana chocolate chunk muffin I had 1.5 weeks ago before the blood results came in. One doctor did prescribe Fosamax. Haven't filled that prescription yet because I read one of the rare side effects is lymphoma, so like why double my odds...and it should be noted I come from a long line on both sides of the family who are the Rare Side Effect when it comes to prescription meds. It can always be worse: I have a 38 year old friend with brain cancer and she has a 2 year old son. I was able to beg my way into an appointment with a gastro guy next Monday. My health insurance doesn't cover sedation for an endoscope (out of pocket 750-1,000.00); gonna try to work the angle that I also have TMJ (acquired that from filling out my first college application). Yeah, I'm a mess. But I keep it all in. You'd never know sitting across from me at dinner. LOL! I read somewhere that Cadbury Chocolate is gluten-free. It's the best damn chocolate in the world! I appreciate the replies...and to Takala who knew that my homeland of Italia (I've never been) was so evolved!?!
My celiac tests werealso high,and my vitamins were all normal (except B12 which exceeded the range), and my cholesterol levels were all low or below range... In fact I just posted in Related Disorders about that because low cholesterol (which is caused by diseases like celiac) is actually related to vascular diseases like stroke; there's even a name for really low cholesterol: hypocholesterolemia. I don't think we're actually doing anything right to get those low numbers (my tri is 39, HDL is 65 and LDL is 83), we just don't absorb fats well. Go figure.
Good luck with the gluten-free diet. I too doubt you need an endoscopy. There is a chance they could miss the damaged areas if it is patchy, and then you might find it even harder to adhere to the diet. At this point, I think you should consider the biopsy as just a confirmation of what the blood tests already told you, you have celiac.
Best of luck with the gluten-free diet, it sounds like you won't have to change too much so I hope it goes smoothly for you.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
Celiac.com - Celiac Disease Board Moderator
Posted 23 January 2013 - 09:02 AM
No stomach aches though. Had a bout of weight gain (I'm one of those people you hate from high school: I've only gained about 20 lbs since graduation and have always had the tendency to lose weight from stress or as one internist said to me I can actually cannibalize myself) and constipation, but that's no longer an issue for the time being. Yes, Takala it does appear that I'm just checking off the symptoms.
As for the endoscope...years ago my brother had one for what his doc thought was a sarcoid. Came back inconclusive=they missed the target. His doc was quite the Nazi during the procedure. My bro was completely awake, barely sedated, not even a Valium. The Dark Ages of Medicine (going back to 2001).
New year, new diet.
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